Top Tweets for #BarthStrong
“By centering patient voices, the Barth Syndrome Foundation ensures that research addresses the most critical needs, driving progress toward effective treatments and an improved quality of life.” #RareDisease #BarthSTRONG
Happy Father's Day to all the Barth dads! We celebrate your unwavering strength, boundless love, and endless dedication through the good times and challenging times. #barthstrong
🗣️🏁DIRTy Peeps🏁🗣️
Positive energy and prayers for Tim. And if you see him at a track, get a picture with him, tag him and me in it… let’s spread the love! ♥️
#BarthStrong
A little update after my checkup yesterday. Needless to say I’ll be hitting as many races as I can this year.
Connor's video on Special Books by Special Kids has reached over half a million views! Thank you to everyone who watched, liked, and shared the video. If you haven't had a chance to watch Connor's story, click here: https://t.co/YGOU1s4zyD #barthstrong
.@BarthSyndrome and @NeutropeniaN will be hosting a #neutropenia educational series from August-November! The first webinar on Tweens and Teens with #Neutropenia (10 to 18 years) will take place on 8/25. Learn more: https://t.co/CUeg5LJ5G2 #BarthStrong
Happy Mother's Day! Especially to all the Barth moms out there for your strength, care, and commitment. #MothersDay #barthstrong
We celebrate the women in Barth syndrome research, treatment, and support this #InternationalWomensDay ! Thank you for your expertise, experience, and dedication to our mission.
#barthstrong #barthsyndrome
We appreciate the effort of all the contributing authors, guest editors, and of course JIMD’s decision to shine a scientific light on the immense progress in the Barth syndrome field! Check out the issue below. #BarthStrong
Our latest issue is a #Barthsyndrome special, 10 articles, one fab editorial and a great letter introducing the @BarthSyndrome hoping to bring a podcast out soon.
Check it out.
https://t.co/LEN5zUiv23
We at BSF wish everyone a happy and safe holiday season! #BarthStrong
Today is #nationalnonprofitday How has BSF helped you during your journey with Barth syndrome? Post a comment and let us know! #barthstrong #barthsyndrome https://t.co/iB9Fj9Bpsq
It’s finally here! The first-ever Virtual Scientific and Medical Symposium for Barth syndrome starts tomorrow! Registration is still open https://t.co/l5hwO2NXiO #BSFSciMed2020 #barthsyndrome #barthstrong https://t.co/DhA9gGLUCk
#BarthSTRONG this week with plenty of opportunities to connect online. Join us! https://t.co/POw4LKDcU3 https://t.co/M0olSOx0MT
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