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π° In our Summer 2022 issue of #AFTDNews, you'll find info about the first annual #HollowaySummit, an announcement about #CEUs for #AFTDwebinars π» , an update on our 2022 #AFTDConference, intros to our most recent #AFTDPilotGrant recipients π¬ and more: https://t.co/J8WXJwB5gq
β More than 1,000 people affected by #FTD, the most common #DementiaUnder60, came together to #ConnectLearnEngage at the first hybrid #AFTDConference on 4/8. β Did you miss the conference? Want to share a helpful session? Recordings are now online: https://t.co/f5AbVuxrBC
ππ» AFTD extends our sincerest thanks to everyone in our community who came together to make yesterday's #AFTDConference possible. From sponsors to volunteers, vendors to presenters, and all of our attendees, we could not have pulled off this vital event without you! THANK YOU!
AFTD founder Helen-Ann Comstock, CEO Susan Dickinson & Board Chair David Pfeifer closed out the #AFTDConference discussing "AFTD's 20th Anniversary: Where We Started, Where We Are & Where We're Going." Explore AFTD's rich history & promising future here: https://t.co/9TT8fNhFDt
What an honor it was to have #AFTDfounder Helen-Ann Comstock on stage with us at the #AFTDConference, as we approach AFTD's 20th Anniversary, to discuss "Where We Started, Where We Are & Where We're Going." Read our recent spotlight on Helen-Ann here: https://t.co/2cDR5nvqZM
During our #AFTDConference "Open Discussion for #FTDCarePartners, #FTDspouse Frank Rzomp shared: "We have a tendency to stand with our back against the waves, fighting against the ocean. Instead, ride the wave. Meet your loved one where they are that day & flow with the journey."
#AFTDBoardMember & Director of #Caregiving w/ @AARPPolicy @rchoula delivered a moving keynote address, "A Call for Bold Empowerment" at today's #AFTDConference, our first in-person conference since 2019. Learn more about Rita & her family's #FTDjourney: https://t.co/JQrMGUnYoE
Our #AFTDConference session asked, "#FTDTreatment Development: How Can You Help?" One answer is by participating in #FTDResearch to bring hope for a #FutureFreeOfFTD. Consider joining the @EndFTDregistry & find out more about our current featured studies: https://t.co/c0gvkDMsQF
AFTD Senior Director of Scientific Initiatives Penny Dacks and #neuropsychiatrist & @JohnsHopkins Associate Professor of #Psychiatry @conyike discussed "#FTDTreatment Development: How Can You Help?" at the #AFTDConference. Learn how to participate: https://t.co/oNKVjOxMuc
#PersonsDiagnosedAdvisoryCouncil member @jennlauranlee & her #FTDcarepartner/spouse Chris shared their perspective as an #FTDfamily in our #AFTDConference session "What Do Families Need Most After an #FTDDiagnosis?" Learn about navigating a new diagnosis: https://t.co/7uURcig0vl
"What Do Families Most Need After an #FTDDiagnosis?" @KatieBrandt6, Director of #Caregiver Support Services & her colleague Rose Gallagher, RN from the @FTDunitBoston at @MassGeneralNews sought to answer that question for healthcare providers at the #AFTDConference.
Senior Program Associate Darya Rahbar, MS from @theUSAging talked about "Building FTD-Friendly Communities" at today's #AFTDConference, providing an overview of the @dfamerica_ movement and their efforts to foster quality of life for people #LivingWithDementia and #FTDfamilies.
AFTD Director of Research Engagement Shana Dodge, PhD, moderated our #AFTDConference session, "Participating in #FTDResearch, Advancing #FTDScience." To learn more and get involved, check out the Featured Studies section on AFTD's website: https://t.co/c0gvkDMsQF #FutureFreeOfFTD
"Participating in #FTDResearch, Advancing #FTDScience" at the #AFTDConference features two major FTD research programs. Dianna Wheaton is Director of the @EndFTDregistry. @allftd is a comprehensive network targeting most varieties of frontotemporal lobar degeneration (#FTLD).
Thanks to AFTD Director of Research & Grants Debra Niehoff, PhD for moderating our #AFTDConference session about #biomarkers in #FTDresearch. The @FNIH Biomarkers Consortium recently launched a new project designed for early detection of hereditary #FTD: https://t.co/uzLOTYWbxo
Tania Gendron, PhD, assistant professor of #neuroscience at @MayoClinic in FL, was a co-presenter for the #AFTDConference plenary session "#Biomarkers: The Next Frontier of #FTDresearch." She leads research aimed at identifying #FTDbiomarkers to expedite effective #FTDtreatments.
AFTD Support & Education Director Esther Kane spoke with @LayniedratchC, a #geneticcounselor at @Penn specializing in #FTDdisorders, during an #AFTDConference presentation about "Navigating the Uncertainty of #FamilialFTD." Learn more about #FTDgenetics: https://t.co/a7iKlgn3nY
#Neuropalliativecare is an emerging subspecialty that shows promise in supporting those #LivingWithFTD & their families. @NeuroHomecareMD explains this type of care in her #AFTDConference session. Learn more about The Role of Neuropalliative Care in #FTD: https://t.co/M7ghb08zqN
Be sure to visit @WaveLifeSci and each of our generous #AFTDConference sponsors in their virtual booths via the AFTD Education Conference app, to share your lived #FTD experience and learn more about their current research focus and care offerings.
We're honored to be sponsoring @AFTDHope's #AFTDConference and to have the opportunity to listen and learn from the #FTDcommunity. For those joining remotely, please stop by our virtual booth and say hello! #EndFTD
We're honored to be sponsoring @AFTDHope's #AFTDConference and to have the opportunity to listen and learn from the #FTDcommunity. For those joining remotely, please stop by our virtual booth and say hello! #EndFTD
Our 2022 #AFTDConference is fast approaching. This day-long, hybrid event on 4/8 will bring the #FTDcommunity together to connect, learn & engage. We're grateful to our supporters & today we acknowledge the generosity of our Bronze-level sponsors @WaveLifeSci & @AlectorTx.
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