Top Tweets for #ALSHope
Coya's @FamilialALS took part in the @End_The_Legacy ALS & FTD Community Summit this past weekend. We're excited and inspired about the future of treatment for these conditions!
#CoyaTherapeutics #EndALS #EndFTD #ALSHope
Pro tip: what is annoying and unhelpful when fighting for #ALSHOPE: so called "advocates" who constantly ask rhetorical questions designed to stir the pot, and use #ALS as their morning coffee parlor game. #ALS is deadly serious- valuable lives are at stake and neurons are dying as I type this. Real advocates, keep pushing! #ignore_the_agendas
A great leader is gifted with mental fortitude & grace; add
a sharp intelligent mind & a compassionate heart = @RepAnnaEshoo πΊπΈ
In the dark world of #ALS she is a bright fiery torch who brought Vision,Warmth & #ALSHope back into our lives.
#EndALS #ALSChange
@AislingMcDL
IN 2 WKS: Are you Reg'd for our 5th Annual ALS Research Symposium? For the incredible line-up of speakers & topics, view full agenda & reg@: https://t.co/j3fKDJtVX0 Reg is FREE but req'd #ALS #ALSresearch #ALSindustry #ALSCommunity #Neurotechnology #ALSconference #ALSHope #EndALS
No. Approving NEW THERAPIES (before "2030") that exist now, are 100% safe, and can slow (or halt) ALS in SOME patients is the "key to #ALS". I would further submit that hiring people who are excited about this is "key #1" to #ENDALS #DYINGWAITING #ALSHOPE #NUROWNWORKS #AMX0035
@derekgunz @stevens_nation Easy. First pALS STOP supporting any large "gatekeeping" #ALS organization that is quietly working against ALL new #ALS drugs (like #NurOwnworks) for the last few years. Second, all pALS must STOP allowing ourselves to be treated this way. #ALSHOPE truly starts and ends with us.
Seeing my kids before school so full of life makes me so happy. I pray I ll be here to see them grow up. #alshope
@AmylyxPharma Yippee, a few more months! Still, PATIENTS support #AMX0035. So why can't the "experts" support #NurOwn, with its MUCH larger potential impact for #ALSHOPE? That's what unbiased, team problem solving looks like for a fatal disease. It's what Cancer, HIV, and others did. NOT #ALS!
Robert Califf was questioned on real weal world evidence,one of his longtime pet projects. He said the FDA needs to get systems in place to produce real world data more quickly, give people the confidence to share data, & βget those rules right.β #ALSHope #NurOwn @BrainstormCell
Tomorrow, @POTUS likely makes #AACTFORALS law, an incredible #ALS victory! Next, #ALSACTIONISM reboots as #pALS refocus on making their dream of safe and proven #ALSTREATMENTS in bodies happen...and fast! There is no reason to delay treating #ALS_NOW when #NUROWNWORKS! #ALSHOPE
Thurs 12/9 5pmEST: The #HEALEYALSPLATFORMTRIAL weekly update continues with Hosts @MeritCudkowicz & @PaganoniMDPhD of @MGHNeurology welcoming special guest, Nicholas Olney MD from Prov Health in Oregon. #FreeReg at https://t.co/tUAcOwblwG.
#ALS #ALSHope #HealyHope #EndALS #Unity
Tonight, 12/2 5pmEST: The #HEALEYALSPLATFORMTRIAL weekly update. Hosts @MeritCudkowicz & @PaganoniMDPhD of @MGHNeurology welcome special guest Neil Thakur, PhD, Chief Mission Officer at @alsassociation. Reg (free): https://t.co/tUAcOwblwG.
#ALS #ALSHope #HealyHope #EndALS #Unity
Tonight @ 5pm: the wkly #HealeyALSPlatformTrial updates with @MeritCudkowicz of @MGHNeurology. Submit any Q's you'd like addressed to: [email protected]. Reg for free@
https://t.co/tUAcOwblwG. #ALS #PlatformTrial #ClinicalTrial #ALSHope
#HealyHope #Unity #EndALS
It's #HealeyALSplatformTrial Day - #Hope you can join us tonight at 5pm EST for the latest updates from @MeritCudkowicz & @PaganoniMDPhD of The Healey Ctr for #ALS at #MGH @MGHNeurology
Reg at: https://t.co/tUAcOwblwG. #ALSHope #EndALS #Unity #HealeyHope
It's #HealeyALSplatformTrial Day - will you be on the call? Please join us tonight at 5pm EST for the latest updates from @MeritCudkowicz & @PaganoniMDPhD
of The Healey Ctr for #ALS at #MGH @MGHNeurology
To reg, visit:
https://t.co/tUAcOvTK86. #ALSHope #EndALS #Unity #HealeyHope
It's #HealeyALSplatformTrial Day! Please join us tonight at 5pm EST for the latest updates from @MeritCudkowicz and @PaganoniMDPhD of The Healey Ctr for #ALS at #MGH @MGHNeurology To register (for free) please visit:
https://t.co/tUAcOwblwG. #ALSHope #EndALS #Unity
On International Women's Day 2020 the International Alliance is celebrating some of the amazing women who work with our member organizations who make a difference in the world.
#ALSMNDWithoutBorders #ALS #MND #ALSHope
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