HAPP-e: Health of Adult People born Preterm

We are inviting adults with a history of preterm birth to be part of an innovative way of doing research.
For inquiries, please contact: [email protected]

[HAPP-e: Health of Adult People born Preterm @happeispup]

The HAPP-e project is launched!

The RECAP-preterm team at @ISPUP is studying the health and quality of life of individuals born preterm around the world, using exclusively digital tools.

Find out more at https://t.co/sHmNNVGxGw

#Preterm #AdultsBornPreterm #Research

[HAPP-e: Health of Adult People born Preterm @happeispup]

Former preemies, the HAPP-e study gives you the voice! Join us on https://t.co/sHmNNVGxGw 💜

[HAPP-e: Health of Adult People born Preterm @happeispup]

@littlegeoff1 Thank YOU Geoff for being so inspiring! Congratulations on your achievements!

[HAPP-e: Health of Adult People born Preterm @happeispup]

Pour tous les francophones, un évènement à ne pas manquer !

[ISPUP @ISPUP]

November 17th | #WorldPrematurityDay 👶

Research is essential to look for solutions to improve the survival and quality of life of preterm babies. In 2020 #ISPUP continued the work developed within the @happeispup cohort, the first online cohort of premature adults worldwide.

[HAPP-e: Health of Adult People born Preterm @happeispup]

As researchers, we are truly grateful for your involvement in research studies and we are proud to work with such supportive partners!
HAPP-e #WorldPrematurityDay 💜
It's still time to participate in the HAPP-e study: https://t.co/sHmNNVGxGw

[HAPP-e: Health of Adult People born Preterm @happeispup]

💜 Today we are celebrating all the babies, children and adults #borntoosoon, and also all the wonderful families, medical teams and teachers who care for them.
HAPP-e #WorldPrematurityDay! 💜
To participate in the HAPP-e study: https://t.co/sHmNNVGxGw
@EFCNIwecare

[HAPP-e: Health of Adult People born Preterm @happeispup]

Thanks Geoff for this insightful summary!

[HAPP-e: Health of Adult People born Preterm @happeispup]

@EFCNIwecare Thank you @EFCNIwecare! What a nice #WPD20Chat!

[HAPP-e: Health of Adult People born Preterm @happeispup]

A10 We’ll keep investigating the long-term consequences of preterm birth.
All #adultsbornpreterm are warmly welcome to participate in the HAPP-e study: https://t.co/sHmNNVGxGw Spoiler: the follow-up evaluation is ready to be launched!
#WPD20Chat

[GFCNI @gfcni_newborn]

Question 10 #WPD20Chat #WorldPrematurityDay2020

[HAPP-e: Health of Adult People born Preterm @happeispup]

@EFCNIwecare A10 We’ll keep investigating the long-term consequences of preterm birth. All #adultsbornpreterm are warmly welcome to participate in the HAPP-e study: https://t.co/sHmNNVGxGw
#WPD20Chat

[HAPP-e: Health of Adult People born Preterm @happeispup]

@EFCNIwecare A9 Primordial prevention matters as well: providing and improving universal health care & social care, social security and workers’ rights, affordable quality housing, education. Access to data (linking social factors and health) is key. #WPD20Chat

[HAPP-e: Health of Adult People born Preterm @happeispup]

@n_thiele @EspR Effective and well-structured follow-up programmes provide a great opportunity for early detection of potential health and developmental issues. Multidisciplinary teams of professionals, teachers, parents etc are crucial to provide interventions and support to these children.

[HAPP-e: Health of Adult People born Preterm @happeispup]

@EFCNIwecare A8 Support midwives-led care during pregnancy. Provide and implement evidence-based guidelines and practices in #midwifery, #obstetrics and #neonatalogy. For that, we need to have good quality research and funds.
#WPD20Chat

[HAPP-e: Health of Adult People born Preterm @happeispup]

@EFCNIwecare A7 Equitable access to HC = early detection and management of pregnancy complications.
Hospitalisation: opportunity to talk about events that led to #pretermbirth, to make the parents feel less guilty, to support #breastfeeding and to look after mothers’ health.
#WPD20Chat

[HAPP-e: Health of Adult People born Preterm @happeispup]

@EFCNIwecare A6 Raise awareness of the potential specific needs of children born preterm at school and in everyday life. @SamJPsych #PremAware
#WPD20Chat

[HAPP-e: Health of Adult People born Preterm @happeispup]

@EFCNIwecare We need to establish effective networks and adequate anticipation to ensure that in utero transfers are done on time to avoid post-natal transfers and babies/parents separation, which adverse consequences are well known. #WPD20Chat

[HAPP-e: Health of Adult People born Preterm @happeispup]

@EFCNIwecare A3 Implement family-centered care in all NICUs, with adequate staff support and social and mental health support for parents. #WPD20Chat

[HAPP-e: Health of Adult People born Preterm @happeispup]

@premstem Indeed, research matters! The RECAP preterm project is also dedicated to improve to improving the health, development and quality of life of children and adults born preterm. How can you contribute? Join us on: https://t.co/sHmNNVGxGw

[HAPP-e: Health of Adult People born Preterm @happeispup]

@EFCNIwecare A2 More research on primordial and primary prevention of preterm births, including socio-economic determinants. Increase the implementation of evidence-based practices. #WPD20Chat

[HAPP-e: Health of Adult People born Preterm @happeispup]

A1 We need more research in collaboration with #adultsbornpreterm to improve knowledge about the consequences of preterm birth across the lifecourse. Birth history should be routinely included in health records. Preterm birth should be considered a chronic condition. #WPD20Chat

[GFCNI @gfcni_newborn]

Question 1 #WPD20Chat #pretermbirth #WorldPrematurityDay2020