Putting our #hEDStogether to co-create research with academics, health professionals, third sector, family & people with #HSD#EDS#POTS (& related conditions)
We have some very exciting news!
We have launched a new research project!
Are you #pregnant or #Postnatal and living with #hypermobility in the UK?
Or are you UK-based #physio treating hypermobility during or after pregnancy?
Find out more here 🙂 https://t.co/NbgJUfxnQD
Helen has lots of fabulous updates about her PhD research supporting people with POTS in this blog
https://t.co/o6cP0fP0ti
You can access a full version of her completed PhD thesis free online.
See Helen's new publications. 🥳
More publications to come so watch this space!
The fantastic @higo_anna in the top 5 most downloaded 2025 Clinical Communication podcast episodes with @BWhybrowPhysio 🥳
Brilliant episode and highly recommend a listen 😊
@hEDStogether
This #WomenInScienceDay, we’re applauding our amazing women researchers in #STEM! 👩🔬✨
We're continually inspired by how they are breaking barriers. Past & present, Coventry's women in science shine 🌟
Keep inspiring us - we couldn't be prouder to celebrate you all 🚀👏
⭐️💻 Webinar tomorrow evening - Ask the Experts 💻⭐️
Tomorrow evening the @HMSACharity are hosting a free webinar with #PoTS expert Nurse @EftekhariHelen and expert Occupational Therapist @JBOccyTherapy.
Please see further details & how to sign up here: https://t.co/Ru7CrSixlK
New publication! Free open access to all 😃
POTS is starting to get better recognition now it is associated with Long COVID but there is still not appropriate or consistent healthcare provided system wide.
Read more here
https://t.co/FYuv0N0A5L
Our survey on hypermobility and the shoulder is closing soon. This is a final push so please do take part and/or share! :)
Participants need to be 18+ in UK with a hypermobile diagnosis like hEDS, HSD, EDS type III, EDS-HT, JHS.
Find out more here
https://t.co/X5leOkXQDh
Check out Anna Higo's blog with some fantastic news! @higo_anna
In the blog she summarises a recent publication on shoulder treatments for hypermobility
& launches a NEW SURVEY!
Have a look, share with others and take part 😁❤ THANK YOU 🙏
https://t.co/DuNa0yKGOc
EDS UK invites UK-based GPs and GP trainees to a FREE educational event in London this November. The event will focus on how to spot hypermobility-related conditions in Primary care: https://t.co/Wovspe1P3M #MedTwitter#MedEd#GPs#Hypermobility
Do you have hypermobile #EhlersDanlosSyndrome or a similar diagnosis?
Do you have issues with your shoulder?
Are you an adult living in the UK?
Please complete this survey to let us know your experience & if you might want shoulder support or not 😊
https://t.co/X5leOkXQDh
https://t.co/5T4Fwd80kN
Announcing the most exciting opportunity for GPs this year!
[Drumroll] @ehlersdanlosuk are holding an afternoon event for FREE (thanks to a generous donor). I'm chairing alongside an amazing faculty. Workshop-based practical learning by GPs for GPs!