The Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital in conjunction with Seelos Therapeutics and NINDS have announced the first patient-dosing in the NINDS-funded Expanded Access Protocol (EAP) for Trehalose. Read more: https://t.co/SgUfohUwPn
As your constituent & someone impacted by #ALS, I urge @senfeinstein to support #ALSResearch. Add your name to the FY2024 ALS Appropriations Dear Colleague letter today: https://t.co/BOdRaQIXlh #FundALSResearch
Help build homes in Baja Mexico https://t.co/FjqZVbaL6e
My son and I are planning to travel to Baja over Spring Break to help build 2 home and install solar lights for folks living in Baja with no electricity. Any amount helps to buy materials. Donate if you can :-)
9-20" of additional snowfall in the past 24 hrs as of 7 AM Saturday. 4-Day totals around the lake of 2-5 feet. We could more than double those totals by Thursday!
ALS organizations are calling on the FDA to hold an Advisory Committee meeting for #NurOwn. Add your name to the petition here. #BrainStorm#EndALS#NoAdCommNoVoice https://t.co/2b5JcZQgmZ!
Tonight, thanks to John Costello and his amazing team, I played my synthetic voice for my family for the first time.
My daughters asked it was. My wife replied, that was the way daddy’s voice used to sound. I just listened and held back tears.
Good night moon.