Gerard Duffy

Campaigning for effective MND treatment and a cure. All views are my own. “Every day is a blessing. I’m so glad to be here”.

[MNDA Northern Ireland @MNDA_NI]

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[Gerard Duffy @gpduffy44]

@MarilynLeask @02 Can I ask what is the o2 solution is please

[Gerard Duffy @gpduffy44]

@MNDA_NI Disagree completely unfortunately ! There are no hotel rooms in the south of Ireland we have found with a hoist. Donegal’s answer to accessibility is just a few steps to key facilities just as room bathroom or restaurant. More needs to be done!

[Gerard Duffy @gpduffy44]

@MarilynLeask @O2 What was solution

[Gerard Duffy @gpduffy44]

@O2 Cannot make/receive calls roaming on payg. Appears to be known issue as o2 payg has no 4G calling support. Any solutions welcome?

[Gerard Duffy @gpduffy44]

@TradSkowronski Disgusting headline

[Geoff Burrow @burrow_geoff]

I’ve just signed a petition to ask the Government to make sure people with the SOD1 type of #MND can access #tofersen, a life-saving treatment. Can you sign too? https://t.co/iWxCzbX0yU

[Gerard Duffy @gpduffy44]

@SarahNauser You are an amazing person. My. Mum had als. Her daily prayer: everyday is a blessing

[Gerard Duffy @gpduffy44]

@mndassoc No mirocals data!! A scandal !!

[Gerard Duffy @gpduffy44]

@BrewerJill94827 @Ryanair Any update Ryanair ?

[Jennie Starkey @StarkeyJennie]

It’s time to put an end to being diagnosed and been sent away to live what’s left of your life with NO HOPE.
Please share this if you agree.

[Gerard Duffy @gpduffy44]

@limpbroozkit Brooke you are doing brilliant! You are the same wonderful person I admired in video 1. It’s awful what als can do. It took my mum so quickly. Her daily prayer was - everyday is a blessing. I’m so glad to be here.

You have also given inspiration to so many! ❤️❤️🙏🙏

[UK MND Research Institute @UKMNDRI]

🚨We're working to accelerate the development of new treatments for #ALS.

Read more about how our pioneering study, EXPERTS-ALS, aims to rapidly screen potential drugs for evidence that they can slow progression in people with ALS.

🔗 Find out more 👇 https://t.co/0jIsiGKdQu

[Gerard Duffy @gpduffy44]

@AberdareNic @Keir_Starmer Completely true Nicola. Thinking about this was never on mum’s agenda, her determination and refusal to never never up. She often said it will never take her. It’s not the life she wanted. After she told me this we focussed on clinical trials and anything to help.

[Gerard Duffy @gpduffy44]

@DublinAirport @aegeanairlines #greekgetaway

[Gerard Duffy @gpduffy44]

@AberdareNic Nicola I’ve said before burden is not what you are!!!!

It’s a blessing for care for a beautiful soul with mnd. It’s a privilege

We didn’t even recognise it as a disease. It’s a condition.

It would suit the government better if they released the trial data.

[MummywithMND @MummywithM]

If people with MND can't clear their lungs they will die of infection. In England, a cough assist machine is available this keeps serious lung issues at bay. I have just lost a Scots friend who was told repeatedly that she didn't need cough assist. @MNDScotland she couldn't cough

[Gerard Duffy @gpduffy44]

@AberdareNic Very true Nicola. Mum always said there’s not much wrong with her. Even when admitted to hospital. You learn to treasure every day as a gift.

[Gerard Duffy @gpduffy44]

@bsw5020 Happy Birthday Brian! Wishing you kindness and happiness on your special day !

[Gerard Duffy @gpduffy44]

@a_life_derailed Your friends and family see the old you. I never saw mum in her weakened body. It’s so difficult