Greg Gowe

Dad. Husband. Lawyer at TELUS ("retired" by ALS). Advocate. I type with my eyes.

[Greg Gowe @GregGowe]

Two years ago , before the pandemic started, I was still making my way downtown to work as a lawyer at TELUS.

Today, I'm almost fully immobilized, can't speak and type with my eyes.

These are the cards I have been dealt. It's up to me to define what winning looks like.

[Greg Gowe @GregGowe]

Thank you @TELUS for lighting up Telus Garden and honouring my late husband, Greg Gowe. It was a special night for our family.

#EndALS @ALSAction

[Greg Gowe @GregGowe]

Thank you to everyone for connecting with Greg’s final tweet. We feel so much love.

What a gift Greg unknowingly gave his kids. In reading your comments, they couldn’t be more proud of their dad.

We gave Greg a beautiful send off. ALS is now behind him, and he is at peace.

[Greg Gowe @GregGowe]

My fight with ALS has come to an end. Please don’t be sad. Life is beautiful.

Live hard. Love those around you and come together to #EndALS.

[Greg Gowe @GregGowe]

When I was diagnosed with ALS I realized almost immediately that my "fight" was not going to be a fight to be healthy again.

No, people with ALS were still having to fight to establish that our lives had value and were worth trying to save. We're still fighting this fight.

[Greg Gowe @GregGowe]

We are very fortunate to have Don as the chair of the board and involved in the #EndALS movemen. Join us / support us and let's find a cure for this terrible disease.

[ALS Action Canada @ALSAction]

ALS Action Canada is honoured that Don Wright is the chair of our board of directors--he brings tremendous expertise and leadership to our organization.

Don served as B.C.’s Deputy Minister to the Premier, Cabinet Secretary and Head of the Public Service until late 2020.

[Greg Gowe @GregGowe]

To my wife on your birthday. I celebrate everything about you and always will.

[Greg Gowe @GregGowe]

Thank you for all that have done for the ALS cause, Sandy. My condolences to your family. Your spirit is now free.

[Sandy Morris @sandymorris333]

And then there were 4.
We are the Truest Most Beautiful Love Story.
You won't 'move on' but you will move forward-w/all the love I was able to pour into your hearts w/the time allowed.
It was my privilege & honor being your mom.
Until we meet again my beloveds 💫
#MomIs #SandyIs

[Greg Gowe @GregGowe]

The ALS community in BC has been waiting patiently for @UBCmedicine to fill this role, which will allow clinical trials to take place and result in a desperately needed upgraded Clinic.

It's been a year, UBC, (and arguably longer). It's time to wrap this up.

[ALS Society of BC @ALS_BC]

Project Hope Update! We are excited to announce today that UBC has committed funding through the President’s Academic Excellence Initiative to support the recruitment of a senior ALS clinician-scientist.💜https://t.co/FqkCIXpyz1 @UBCmedicine

[Greg Gowe @GregGowe]

Borje Salming gets support from Maple Leafs alum after ALS diagnosis https://t.co/c76bif2Lpv

[Greg Gowe @GregGowe]

Thank you BC MLA, @TrevHal. Let's get loud about the need for an accelerated drug approval pathway, better access to more clinical trials and targeted research funding. #EndALS.

[Trevor Halford @TrevHal]

Count me in! #EndALS

[Greg Gowe @GregGowe]

We need a strong ALS patient voice in Canada that will outlast individual patient advocates. That's why we started ALS Action Canada (@alsaction).

We are now a non-profit with a board and part-time Executive Director. We need your support to keep growing.

[Greg Gowe @GregGowe]

We appreciate your ALS advocacy on social media and your behind the scenes work, BC MLA @shirleybond.

We are hoping that another MLA or MP will join you, and then another, and another. We can't stop until people start surviving this disease.

[Shirley Bond 🇨🇦 @shirleybond]

Thank you for being an amazing advocate and champion @GregGowe - let’s make BC a leader in the fight to #EndALS @jjhorgan @adriandix @ALSAction @ALS_BC

[Greg Gowe @GregGowe]

It's been over 80 yrs since Lou Gehrig died. The disease has been neglected and underfunded for decades. We need to make up for all the lost time. @jyduclos @adriandix

[Sportsnet @Sportsnet]

Borje Salming released a statement via @MapleLeafs announcing he has been diagnosed with ALS, also known as Lou Gehrig’s disease.

[Greg Gowe @GregGowe]

Today marks 3 yrs, 3 mos since I was diagnosed with ALS.

Since then, 3,250 more Canadians have received this diagnosis and 3,250 have died from ALS.

I'm not okay with this. @jyduclos @adriandix

[Greg Gowe @GregGowe]

I don't understand why people with ALS have to fight so hard for an accelerated drug approval pathway. We need to start trying to save lives. @jyduclos @adriandix #EndALS

[ALS Canada @ALSCanada]

During the time between Health Canada approval, the release of @CADTH_ACMTS 's final recommendations for ALBRIOZA & provincial reimbursement discussions, hundreds of Canadians will die. We’re calling on all decision-makers to provide equitable access to ALS therapies.

[David Taylor @VPResearch_ALS]

Understanding why each person's experience with ALS is so unique is something we still don't understand well. For Canadians willing to help global scientists figure that out by telling their biological story, please consider participating in CAPTURE ALS. https://t.co/iz61ig69zs

[Greg Gowe @GregGowe]

@KristianaSalmon @QurAlisCo Congratulations..

[Jody Nelson @jodynelson_]

This is ALS. I witness—with my sibling’s experience—exactly what @GregGowe describes here. We need to #EndALS —it is indiscriminate and yes, diabolical. No one should have to endure this. @jyduclos @adriandix @MerrimanPaul

[Shirley Bond 🇨🇦 @shirleybond]

We will keep working to #EndALS . . . @jjhorgan @adriandix we need to make this a priority. You are a warrior @GregGowe and you inspire us to work harder . . . @ALS_BC @ALSAction

[Greg Gowe @GregGowe]

This diabolical disease has progressed to the point where it is dangerous for me to cry, as I now choke on my own secretions / mucus. We need to #EndALS. @jyduclos @adriandix