Top Tweets for #1BirthDefect
Siblings and Congenital Heart Disease - An important perspective and we see you. #CHD #1birthdefect #Siblings @LurieHeartCtr @AnnaJaworski @MayoClinicHLHS @childrenswi https://t.co/5kOPtLqM18
Such an honor @jenniferfogel4 to be nominated and participate in an amazing award for the #1birthdefect in #Chicago. #FeedingTherapy #SPCN @LurieHeartCtr @ChicagoFetal @American_Heart @FontanOutcomes @NPCQIC @ACTION4HF @ACHA_Heart @NAPNAP
We're pleased to announce that Jennifer Fogel from @AdvocateKids, and Michelle Steltzer from @LurieChildrens, have been selected as the recipients of the 2023 Congenital Heart Defect Champion Awards! The awards will be presented at our Red Tie Ball, taking place December 8, 2023.
Thank you @TheCHF, @LurieChildrens, super heroes, and all those faced with #CHD who dedicated time to raise funds and walked ๐ฃ for a cure!โค๏ธ๐ซถโค๏ธ #1birthdefect #All4Your1 @American_Heart
@TracyLivecchi @DrLizaMorton The value yield in the reading for me is 50 plus years of family and professional experience that has historically been untold in the #1birthdefect #CHD. โค๏ธ๐ซถโค๏ธ @ACHA_Heart @AmerAcadPeds @American_Heart @ACCinTouch @NPCQIC @FontanOutcomes @DonateLife
Feb 21, 2023: #Siblings and #Spouses during #HeartMonth.
To all the siblings and spouses, I see you. #1BirthDefect #CHD #NoCure #HeartStrong #MentalHealth #Resilience #StrongerTogether @ACHA_Heart @American_Heart @FontanOutcomes @RoadMapProject @conqueringchd @MendedHearts
Thank you @haydensheartinc @AAPAorg @Nemours and all those lost too soon wherever you reside for identifying this important transaction need. #CHD #1birthdefect #Bereavement #Careteam #Family
Have you lost a loved one to CHD? Read more about how we all can better support the transition to the bereaved community after loss here: https://t.co/QcVqt8L4nV
This is a huge issue for all #CHD patients and families. Spread the word this #HeartMonth: Patients deserve access to lifelong uninterrupted quality health care. @ACHA_Heart @American_Heart @ab_peds #1birthdefect #Care4Life #CHDAwarenessWeek
Did you know About 95% of babies born with a non-critical CHD are expected to survive to 18 years of age? This means the population of people with CHDs is growing!
For more info on CHDs, you can visit this page from the CDC: https://t.co/YP8QmG2A2H
#CHD #CHDAwarenessWeek
It's #SuperbowlSunday 2023! #CCHA will be highlighting #NFLplayers a part of the #CHD community - the #1birthdefect that every #1in100 people have. Click the link in our bio to learn more!
#SuperBowl2023
#SuperbowlLIV #SBLIV #SuperBowlHalfTimeShow
#CCHAweraiseourhandsforCHD
GROWING UP with #CHD is a thing that warrants attention.โค๏ธ#1BirthDefect @conqueringchd @MLH_CHD @ACCinTouch @ACHA_Heart @aap_peds @UNOSNews
Huge shout out ๐โค๏ธ๐ to a fierce physician advocate & compassionate friend honored tonight at the #RedTieBall, Dr Kiona Yazi Allen @allen_kiona!!! โค๏ธ๐คโค๏ธ #1BirthDefect #SingleVentricle #All4Your1 @TheCHF @LurieChildrens @LurieHeartCtr @ChicagoFetal
One more sleep, and soooo excited to celebrate two amazing rockstar women & raise money for the underfunded #1birthdefect, #CHD at @DrakeChicago. #RedTieBall @TheCHF https://t.co/Nld1YrnmJj
Thank you @jp_taylor0120 and @conqueringchd for providing incredible โค๏ธ #Sibling and #childlife supportive suggestions for #families coping with acute and chronic #CHDCare #1birthdefect. โค๏ธ๐ค๐ฅฐ๐ @care4life @AHAlivehealthy
It may be difficult to balance the needs of your child with CHD and those of your heart healthy child. In this post, Nicole Johnson, a Child Life Specialist at Inova Children's Hospital, offers tips on how to stay connected with your children at home. https://t.co/tmCYKUfvK1
Incredibly proud of this #Path2 @NPCQIC project, a #LaborofLove. โค๏ธ Partnering @allen_kiona, @amsnyder29, @maggiemayrimnac @LurieChildrens helps rid the lives of feeding burdens and in the face of #CHD. #1birthdefect #SingleVentricle
Sharing this important statement about #CHD and care transitions.
Nursing leader Dr Karen Uzark @MottChildren understands transitions in individuals faced with #CHD. #NoCure #Nursing #1BirthDefect #Transition #Care4Life #StayinCare #ACHD https://t.co/Ehi9LkKpd8
Timely share during #HeartMonth and completion of #CHDAwarenessWeek.โค Hopeful this will help shift scientists to a timely understanding of the complex unknowns in #CHD genetic diagnosis and positively impact patient care outcomes for the #1birthdefect.
Gladstone researchers develop robust strategy for sifting through large-scale genetic data to better understand congenital heart problems
@barbaraglezt
@moepittman
@CellCellPress
@UCSF
@nih_nhlbi #NIHfunded
@American_Heart
https://t.co/riTTeBAaso
Important topic indeed in an #underfunded โคdisease touching #1in100! The message about #CHD, THE #1birthdefect needs to be heard. Patients, families, and scientists deserve funding to improve outcomes. @AHAScience @ACCinTouch @AmerAcadPeds @ACHA_Heart
Great new content for mothers about the value of #Breastfeeding.
Gentle reminder that #CongenitalHeartDisease #1birthdefect can interrupt breastfeeding but is possible. A mother's breastmilk is priceless & valued resource. Success is a team effort.โค
We conclude National Breastfeeding Awareness Month with more illustrations from the breastfeeding video that is the newest part of the Pediatric Clerkship playlist. You can view the entire playlist here: https://t.co/NPzmISGDYJ #BreastfeedingAwarenessMonth #MedEd
I pray the future will include never looking into the eyes of fear stricken and crying parents in shock coping with postnatal diagnosis of #SingleVentricle #CHD or #CHD. #All4Your1 #1birthdefect @conqueringchd @MLH_CHD @NPCQIC @FontanOutcomes @FetalHeartSoc
Thank you staffer Jessica @TammyforIL for meeting with us today. Letโs continue to fund research for the #1birthdefect Congenital Heart Disease ๐ซ @conqueringchd
After the break: ๐๐จ๐ฏ๐ข๐ง๐ ๐๐ซ๐จ๐ฆ ๐๐ซ๐จ๐ญ๐จ๐๐จ๐ฅ ๐ญ๐จ ๐๐๐ซ๐ฌ๐จ๐ง: ๐๐๐๐ซ๐๐ฌ๐ฌ๐ข๐ง๐ ๐๐ฎ๐ฅ๐ญ๐ฎ๐ซ๐๐ฅ ๐๐ข๐๐๐๐ซ๐๐ง๐๐๐ฌ, led by Wendy Nembhard, PhD #CHDAdvocacy
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