haleysheroes

Haley’s Heroes Foundation wants to increase awareness and raise funds for research for Batten Disease, specifically CLN1.

[Taysha Gene Therapies @TayshaGTx]

The lifelong impact #rarediseases have on patients, families, caregivers & communities is significant, whether emotional, financial or social. Here are a few ways you can show your gratitude & support for someone in the #raredisease community this #BeAnAngelDay.

[haleysheroes @haleysheroes]

@Robin_Blue19 This is too bad. Im sorry for your boss. I think he answered correctly. Someone's medical information isnt anyone else's business. Measles and mumps arw highly contagious and dangerous! Has anyone called to ask that question. Our world is crazy right now

[haleysheroes @haleysheroes]

@MadisonLantis Come up to lake house ❤️❤️

[haleysheroes @haleysheroes]

Are you an eligible @Thrivent client with Choice Dollars® available to direct to support our organization? See how Thrivent makes generosity easy à https://t.co/Y5YsWMKzd4

[haleysheroes @haleysheroes]

#family #bingo night! Join us on January 28th. https://t.co/26gPCVISlQ

[haleysheroes @haleysheroes]

Today is #GivingTuesday Please #donate today! https://t.co/BdaeDXRXEI

[haleysheroes @haleysheroes]

Our #fundraiser is live on Facebook. https://t.co/jCKIV8ELCr Help us reach our goal of $20,000!

[haleysheroes @haleysheroes]

One week until #GivingTuesday! Support our cause. https://t.co/92lxkIViQN #Battendisease

[haleysheroes @haleysheroes]

Gearing up for #GivingTuesday2020! Support our cause.

[haleysheroes @haleysheroes]

Why we fundraise! https://t.co/92lxkIViQN #GivingTuesday #BattenDisease

[haleysheroes @haleysheroes]

Support our fundraising efforts to reach $20,000. https://t.co/92lxkIViQN #battendisease #GivingTuesday

[haleysheroes @haleysheroes]

Help us reach our goal of $20,000! https://t.co/92lxkIViQN

[haleysheroes @haleysheroes]

Join us in the fight to find a cure for Batten Disease. #battendisease https://t.co/pOPVLAjUbS

[haleysheroes @haleysheroes]

Help support Haley's Heroes Foundation on #GivingTuesday or donate now. https://t.co/92lxkIViQN

[Amy Proebstel @Amyproebstel]

Yet the disease still took things from me…mostly my eyesight and my energy.

But I refuse to give it my happiness.
Get The Rift in Our Reality and help fund research for @haleysheroes https://t.co/8Lxn0M4L55

#BattenDisease #Fiction #Books #Readers #YA

[haleysheroes @haleysheroes]

Today is National Battens Day! Help us spread awarness for our Batten warriors and find a cure
https://t.co/92lxkIViQN
LEARN MORE:
Batten Symptoms and Diagnosis:
https://t.co/iUED0tvwC6
Batten Family Resources:
https://t.co/YtSEnORDjr

[haleysheroes @haleysheroes]

Show your support for the rare disease community! #RunfortheRare2020 move your body tomorrow!!!!

[haleysheroes @haleysheroes]

Learn more about our story! Awareness is key to making a change with rare disease. https://t.co/vFkRlNVyXx

[haleysheroes @haleysheroes]

Batten disease stole her sight but not her spirit. Help us find a #cure by supporting #researchforraredisease #curebatten #runforrare2020

[haleysheroes @haleysheroes]

Join us on #rarediseaseday to #runfortherare2020 on Feb 29th. Run or walk any distance anywhere at anytime. Post your selfie at #runfortherare2020. Let show the world our support for the rare disease community.… https://t.co/aIxg94bKbn