Top Tweets for #ABCsofPPGL
What is paraganglioma? Learn more during @PheoPara 5th Annual Awareness week. #PheoParaPhearless #ABCsofPPGL #PheoPara2024 https://t.co/LWVLJwtRCK
Sometimes #pheo #para disease makes itself obvious & sometimes it's sneaky! Make sure your health care provider(s) know the correct tests for diagnosing these tumors. Appreciate this graphic @TheAAES!
#ABCsofPPGL #pheoparaphearless
Tests for Diagnosis:
Blood and urine metanephrines (catecholamines)
Imaging such as a CT scan.
@PheoPara #ABCsofPPGL #pheoparaphorever #pheoparaphearless #Pheo
It's Self-Care Saturday . . .
Treat yourself to a quiet day reviewing some of our Patient Conference videos. Empowering yourself with knowledge is a ⚡️SUPER⚡️🦸way to take care of yourself!
Register or login to view recordings: https://t.co/LguMoeMY3C
#pheo #para #ABCsofPPGL
It was a SUPER week thanks to a bunch of #pheo #para ⚡️SUPERHEREOES⚡️🦸 who both participated in & helped plan our 3rd Annual Awareness Week & the concurrent Patient Conference.
✅out these highlights!📽️
#pheoparaphorever #pheoparaphearless #ABCsofPPGL #COEsofPPGL
In case you missed it, check out the Pheo Para Awareness Week recorded webinar with our expert panel!
@PheoPara
#ABCsofPPGL #pheoparaphorever #pheoparaphearless #Pheo #Para
Pheos are often associated with genetic syndromes. If diagnosed with a Pheo, genetic counseling should be considered.
#ABCsofPPGL #pheoparaphorever
#pheoparaphearless #Pheo #paralyzed
@PheoPara
In case you missed this earlier . . .
Appreciate the great minds digging into the challenges of #pheo #para!
#ABCsofPPGL
#DrChristieTurin #DrMollyCrenshaw @LMFendo @EndoOncology @CUEndocrinology
Really great work & dedication to a rare disease that deserves attention, #DrChristieTurin #DrMollyCrenshaw & @LMFendo! Thx for sharing this important paper about the need for genetic testing.
🧬🦓❤️🙌
➡️https://t.co/QZXMT78liJ
@EndoOncology @CUEndocrinology
Symptoms, or “spells”, can occur during states of bodily stress. Such as:
Strenuous physical activity
Physical injury
Childbirth
Undergoing surgery
#ABCsofPPGL #pheoparaphorever #pheoparaphearless #Pheo #paralyzed
@PheoPara
Pheos secrete catecholamines which cause “spells” of high BP, headache, heart racing, sweating, and/or anxiety. Spells can last 5 – 20 min. #ABCsofPPGL
#pheoparaphorever #pheoparaphearless #Pheo #paralyzed @PheoPara
There may be more #pheo #para SUPERHEREOS out there than we know. Assuring those with suspicious symptoms are properly tested is crucial to diagnosing this disease.
#ABCsofPPGL
If you have any of these symptoms (headaches, anxiety, high BP, sweating) that cannot otherwise be explained, use your knowledge of #pheo #para SUPERPOWERS & ask for a✅of your metanephrines through a blood and/or urine test!
#ABCsofPPGL #pheoparaphearless
Tests for Diagnosis:
Blood and urine metanephrines (catecholamines)
Imaging such as a CT scan.
@PheoPara #ABCsofPPGL #pheoparaphorever #pheoparaphearless #Pheo
@CarcinoidNETs-- we appreciate the promotion of our #pheo #para Patient Conference.
These SUPER ⚡️🦸⚡️experts will build your followers' knowledge base to help them live with this disease. #ABCsofPPGL
Still time to register➡️https://t.co/31FeX3IspH
And there are 2 days to go in the virtual conference - August 24 and 25! Register now to learn more about #pheochromocytoma and #paraganglioma. #NeuroendocrineTumors #YouAreNotAlone
Thanks for sharing this @SGreenbergGC. What a great question to pose to those who encounter #pheo #para!
#GeneChat #ABCsofPPGL #pheoparaphorever #pheoparaphearless
Thanks @TheAAES for sharing this beautiful graphic of the adrenal gland with pheochromocytoma. A picture truly is worth "a thousand words."
#ABCsofPPGL #pheoparaphorever #pheoparaphearless #pheo #para
Pheochromocytoma is a rare tumor of the medulla, the center of the adrenal gland, which sits on top of the kidney. We call it #Pheo for short. https://t.co/uhCgJdB5O3
#ABCsofPPGL #pheoparaphorever #pheoparaphearless
@PheoPara
Pheochromocytoma is derived from the Greek words:
Pheo = dusky
Chromo = color
Cytoma = tumor
#ABCsofPPGL #pheoparaphorever #pheoparaphearless #Pheo @PheoPara
Pheochromocytoma is a rare tumor of the medulla, the center of the adrenal gland, which sits on top of the kidney. We call it #Pheo for short. https://t.co/uhCgJdB5O3
#ABCsofPPGL #pheoparaphorever #pheoparaphearless
@PheoPara
Thx @LMFendo for these facts! Your experience with #pheo #para is so valuable. Grateful for your efforts to raise awareness about this disease! 🙌❤️🦓 #ABCsofPPGL
Do you have superpower knowledge or is #pheo #para your kryptonite? Take our Health Care Provider quiz to find out. #ABCsofPPGL
https://t.co/vq2E1aLORJ
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