Health_Privacy

Deputy Chair, Health Committee, Australian Privacy Foundation.

email: [email protected]

[Health_Privacy @Health_Privacy]

Worth a read, especially this bit:

#MyHealthRecord affords some dynamic consent mechanisms, these typically rely on a digitally literate and engaged consumer. These tensions regarding consent sit uneasily with a national system that is unlikely to incorporate individual needs,

[Sexuality Research and Social Policy @SRSPJournal]

Set against backdrop of the Australian #MyHealthRecord, this article examines technoutopian portrayals of digital health, practicalities for engaging stigmatised communities with these imperfect systems, and possibilities for data justice.

https://t.co/NHS1Q7ksbi

@thisnewman

[Health_Privacy @Health_Privacy]

"If all the information is there, such as in #MyHealthRecord ..."

I'd be very surprised.

As it tells you when you log on, there will be no history.

It was designed to be, and is, at best a summary system.

Do have a look, it's probably empty

[Digital Health AU @AuDigitalHealth]

When it comes to early diagnosis, having access to information as soon as it's available is crucial. As Dr Lawrie Bott notes, "If all the information is there, such as in #MyHealthRecord, you're going to get a better result". See what's in your record: https://t.co/p3qoqc3ZFv

[Health_Privacy @Health_Privacy]

@VictorDominello
Maybe you should read the small print.

#myhealthrecord is a summary system. It was never designed to be a complete record and cannot and should not be used as such.

[The Hon Victor Dominello @VictorDominello]

I completely support and applaud the Strengthening Medicare Taskforce - and it’s particular focus on uptake of My Health Record 🙏

#digital #health #ai #myhealthrecord

[Health_Privacy @Health_Privacy]

@anmjaustralia @AuDigitalHealth

I don't think you guys have any idea of what little data can be in #myHealthRecord

Making clinical decisions on incomplete health data is dangerous in the extreme.

I hope your insurance is up to date.

[Australian Nursing & Midwifery Journal @anmjaustralia]

“My Health Record gives the user the ability to be able to develop a picture about a client or consumer so that they can then make clinical decisions about the resident’s care."
https://t.co/CDqd98KZxM

[Health_Privacy @Health_Privacy]

The article doesn't mention #myhealthrecord, which isn't surprising as it was explicitly designed to not be a communication tool.

[_LizLopez @_LizLopez]

Fascinating discussion on #MyHealthRecord @abcmelbourne with @LaTrioli on communication breakdown between hospitals & GPs lets down patients and clinicians, off the back of this article. Pinging @DT4Health @wendywchapman https://t.co/629PbLujZJ

[Health_Privacy @Health_Privacy]

Don't forget that the Royle Review (2013) expected savings of $400m/year

https://t.co/9rvRhYUa7H

So where are those billions?

[Health_Privacy @Health_Privacy]

Excellent piece on reality catching up with #myHealthRecord

My Health Record’s ‘dumb numbers’ versus ‘meaningful use’

https://t.co/IYhcdYS0To

[Health_Privacy @Health_Privacy]

Excellent piece on reality catching up with #myHealthRecord

My Health Record’s ‘dumb numbers’ versus ‘meaningful use’

https://t.co/IYhcdYS0To

[Health_Privacy @Health_Privacy]

@MeganPrictor

As #myhealthrecord tells you when you log on, there is no history in it.

What they don't tell you is you cannot add any history. The best is to type in a Personal Health Summary but there's no room for details.

[Health_Privacy @Health_Privacy]

@davidmore

Looks like a big bang update to #myhealthrecord coming up.

What could go wrong?

I wonder if they have a plan B or will it be up to over worked and over stressed GPs to struggle to cope?

[🇦🇺Dr David More MB BS BSc PhD FANZCA FCICM @davidmore]

There Seems To Be A Lot Of Change Happening To The GP Digital Health Infrastructure. It Might Not Go Well! https://t.co/Yt05MaZzo6 #myHR #myHealthRecord #ehealth

[Health_Privacy @Health_Privacy]

Why is Victoria creating its own Health Information Exchange?

https://t.co/DgeLd8GFN4

This is damning criticism of Australia's #myhealthrecord

After nine years in operation and over $2billion wasted, Victoria is starting again.

[Health_Privacy @Health_Privacy]

@urbizinhealth Are you aware that there is no history in your #myhealthrecord

It is a myth that it is a health record. At best it has a very short summary, but only if you get your GP to upload it and keep it current.

[Your Business in Healthcare @urbizinhealth]

Not to mention that it will help eliminate information silos and test duplications

#myhealthrecord #digitalhealth

[Health_Privacy @Health_Privacy]

"Forget the #myhealthrecord – no one uses it."
@Medicalrepublic

Three numbers that matter: 62%, 40% and 15c

https://t.co/sqOfk7rqb7

[Health_Privacy @Health_Privacy]

@BonneyCorbin @LaurenceBrown
I changed GP and got a CD with my and my wife's complete record for $25.

It is impossible for me or anyone else to upload any of that info into #myhealthrecord

It is not designed to hold details. It's a summary only.

[Bonney Corbin @BonneyCorbin]

@LaurenceBrown MyHealthRecord is not for everyone.… Though I do have it, for exactly this reason (to prevent fatigue constantly regurgitating my history). In this instance I asked if it had been kept up to date. They said if I paid the fee they would check/update the records.

[Health_Privacy @Health_Privacy]

@iTnews_au
Govt forced to release overdue COVIDSafe report But redacts most of it.
Justin Hendry
itNews
Jul 23 2021
https://t.co/TvjTAXxnK9

But they have avoided even doing a report on #myHealthRecord

After 10 years there's little to show for the effort

[Health_Privacy @Health_Privacy]

@emilyscasey #myHealthRecord is only the tip of the iceberg that is Australia's Digital Health failure

Why is Australian Healthtech So Behind? - Part 1
Its not the tech or our talent..

https://t.co/UDmZR31fLK

[Health_Privacy @Health_Privacy]

@AveryHowardAU @QuestioningJenn @Asher_Wolf Call the #MyHealthRecord help line: 1800 723 471 (option 1), available 24 hours a day, 7 days a week.

[Health_Privacy @Health_Privacy]

In Nov 2020 Scott Morrison said Gov't had now access to four COVID-19 vaccines and over 134 million doses.

https://t.co/9siRHr9P8F

Hollow rhetoric, just like #myHealthRecord #auspol
#VaccineStrollout #COVID19Aus