#ActRare - Twitter Hashtag

8 months ago

We welcome the draft report presented by @nicogoncas calling on the @EU_Commission to propose legislation establishing a European Rare Disease Action Framework. 🇪🇺 #ActRare 👉 Read our full statement: https://t.co/IG2DXu0Thu

eurordis's tweet photo. We welcome the draft report presented by @nicogoncas calling on the @EU_Commission to propose legislation establishing a European Rare Disease Action Framework. 🇪🇺 #ActRare

👉 Read our full statement: https://t.co/IG2DXu0Thu https://t.co/1IQVJLkLEw

0

9

3

0

269

raising_rareness (Lyndsey Walsh) @raisingrareness

over 2 years ago

Attending the 2024 European Conference on Rare Diseases & Orphan Products online 🙌 #ECRD2024 #ActRare #RareCommunity #CareForRare #IndividuallyRareCollectivelyCommon #30MillionReasons @eurordis @ERNIthaca

raisingrareness's tweet photo. Attending the 2024 European Conference on Rare Diseases & Orphan Products online 🙌

#ECRD2024 #ActRare #RareCommunity #CareForRare #IndividuallyRareCollectivelyCommon #30MillionReasons

@eurordis @ERNIthaca https://t.co/g7sssLxoIF

1

10

1

0

228

David Keown @David_Keown

over 6 years ago

Pulmonary Arterial Hypertension (PAH) is a rare, fatal disease – much progress has been made, but there is still much to do for patients. Proud to work for a company that thinks & acts rare #ActRare #WithYouUntilPHisnt #MyCompany #Actelion #Janssen #JNJ https://t.co/5BC8k1QWqI

0

4

1

0

Top Tweets for #ActRare

Last Seen Hashtags on Sotwe

Trends for you

Most Popular Users