Top Tweets for #28DaysofRare
#28DaysOfRare
#RareDisease Info
This condition is very dear to @mthim_khulu's heart.
Fraser syndrome is rare, but we have several families with this condition, diagnosed through our Undiagnosed Disease Programme.
Read all about it π
@SuMBHG
#28DaysOfRare
#RareDiseases
Today, we focus on #OsteogenesisImperfecta or brittle bone disease.
Many of the patients in our clinics have #OI - maybe you know someone with #OI?
Brittle Bones South Africa partners with us on many projects! Shout-out to Rageema and Ishrat!
@SuMBHG
#28DaysOfRare
And, we're off! #RareDisease Awareness month has officially started!
#WatchThisSpace for all our activities throughout the month - and for our celebrations on 29.02 #RareDiseaseDay
Follow us on instagram @raredgsa for updates
@SUhealthsci @SuMBHG @shahida_moosa
Today is #RareDiseaseDay! #HearingLoss may be common but each gene involved in diagnoses is individually rare. This is true for #Otoferlin, for which mutations are more common in some parts of the world, but rare in others. #28DaysofRare
#28DaysOfRare
...and so our campaign comes to an end. Thank you for your support for #RareDiseases in #SouthAfrica over the last month.
Join us again next year!
Happy #RareDiseaseDay2023
#WeAreRare
@SuMBHG @SUhealthsci
#28DaysOfRare
Happy #RareDiseaseDay2023!
We thank you for spending the last #28DaysofRare with us! We hope that it gave you more insight into the #BehindtheScenes of our #RareWarriors &our group!! #Awareness
See you next year and always remember #WeAreRare!
@SuMBHG @SUhealthsci
#28DaysOfRare
Happy #RareDiseaseDay2023!
We thank you for spending the last #28DaysofRare with us! We hope that it gave you more insight into the #BehindtheScenes of our #RareWarriors &our group!! #Awareness
See you next year and always remember #WeAreRare!
@SuMBHG @SUhealthsci
#28DaysOfRare
Awesome pictures, she is such a sweetie.
"Patient and loving" certainly describes this #RareMom!
#28DaysOfRare
Matseko is our final #RareWarrior for the month! Her mom says that any new parent should be patient and loving!
#FunFact about her is she is an incredible dancer& LOVES peanut butter bread.
#RareDiseaseMonth #WeAreRare
@SuMBHG @SUhealthsci
#28DaysOfRare
Matseko is our final #RareWarrior for the month! Her mom says that any new parent should be patient and loving!
#FunFact about her is she is an incredible dancer& LOVES peanut butter bread.
#RareDiseaseMonth #WeAreRare
@SuMBHG @SUhealthsci
#28DaysOfRare
#RareWarrior Aaliyah's mom shares: "My journey thus far has been amazing, a few ups&downs getting to know my big girl. She has grown so much, learning new things every day. Thank you guys for everything you do for our children".
@SuMBHG @SUhealthsci
#28DaysOfRare
#RareWarrior Aaliyah's mom shares: "My journey thus far has been amazing, a few ups&downs getting to know my big girl. She has grown so much, learning new things every day. Thank you guys for everything you do for our children".
@SuMBHG @SUhealthsci
#28DaysOfRare
Another amazing #RareMom to an amazing #RareWarrior. His first few months were very stormy, but his mom got him through and now just look at him! π€©
#28DaysOfRare
#RareWarrior Thaakir's mom had to raise her child on her own which taught her to always put her baby first and to always be calm!
#FunFact: he enjoys noodles and curry as well as sunny weather!!
#RareDiseaseMonth #WeAreRare #RareDiseases
@SuMBHG @SUhealthsci
#28DaysOfRare
#RareWarrior Thaakir's mom had to raise her child on her own which taught her to always put her baby first and to always be calm!
#FunFact: he enjoys noodles and curry as well as sunny weather!!
#RareDiseaseMonth #WeAreRare #RareDiseases
@SuMBHG @SUhealthsci
#28DaysOfRare
We are kindred spirits, pizza lovers. She has 2 older brothers who love her dearly and know she is the boss! π€£
#28DaysOfRare
Meet #RareWarrior Dezahn! Her mom is so happy to see her reaching new milestones!
#FunFact about her is that she absolutely LOVES pizza! #RareDiseaseMonth #WeAreRare #RareDiseases
#28DaysOfRare
Meet #RareWarrior Dezahn! Her mom is so happy to see her reaching new milestones!
#FunFact about her is that she absolutely LOVES pizza! #RareDiseaseMonth #WeAreRare #RareDiseases
#28DaysOfRare
Every doctor says this, but I *really* have the sweetest patients - bringing joy wherever he goes!
Thanks to his contributing to our #Undiagnosed Disease Program,we can now test cheaply and easily for this condition in South Africa - #access to #diagnosis made easy!
#28DaysOfRare
#RareWarrior Imolathile is always happy and knows how to put on a great smile that lights up the room! He is one of only a handful of patients with his diagnosis!
#RareDiseaseMonth #WeAreRare #RareDiseases
@SuMBHG @SUhealthsci
#28DaysOfRare
#RareWarrior Imolathile is always happy and knows how to put on a great smile that lights up the room! He is one of only a handful of patients with his diagnosis!
#RareDiseaseMonth #WeAreRare #RareDiseases
@SuMBHG @SUhealthsci
#28DaysOfRare
Such a sweetie! He is quite a singer also. Long road to a #Diagnosis, but what a life-changing event! He is doing so well!
#28DaysOfRare
#RareWarrior Azingce's mom loves seeing her son grow up strong and healthy!
#FunFact about Azingce is that he loves windy weather and listening to music!
#RareDiseaseMonth #WeAreRare #RareDiseases
@SuMBHG @SUhealthsci
#28DaysOfRare
#RareWarrior Azingce's mom loves seeing her son grow up strong and healthy!
#FunFact about Azingce is that he loves windy weather and listening to music!
#RareDiseaseMonth #WeAreRare #RareDiseases
@SuMBHG @SUhealthsci
#28DaysOfRare
Ano's mom is a #RareMom with such determination- she never gives up! I am inspired every day.
Look at Ano thrive in her new home!
#28DaysOfRare
By now, everyone knows #RareWarrior Ano! Last year she and her mom finally got their forever home.
#FunFact Ano loves dancing, and she took her first steps at 4 years old!
Thanks to Newton Stanford for the pics #RareDiseaseMonth #WeAreRare
@SuMBHG @SUhealthsci
#28DaysOfRare
By now, everyone knows #RareWarrior Ano! Last year she and her mom finally got their forever home.
#FunFact Ano loves dancing, and she took her first steps at 4 years old!
Thanks to Newton Stanford for the pics #RareDiseaseMonth #WeAreRare
@SuMBHG @SUhealthsci
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