Sue Hardy

[Sue Hardy @HardySue5]

@KarenLHargrave @ThereForME_UK Thank you @KarenLHargrave and @ThereForME_UK for your very helpful comments

[holdingonME @JoannaWo4]

ME/CFS is not rare. It’s ignored.
Every May, we raise our voices for the millions who can’t.
From 2020 to 2025, nothing has changed fast enough.
We’re still here. Still missing. Still fighting.
#MillionsMissing #MECFS #InvisibleIllness #MEAwarenessMonth
Repost it for awareness !!

[Megan Rogers @marogers11]

@MEFoggyDog @bbcquestiontime @RhonddaBryant

[ME Foggy Dog @MEFoggyDog]

reassessment UNLESS assessors learn about specific illnesses, such as M.E, and change how they assess the disabled person in front of them.

Who on earth told you no one will lose PIP?!

There is zero PIP fraud.

Let's talk @RhonddaBryant
#pwME #MEcfs

[ME Foggy Dog @MEFoggyDog]

Watching @bbcquestiontime on iPlayer.

@RhonddaBryant - I'm sorry but you are wrong.

100s of 1000s if not millions of people currently on PIP do not get 4pts in any daily living category but meet the overall total (12 I think 🤔).

They WILL lose PIP at their next
1/

[Sue Hardy @HardySue5]

Action for ME are supporting Scope
Cuts to disability benefits would be catastrophic. Join @scope and add your name to show the Government we will not tolerate further cuts. Save our lifeline 📢 https://t.co/u8LvrRaFDn

[Darren Parkinson 🌍💚🤘 @DarrenBar88]

In February I shared this story about how I'm adapting to a smaller life with #LongCovid.

I lost my job, resigned as a councillor and am stuck at home, unable to go out with my kids, family or friends.

On #LongCovidAwarenessDay please share to show the impact of this disease 🙏

[Lizzy H @hopefullizzy]

Please share this far and wide, it’s so important x

[John Simpson @JohnSimpsonNews]

No one seemed to object when Churchill turned up at the White House in his war-fighting gear.

[Physios For ME @PhysiosForME]

People with ME are calling on the government to invest in their future and reverse generations of neglect. As Physios for ME, we are standing with them, to say- “please, fund the plan.”

[Physios For ME @PhysiosForME]

The government is due to publish a new delivery plan for ME, and we’ve been involved with the process. But now we’ve heard that no additional funding has been allocated to the plan. Just £20 million a year behind the plan would make an enormous difference

[Physios For ME @PhysiosForME]

ME desperately needs more research, better education for health professionals and services that provide evidence based care. But this can’t happen without funding, and historically this condition has been significantly underfunded

[Physios For ME @PhysiosForME]

We consistently hear about negative experiences of physiotherapy that result in some people with ME actually getting worse. This is because of a lack of understanding of the condition and poor training of how to work safely with people with ME.

[Physios For ME @PhysiosForME]

Dear @wesstreeting, @AshleyDalton_MP

We are Physios for ME and we urge you to #FundThePlan

@ThereForME_UK

[Sue Hardy @HardySue5]

@drclairetaylor Would definitely recommend the through floor lift, can put them in to REPLACE stairs if no other option exists, then everyone uses the lift.

[Movers & Shakers: a podcast about Parkinson's @moversand6]

Congratulations to our very own @ruskin147 for his official OBE appointment.

And thank you for his continued work to raise awareness for the Parkinson’s community.

We recommend reading this brilliant article featured in the @Independent on Rory’s recent achievements.

[DecodeME the ME/CFS Study @DecodeMEstudy]

TW: Severe ME
“People’s lives have been blighted by this disease... they cannot get the care that they deserve & that they need.” - Prof Ponting, DecodeME Investigator.
To hear from those whose family has been most affected by severe ME, watch below ⬇️
https://t.co/xqRXPAkR4F

[Action for ME @actionforme]

The government has called for patients, organisations, and NHS staff to share their ideas to make the NHS fit for the future.
We’ll be responding to this request organisationally and will be sharing our submission online. You can take part too- https://t.co/GVDMOirDfT