#BeatNPC - Twitter Hashtag

about 1 year ago

SPCHS is supporting the Ara Parseghian Medical Research Fund on Notre Dame Day in the fight to find a cure for NPC, the rare disease that Mrs. Russell's grandson, Ryan, is bravely battling. On 4/16 Dress Down Day for $5. https://t.co/VmUl2RNhWV #RootForRyan #BeatNPC

SPCHSBarons's tweet photo. SPCHS is supporting the Ara Parseghian Medical Research Fund on Notre Dame Day in the fight to find a cure for NPC, the rare disease that Mrs. Russell's grandson, Ryan, is bravely battling. On 4/16 Dress Down Day for $5.
https://t.co/VmUl2RNhWV

#RootForRyan #BeatNPC https://t.co/D48acgl9SC

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Cologna Lab @ColognaLab

almost 3 years ago

We had the privilege of hosting Manuela this summer in our lab. She has been a delight to work with and wish her the best during her senior year. #BeatNPC #HopeWins #TeamMassSpec #DART

ColognaLab's tweet photo. We had the privilege of hosting Manuela this summer in our lab. She has been a delight to work with and wish her the best during her senior year. #BeatNPC #HopeWins #TeamMassSpec #DART https://t.co/wUIUqSx52b

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Cologna Lab @ColognaLab

about 4 years ago

Thank you @Parseghianfund for a fantastic meeting. Always a delight to bring together folks committed to #BeatNPC

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Firefly Fund @Firefly_Fund

over 5 years ago

Thank you to @Orphazyme_AS for putting together this special video for NPC Awareness Month, and for highlighting the NPC patient voice: https://t.co/Sye5w8ggGh #BeatNPC #ShiningALightOnNPC1 #FireflyFund #JoinTheFlight #RareAware #RareDisease

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RaceForAdam @RaceForAdam

almost 6 years ago

Have I mentioned how much fun we have at the Drive for Adam? Register for the 5th Annual Drive for Adam at https://t.co/JpTTTbVKXC Click EVENTS #beatnpc #Golf #golfing #golfer

RaceForAdam's tweet photo. Have I mentioned how much fun we have at the Drive for Adam? Register for the 5th Annual Drive for Adam at https://t.co/JpTTTbVKXC Click EVENTS #beatnpc #Golf #golfing #golfer https://t.co/1FqO5v1M2m

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RaceForAdam @RaceForAdam

about 7 years ago

https://t.co/ifTGlkInkS We've made it easy to put your business in front of 144 golfers at the 4th Annual Drive for Adam! Now accepting online sponsorships! Thank you @KLKWebServices ! #Golf #business #beatnpc

RaceForAdam's tweet photo. https://t.co/ifTGlkInkS We've made it easy to put your business in front of 144 golfers at the 4th Annual Drive for Adam! Now accepting online sponsorships! Thank you @KLKWebServices ! #Golf #business #beatnpc https://t.co/bgOnnu2Tft

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gailk @koujaianunit1

over 7 years ago · Prospect Heights

Our NPC Warrior Hayley came through VNS Battery replacement surgery with flying colors. Mom & Dad survived with a few more gray hairs 🙏🏻🙏🏻🙏🏻. We remain hopeful for a Cure & make sure our voices heard. #beatnpc #hope4hayley #hope #curenpc https://t.co/zukisWCQil

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