Cynthia Johnson

Storyteller. Advocate. Stand By ME/CFS!

#StandByMEcfs #StillSickStillFighting #MEcfs since 2009

[Cynthia Johnson @MineToDo]

As you are able, please give to this new Friends of Cynthia Johnson Fall 2026 GoFundMe. Timely help is greatly needed. Thank you for your kindness!💛 https://t.co/nF8drjhKvk
#StandByMEcfs #StillSickStillFighting #pwME #MEcfs

[stuart murdoch @nee_massey]

I wanted to film the sunset for any ME/CFS people, long covid people, fibro people, or anyone with an illness that keeps them inside or in bed. It’s there waiting for you, I hope, I pray you feel better soon.

[#MEAction Network @MEActNet]

We are sharing a fundraiser for a member of our community in need of timely help with medical, health care and disability related expenses as well as critical basic monthly living costs. Cynthia is a long-time member of our community.

Our policy: https://t.co/LWNCwRvyur

[Cynthia Johnson @MineToDo]

As you are able, please give to this new Friends of Cynthia Johnson Fall 2026 GoFundMe. Timely help is greatly needed. Thank you for your kindness!💛 https://t.co/nF8drjhKvk
#StandByMEcfs #StillSickStillFighting #pwME #MEcfs

[TWFFofficial @TWFFofficial]

In honour of Cynthia Lennon's birthday, we're pleased to announce that @MalalaFund is the recipient of the Cynthia Lennon Scholarship for Girls.

The funds will benefit 10 students who attend Shangla Girls School in Pakistan. Read more on our website:

https://t.co/u7VECKy3NJ

[#MEAction Network @MEActNet]

Content note: suicide loss
.
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We hold those we have lost in our hearts always. We must mourn together.

Join us in lighting a candle to show your support for suicide prevention, to remember a loved one and for the survivors of suicide.

Resources: https://t.co/ZMn1mvOnYZ
#WSPD

[Bateman Horne Center @BatemanHorne]

Five organizations. One conversation.

Join the #UnitedForME collaborative on Tues, Aug. 12 at 10 a.m. MDT for a special "Coffee" with a Clinician recognizing #SevereMEAwareness Month.

Register here: https://t.co/Sl31siln5A

@OpenMedF @PlzSolveCFS @MEActNet

[#MEAction Network @MEActNet]

In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2026! Over 100 of you submitted photos, drawings, writing, and videos of your work! We are thrilled to share so many amazing and powerful pieces of artwork.
https://t.co/B6w4pMvG7K
#SevereME

[Open Medicine Foundation @OpenMedF]

Today, on Severe ME/CFS Day, we hold space for the people this disease has pushed furthest from view. An estimated 1 in 4 people with ME/CFS is housebound or bedbound.

[Solve ME/CFS Initiative @PlzSolveCFS]

Join Solve's Emily Taylor & reps from @BatemanHorne @MEActNet @OpenMedF & the WIMEL Writers for "Coffee" with a Clinician in recognition of #SevereMEAwareness Month.
Wed. Aug. 12  |  @ 9:00 am PT / 12 pm ET.

Register: https://t.co/PVdW15BTYp

#UnitedForME #SevereMEDay

[World ME Alliance @WorldMEAlliance]

When ME/CFS patients are denied the care they deserve, the consequences are significant:

=> delayed diagnoses
=> harmful or inappropriate treatments
=> repeated experiences of stigma and disbelief
=> patients not warned of the risks of Post-Exertional Malaise (PEM)

#EducateME

[stuart murdoch @nee_massey]

Here’s me, deep in the depths of the Orpheum, hard at work 😉

[#MEAction Scotland @meactionscot]

At #MEAction Scotland, we want to make sure that our work reflects the needs and experiences of the whole ME community across Scotland.
Our campaigning work is run by a small core team of volunteers who meet weekly.

[Open Medicine Foundation @OpenMedF]

Linda Tannenbaum, Founder and CEO of OMF, will deliver the inaugural lecture of Faculty of Medicine of the University of Lisbon’s new Open Lectures series on May 25.

[Bateman Horne Center @BatemanHorne]

May is ME/CFS Awareness Month 💙

Alongside @OpenMedF, @MEActNet, & @PlzSolveCFS, we’re promoting education & understanding.

Join us: use #UnitedForME on ME-related posts this month.

#MECFSAwareness #MECFSAwarenessMonth

[Bateman Horne Center @BatemanHorne]

"Coffee" with a Clinician is LIVE
https://t.co/ZmoGqPCqxX

[#MEAction Network @MEActNet]

May is #MECFSAwareness Month and as national nonprofits in the US we are dedicated to promoting education & understanding of this devastating disease. Whether you're an individual or org, feel free to join us in adding the tag #UnitedForMe to all your ME-related posts this month.

[Solve ME/CFS Initiative @PlzSolveCFS]

#MECFS is a disabling condition impacting at least 67 million, but medical education is lacking & patients are denied the care they deserve. Ask healthcare professionals to read our 1-page doc on how our Medical Education Hub can help. https://t.co/2P7B4UIR0k
#EducateME

[Solve ME/CFS Initiative @PlzSolveCFS]

Solve’s latest Catalyst Award-winning projects will expand whole-genome discovery and test a promising low-cost therapy targeting inflammation and energy dysfunction—key steps toward biomarkers & clinical trials.

Learn more:
https://t.co/SwiNauinBs

#WorldMEDay

[Open Medicine Foundation @OpenMedF]

May 12 marks International ME/CFS Awareness Day. This year we asked our community to share the questions they live with because of #MECFS. Here are some of their responses.

Visit https://t.co/W6qT9JcgzG to join us in raising awareness.

#MECFSis #MECFSAwareness