Top Tweets for #AutoinflammatoryAware
Understanding Autoinflammatory Conditions
Autoinflammatory conditions represent a group of disorders characterized by seemingly unprovoked inflammation caused by the innate immune system. #autoinflammatoryaware
Lets help to create a better understanding of Autoinflammatory conditions, roles of cytokines, treatment approaches, symptoms and diagnosis, the importance of research and awareness #autoinflammatoryaware #treatment #research #diagnosis #cytokines
We need worldwide patients registries to help inform research and a better understanding of these conditions, globally. #AutoinflammatoryAware #patientregistries #prevalence
Very informative! Measure both for disease activity, alongside Serum Amyloidosis A (SAA) for Autoinflammatory
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#AutoinflammatoryAware
Tweet 7 – ESR vs CRP
🔹 ESR – slower, influenced by age, anemia, and plasma proteins.
🔹 CRP – faster, more sensitive to acute inflammation, rises & falls quickly.
💡 Best practice: use both for monitoring disease activity.
📢 September is Autoinflammatory Awareness Month – Navigating the Medical Autoinflammatory Maze.
Most doctors still fail to recognise these rare diseases, because they can’t diagnose what they don’t know. 📷 Join us and help raise awareness
#AutoinflammatoryAware
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Quotes: Our journey of Autoinflammatory Conditions
#AutoinflammatoryAware #PatientExperience #Autoinflammatory
#AutoinflammatoryAware
World Autoinflammatory Awareness Month delivered by 22 countries working together 🫶🏼
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ImmunAID scientists @VIBLifeSciences have unlocked the secret of the interaction between IL-18 and its binding protein IL-18BP. Watch this unique achievement in the deciphering of the #inflammation process! #autoinflammatory #SAIDs #autoinflammatoryaware
🎬https://t.co/6EFQ0qDiCM
How will ImmunAID identify new biomarkers?
1st: By building the world’s largest cohort on #autoinflammatory disorders.
2nd: Collected samples will help define the immunome of #SAIDs
3rd: Biomarkers will be derived.
Ambitious? Yes! Achievable? Yes! #autoinflammatoryaware
We need biological markers to ascertain the diagnosis of #autoinflammatory disorders!
Discovering these new biomarkers is the goal of the ImmunAID project.
The project will soon enter its final phase, where most of the results will be achieved. Stay tuned! #autoinflammatoryaware
[Medical care of SAIDs]: How to treat #SAIDs? Pr. Koné-Paut describes the different options: non-specific treatments, pathway-specific therapies and future curative strategies #autoinflammatoryaware #beautoinflammatoryaware https://t.co/0bAUvNbTGb
[Medical care of SAIDs]: How to move from a set of generic symptoms to a personalized treatment? Today, Pr. Koné-Paut explains how to characterize an #autoinflammatory disease, whether it is a monogenic or a multifactorial one. https://t.co/DWYEwFwOsn
#autoinflammatoryaware
[Improving SAID diagnosis]: Why is the diagnosis of #SAIDs often delayed? Taking the example of #MKV disease, Pr. Koné-Paut highlights the main delay factors, incl. physicians' awareness. #autoinflammatoryaware #beautoinflammatoryaware 👉https://t.co/Nwhb7nvCK4
[Diagnosing SAIDs]: Congratulations to those who answered the quiz! 1st clinical case is indeed #FMF, the most frequent #SAID. The 2nd clinical case is the newly discovered #Vexas syndrome.
#autoinflammatoryaware #beautoinflammatoryaware
![ImmunAID_EU's tweet photo. [Diagnosing SAIDs]: Congratulations to those who answered the quiz! 1st clinical case is indeed #FMF, the most frequent #SAID. The 2nd clinical case is the newly discovered #Vexas syndrome.
#autoinflammatoryaware #beautoinflammatoryaware https://t.co/IXCXceNIJi](https://pbs.twimg.com/media/FdCr2H5WYAcvjEE.jpg)
![ImmunAID_EU's tweet photo. [Diagnosing SAIDs]: Congratulations to those who answered the quiz! 1st clinical case is indeed #FMF, the most frequent #SAID. The 2nd clinical case is the newly discovered #Vexas syndrome.
#autoinflammatoryaware #beautoinflammatoryaware https://t.co/IXCXceNIJi](https://pbs.twimg.com/media/FdCr0nfWAAE0V7X.jpg)
[Diagnosing SAIDs] : Can you recognize #SAIDs? Play the game! (Part 2)
Watch the clinical case in the video below and make the right diagnosis! Answers will be provided on Monday.
#autoinflammatoryaware #beautoinflammatoryaware #rarediseases
During the month of September, we continue to highlight autoinflammatory diseases, a group of rare diseases. #autoinflammatoryaware #beautoinflammatoryaware #fmfandaid #autoinflammation
In #SAIDs, fever is usually not naked. Other symptoms (abdominal pain, skin involvement, etc.) are also there. In today's video, @SophieGeorgin @HopitalTenon lists the main ones. But each patient is unique! #autoinflammatoryaware #rarediseases 🎬ht👉tps://youtu.be/Y451l2AEZIA
🎬How to hint a #SAID diagnosis? Today @SophieGeorgin lists the positive features (history of disease, associated symptoms, etc.) and negative ones (no infection or neoplasia, etc.). The checklist to help make the right diagnosis. https://t.co/jIIpBkuyem #autoinflammatoryaware
[Diagnosing SAIDs]: #SAIDs are difficult to diagnose, because the symptoms may not be visible, because they are too common, etc. This week, follow us and find out how to hint a diagnosis of #autoinflammatory diseases. #autoinflammatoryaware
![ImmunAID_EU's tweet photo. [Diagnosing SAIDs]: #SAIDs are difficult to diagnose, because the symptoms may not be visible, because they are too common, etc. This week, follow us and find out how to hint a diagnosis of #autoinflammatory diseases. #autoinflammatoryaware https://t.co/3EVl8bwMl6](https://pbs.twimg.com/media/FccrxFRXkAMM0d2.jpg)
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