@drkerrynphelps Prof Phelps - See here and in the comments below the post for some areas that need to be addressed #MyHealthRecord#auspol#myhr . I think if we are not going to scrap it - this is the minimum. https://t.co/ua9Z2XLpdQ
I like the focus on the ethics of opt out consent. The focus group comments ✅ (where some participants were paid)
Plus the concern being centred rightly on the therapeutic alliance
b/w Dr & patient. This must be confidential.
#MyHealthRecord
Good call @HarryNespolon
@Luke38842991 Doctors are acutely aware of the potential implications of privacy breaches in the health system, now and into the future #MyHealthRecord
The IT providers and the doctors and the privacy professionals and the cybersecurity professionals say #MyHealthRecord is flawed. So why is the government so keen to push it?
https://t.co/dLJkz2WKDo
@Asher_Wolf@Health_Privacy Asher the #MyHealthRecord is, despite the $2.0B+ spent, pretty much an evidence free zone. See my blog for details. The ADHA plan to get some evidence by about 2020 - if it does actually work -which I believe is unlikely - docs are rejecting it in droves!
Quote
“Best practice out the window
According to global best practice in data protection, patients should be "fully informed" and give "express consent" for use of their health information.”
#MyHealthRecord
This is an incredibly helpful explainer on exactly what #MyHealthRecord is intended to be. Clinically redundant, with very little for patients to use themselves, it is clearly an attempt to hoover up masses of medical information for purposes unspecified.
https://t.co/nwsbdzFds5
@MJAInsight poll
"#MyHealthRecord will improve patient outcomes"
18% agree. The rest are neutral or disagree.
80% of existing records are empty. I wonder why?
Gov't has a big job winning over the doctors.
Of course such polls may be subject to responder bias etc, but in the absence of other data, this is powerful stuff. The ethics of ‘opt out’ are a concern with #MyHealthRecord - of opt out, can always opt in later once issues addressed! https://t.co/R0jNbQf7gF
Effective #MyHR use would help every pt. Safety, efficiency, co-ordination & continuity of care would be way beyond anything we expect now.
But this current model won't do that.
#AYRI2018 https://t.co/l6rBGKzgQ6
In this article, @stilgherrian shows that he understands the risks of a #myHealthRecord data breach better than a huge number of my medical colleagues and most politicians. A must read.
https://t.co/GtOLhGTQ4G