Top Tweets for #AllensHealthData
'People don't think about their health if they're healthy, but the reality is that all of us will need a health record at some point': @RomainBonjean #AllensHealthData #MyHealthRecord
‘The @OAICgov will look at how genuine, how prudent and how matched to good practice the steps are that an organization has taken to protect personal information’: Phil O’Sullivan @AllensLegal #AllensHealthData
'The laws were designed for #MyHealthRecord as an opt-in system. Once the legislation was hard baked it was effectively unchanged until recent media attention, paving the way for free kicks against it': Phil O'Sullivan #AllensHealthData
'The fitness industry is much better at getting consent and engagement, and sliding into clinical research from #wearables. They capture people's enthusiasm and interests': @RomainBonjean #AllensHealthData
'We can learn a lot from the rollout of #MyHealthRecord, but also from overseas examples, especially in Canada, where we saw early engagement with the public. We need early education, people need to be aware of safeguards': @ClaireVajdic #AllensHealthData
'We have an obligation to be the CEO of our own health': @KaplanWarren @GarvanInstitute #AllensHealthData
'The #MyHealthRecord question must be framed to ask 'will this benefit my health outcomes'. There's a paradox of big privacy on my data, but an expectation that health providers should know my history': @RomainBonjean #AllensHealthData
'Through #MyHealthRecord, we'll see the advance of health data insights, with people seeing machine learning working on their own health data in a powerful, positive way': @RomainBonjean #AllensHealthData
'We need full data sets, not cherry picked data. An incomplete #MyHealthRecord is a potentially biased source for research': @ClaireVajdic #AllensHealthData
@ClaireVajdic @UNSW: We work within a framework of safe people, safe projects, safe settings and safe outputs to control the risks associated with analyzing health data #AllensHealthData
@RomainBonjean, CEO Tyde: #MyHealthRecord is a smart initiative that has been poorly rolled out #AllensHealthData
@RomainBonjean, CEO Tyde: If #healthdata is too complex to properly de-identify, why don’t we use a digital gate to meaningfully obtain consent? #AllensHealthData
'Fundamentally if you ask a user properly if you can use their data for research to improve health outcomes, the majority of people will say yes': @RomainBonjean #MyHealthRecord #AllensHealthData
'We've had the privilege of using anonymised health data for the public good to inform clinical practice, ensure consistent practice and improve health. We look forward to better access': @ClaireVajdic @UNSW #AllensHealthData
'Even when you strictly comply with the law, there are still issues to navigate in #healthdata, with an increasing need to offer a value opposition': Managing Associate and moderator Phil O'Sullivan #AllensHealthData
Australians value privacy, but will share data if they see value: Partner and health sector leader Jeremy Low kicks off proceedings #AllensHealthData
Beautiful morning for our seminar on the use of data for enhanced health outcomes today, featuring @KaplanWarren, @RomainBonjean and @ClaireVajdic. Looking forward to a thought-provoking discussion! #AllensHealthData
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