Top Tweets for #BLACKSWANFoundation
We are at RE(ACT) Congress & IRDiRC Conference 2025 in Brussels 🇧🇪
🌎Joined by experts from around the world, RE(ACT) offers a unique opportunity for research on rare diseases and orphan drugs.
#Rarevolution #REACTCongress #IRDiRC #ERDERA #BLACKSWANFOUNDATION
A powerful and touching story from Julia Vitarello about her journey to find a cure for her daughter Mila, at the #REACTCongress #irdirc #ejprd #blackswanfoundation #RAREvolution
It's time for Carl Morris from @Solid_Bio on #AAV-mediated #genetherapy in #Duchenne Muscular Dystrophy #DMD
#REACTCongress #irdirc #ejprd #blackswanfoundation #RAREvolution
Day 3 and time for the session on #Gene and #Cell #therapy, and we start with the outstanding presentation of Guillaume Canaud #REACTCongress #irdirc #ejprd #blackswanfoundation #RAREvolution
Great inspirational talk from @timbuckinx on #wearable and #AI helping #raredisease patients
#REACTCongress #irdirc #ejprd #blackswanfoundation #RAREvolution
When friendship can help people living with a #RareDisease, thumbs up 👍🏻 for Paulien Klap.
#REACTCongress #irdirc #ejprd #blackswanfoundation #RAREvolution #DMD
It's time for the opening ceremony at the #REACTCongress with Ruxandra Draghia-Akli, the Queen 👑 and co-founder of @irdirc
#irdirc #ejprd #blackswanfoundation #RAREvolution
#REACTCongress 2⃣0⃣2⃣3⃣
🤩
@irdirc, @EJPRareDiseases, @BLACKSWANFound
#irdirc #ejprd #blackswanfoundation #RAREvolution
@istsupsan #Raredisease #malattierare #EURORDIS #UNIAMO #Research #Diagnosis
The RE(ACT) Congress and IRDiRC Conference has officially started!
This is a start for the #REACTCongress 2023 in collaboration with @irdirc and @EJPRareDiseases @BLACKSWANFound
#irdirc #ejprd #blackswanfoundation #RAREvolution
We are thrilled and honoured to welcome Dr. @Nick_Sireau as member of the RE(ACT) Discovery Institute as member of the #Patient Advisory Board
@findacure_fdn @AKUSociety
#raredisease #RAREvolution #BLACKSWANFoundation #REACT
https://t.co/JXKEeIr3mi
We are very pleased to announce that Dr. Lucia Monaco has joined the RE(ACT) Discovery Institute Advisory Board!
#REACT #RAREvolution #blackswanfoundation
@Telethonitalia @irdirc
https://t.co/hPjcFKPqcg
The RE(ACT) Discovery Institute is honored and thrilled to welcome a new member to its Advisory Board: @DariaJulkowska
https://t.co/AmqqauvouS
#REACT #RAREvolution #BLACKSWANFoundation
@EJPRareDiseases
👉🏻Discover the first RE(ACT) Discovery Institute #PressReleaseDouble ‼️
The #REACT Discovery Institute is a unique, not-for-profit institute that supports #drugdiscovery and #drugdevelopment in the field of #rarediseases.
#RAREvolution #BLACKSWANFoundation
https://t.co/QTz4mjKNT4
👉🏻Discover the first RE(ACT) Discovery Institute #PressRelease‼️
The #REACT Discovery Institute is a unique, not-for-profit institute that supports #drugdiscovery and #drugdevelopment in the field of #rarediseases.
#RAREvolution #BLACKSWANFoundation
https://t.co/g6k8vVetSB
‼️Identification of a new #raredisease 🧬by a member of our outstanding #blackswanfoundation scientific board #AlexandreReymond and his team @NorineVoisin #RAREvolution @AJHGNews @cig_unil @react_community
ldentification d’une nouvelle maladie génétique rare, grâce à l'expertise de l’équipe d'Alexandre Reymond, directeur @cig_unil. La première auteure est @NorineVoisin. Publi. dans @AJHGNews - https://t.co/ynusLb0GYW
In 2019, we partnered with @ncats_nih_gov to host the #REACTCongress #AMERICA 2019. Our work helped to advance #TranslationalScience.
Check out NCATS’ 2019 Year in Review to spot our collaborative efforts: https://t.co/z5sAdsWx9q
#RAREvolution #Raredisease #BLACKSWANFoundation
Very proud and happy to assist at the lecture of our mentor, friend, and member of the scientific committee #SylianosAntonarakis @stylianosgenome at the #ASHG2019, honoree of the highly distinctive and deserved #WilliamAllan Award in #Human #Genetics. #blackswanfoundation
We’re taking off to #ASHG19 #Houston ...looking forward to meet all our American friends again @react_community #blackswanfoundation #RAREvolution @OlivierMenzel
#EJPRD #generalassembly meeting with partners @EJPRareDiseases and @irdirc and preparing an amazing program for the #REACTCongress 2020 in #Berlin https://t.co/8CQmtPaMCN #RAREvolution #raredisease #blackswanfoundation
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