Aquiline Chivinge, Assistant Director of Nursing & Deputy Director of Inclusion, tells us the importance of having Black Women in research. #BHM#NUH
#SickleCellAwarenessMonth D28
After 100 years of inactivity, we’re FINALLY in a time when we have new therapies being developed
Potential cures like #GeneTherapy and many other drugs in development
This is exciting but we need to be sure new treatments accessible & affordable
We cannot talk about #SickleCelllAwareness without talking about #VoluntaryBloodDonation. Both go hand in hand. #Blood is something that sickle cell warriors like me depend heavily on. The bag I'm holding contains the amount of blood I have exchanged every 5 weeks. Please if you
#SickleCellAwarenessMonth D21
Sickle cell pain is debilitating
No objective signs tell us if someone is or is not sickling
I’ve heard too often, “10/10 pain but…(vital signs normal,labs stable,texting, etc)
That’s a hard stop - no buts.
Believe the pain. Treat the pain.
#SickleCellAwarenessMonth D27
I still hear the word sickler and it needs to stop
I don’t care if you’ve always used it or if you don’t mean it in a bad way.
It’s a slur, it’s dehumanizing and patients hate it. I hate it.
Don’t use it and correct those that do
A blood and bone marrow transplant is currently the only cure for sickle cell disease, but it is not for everyone. Many patients with #scd do not have a relative who is a close enough genetic match to be a donor. #sicklecellawarenss
Today I joined 2 nurses in the Nottingham Sickle Cell and Thalassaemia Service, Nurses Hannah and Rhea at the bake sale they organised to celebrate World Sickle Cell Day 2023. The proceeds of the sale will go towards a sickle cell charity of their choice but more importantly, it
Half of the people living with #SCD over age 50 have suffered permanent damage to at least one organ. Pain crises + complications tend to be more severe. Stress, vision loss, bone health, pain, and other chronic complications must be regularly assessed. #sciklecellawareness