Top Tweets for #ASCproject
Great collaborative model by @corrie_painter
@bvantine1 @DrSarcoma for #sarcoma #patients to actively participate in #angiosarcoma #ascproject! Providing evidence that angiosar from different locations harbor diff mutation profiles! https://t.co/p3RltJViLY
Always heartened to know that researchers are using #MBCproject and #ASCproject data on https://t.co/2iUgbfT3nz when questions come in to [email protected] and [email protected] - reach out to us any time! #CountMeIn
Last but not least, a shout out to the #CountMeIn team — this amazing group of individuals who spend every day working on these projects — as well as our extended team @broadinstitute @BroadGenomics #mbcproject #ascproject #mpcproject #gecproject

This data was presented last week at #cicon18 by @corrie_painter, @esha_501, & Rachel Stoddard on behalf of the #ASCproject. Read more details about the story from @AACR (https://t.co/N71UY8R2w6) and @ASCOPost (https://t.co/kPmwpNqTku)

What do these examples teach us? Should patients w head/neck/face/scalp angiosarcoma receive immune checkpoint inhibitors? This is a question that can now be tested in clinical trials. In meantime, #ASCproject will continue to sequence these tumors & share genomic/clinical data

2 #ASCproject patients w HNFS angiosarcoma happened to have rec’d off-label immune checkpoint inh. Both had widely metastatic refractory disease prior — & both had exceptional responses & now have no evidence of disease. We then sequenced both tumors: both have high TMB & UVsig

We hypothesized that head/neck/face/scalp angiosarcoma might have high tumor mutation burden due to UV-damage — & therefore might respond to immune checkpoint inhibitors. Since we had med records & patient reported data for hundreds of #ASCproject patients - we looked. #CountMeIn

Because it’s a rare, understudied cancer, we’ve already been able to make important observations in the #ASCproject even after just a year. 3 of the first 12 patients sequenced had high tumor mutation burden. All 3 had Angiosarcoma of the head/neck/face/scalp. #CountMeIn

Our second #CountMeIn project, the Angiosarcoma Project led by @corrie_painter, launched in March 2017. Angiosarcoma is ultra rare, with an incidence of ~300 in US per year. In the past 18mo, over 335 pts w Angiosarcoma have joined #ASCproject #CountMeIn https://t.co/S4XrtzPrnf

@stage4kelly @MBC_Project @Nikhilwagle @broadinstitute We are collectively part of that change, right now. It feels so much better, so much less isolating than just a few years ago. #BidenCancerSummit #mbcproject #ascproject #bcsm #sarcoma
We are proud to be joining @JoeBiden @DrBiden @BidenCancer tomorrow at the #BidenCancerSummit to represent #MBCproject #ASCproject #MPCproject #GECproject and talk about the power of the patient voice in cancer research #PatientPartneredResearch #CountMeIn

@corrie_painter @JFreemanDaily @stage4kelly Sorry I couldn’t be there — thanks @JFreemanDaily @stage4kelly @swaggsheila1 for holding down the fort & presenting the poster. Truly a patient-researcher partnership! Wish I was able to be there with you too. #AACR18 #mbcproject #ascproject #CountMeIn
Thank you #mbcproject and #ascproject for being leaders in patient driven #research . #CountMeIn #AACR18 #bcsm https://t.co/KByoyyScsc
Good morning #AACR18! This morning, @corrie_painter & @MichaelODunphy will present 2 posters from our #CountMeIn projects - on the Metastatic Breast Cancer Project & the Angiosarcoma Project. Visit us 8a-Noon, Poster Section 17 #mbcproject #ascproject

Good morning #AACR18! This morning, @corrie_painter & @MichaelODunphy will present 2 posters from our #CountMeIn projects - on the Metastatic Breast Cancer Project & the Angiosarcoma Project. Visit us 8a-Noon, Poster Section 17 #mbcproject #ascproject

Thanks @AmyDMarcus @WSJ for highlighting our expanding initiatives in patient-driven cancer research - including the newly launched Metastatic Prostate Cancer Project https://t.co/MTN7aQIx2b #mbcproject #ascproject #mpcproject #CountMeIn https://t.co/tDvhEb2dZc
Medical researchers look to enlist patients as partners https://t.co/SHcXlaFHJz via @WSJscience
Our abstract for #AACR18 was accepted for a poster presentation. We will have released our first batch of publicly available data in advance. Here's to data and answers that will follow for this orphan disease #ASCproject #scmsm #sarcoma
https://t.co/2O3x4PcF6L update: We have received 131 saliva kits, 36 tissue samples, 20 blood biopsies so far. Sequencing is underway #sarcoma #scmsm #ASCproject #AMSM #CountMeIn
In just two days, over 100 men (!!!) have said #CountMeIn for the Metastatic Prostate Cancer Project - https://t.co/hRrch4IkPT - power of patient-driven research, inspired by #MBCproject #ASCproject @corrie_painter @Nikhilwagle @fans4thecure @cierrasisters @JeamesSailor

267 #angiosarcoma pts have signed up for the https://t.co/2O3x4PcF6L, 96.3% have completed the patient reported data survey. #sarcoma #scmsm #CountMeIn #ASCproject
From 252 pts who provided data, 98 listed being dx w other additional cancers, 49 breast cancers (+rads), several with >1 additional cancer #Sarcoma #Scmsm #ASCproject
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