Top Tweets for #BladderCancerForum26
๐ CANVES participรณ en el #BladderCancerForum26 de la @WorldBladderCan compartiendo la voz de pacientes y cuidadores y aprendiendo junto a organizaciones de distintos paรญses.
๐ Seguimos trabajando para mejorar el apoyo a las personas con cรกncer de vejiga.
https://t.co/2LeM47vJYq
๐ #BladderCancerForum26
The Public day of the Forum brought together patients, carers, advocates, healthcare professionals, researchers and policymakers from across the world, in Asia for the first time, to share ideas, experiences and solutions to improve bladder cancer care.
๐ Thank you to every speaker, and to our Global Impact Partners, Premier Partners & Sponsors for their support, as well a everyone who followed online. #BladderCancerForum26 #BladderCancer #PatientAdvocacy
๐บ Addressing gaps in support for women with bladder cancer, closing #BladderCancerForum26
1 in 4 people diagnosed with bladder cancer is a woman. Our survey found 69% were diagnosed with another condition first, and 39% of those were told it was a UTI.
Christine La Rose moderated Angela Pelletier, Hilda Kwok and Dr Makarand Khochikar.
๐ฌ The myth that bladder cancer is more aggressive in women? The biology is the same. What differs is how long the diagnosis takes.
Learn more here: https://t.co/1xNx6L2xMG
#BladderCancer #WomensHealth #PatientAdvocacy
๐ฌ Capturing lived experience with bladder cancer, at #BladderCancerForum26
๐ฃ Amit Rele, diagnosed at 45 with no symptoms, three years on from bladder removal and back to golf, the gym and the sea.
๐ฃ Junichiro Sano, vice-president of Japanese Bladder Cancer Patient Organisation, could not find another bladder cancer survivor in Japan, so he built the group that did not exist.
๐ฃ Amy Samuel, who refused to wait 45 days for a biopsy result in Senegal, and has since put bladder cancer on national media across West Africa.
๐ Learn more here: https://t.co/wgcdewhTVf
#BladderCancer #PatientAdvocacy
๐ฃ๏ธ Charting the path to Shared Decision-Making at #BladderCancerForum26
๐ Our 2023 survey found 82% of patients needed more information than they were given.
The panel, moderated by Adam Lynch, looked at why:
๐น Patients do not know what to ask, and what they need to ask about is life afterwards
๐น Doctors are trained to deliver the best clinical outcome, not to hand the decision over
๐น Consultations are too short for a real conversation
๐ฌ One fix already working in Malaysia: a trained navigator sits with the patient afterwards, and nobody decides the same day.
Learn more here: https://t.co/PMr2qxqUUQ
#BladderCancer #SharedDecisionMaking
๐ฌ Designing patient centric clinical trials at #BladderCancerForum26
Every trial protocol decides how often someone attends hospital, how many biopsies they undergo, and whether anyone asks how they feel. Most of those decisions are made without a patient present.
Our panel looked at how to change that:
๐น Consent documents written in plain language
๐น Quality of life treated as more than a secondary measure
๐น Nurses included in protocol review
๐น Patient organisations involved from the start, not the end
Moderated by Lauren Pretorius with Alessandro Boni, Dr Kenneth Chen and Anjali Malhotra.
๐ Learn more here: https://t.co/4LBIq1HGa7
@campaign4cancer @AssPalinuro @ImmunityBio #BladderCancer #ClinicalTrials #PatientAdvocacy
๐ฌ Latest developments in bladder cancer research at #BladderCancerForum26
๐ฃ๏ธ Dr Makarand Khochikar spoke on muscle-invasive bladder cancer, and a question clinicians did not expect: when the disease has gone completely after treatment, is removing the bladder still justified?
๐ฃ๏ธ Prof Jeremy Teoh spoke on non-muscle-invasive bladder cancer, and on surgery itself. A Hong Kong trial across 13 centres cut one-year recurrence from 38.1% to 28.5% by changing the resection technique.
@jteoh_hk #BladderCancer #BladderCancerResearch #PatientAdvocacy
๐ CANVES en el #BladderCancerForum26 de Hong Kong.
๐๏ธ CANVES compartiรณ cรณmo un cuestionario a mรกs de 100 miembros ayudรณ a identificar necesidades reales de los pacientes y a crear una jornada centrada en ellos.
#CANVES #CancerDeVejiga #WBCPC
๐๐ฑ๐๐ผ๐ฐ๐ฎ๐๐ฒ๐ ๐๐ฎ๐ย ๐ฎ๐ ๐๐ต๐ฒย ๐ช๐ผ๐ฟ๐น๐ฑย ๐๐น๐ฎ๐ฑ๐ฑ๐ฒ๐ฟย ๐๐ฎ๐ป๐ฐ๐ฒ๐ฟย ๐ฃ๐ฎ๐๐ถ๐ฒ๐ป๐ย ๐๐ผ๐ฟ๐๐บย ๐ฎ๐ฌ๐ฎ๐ฒ ๐
Four member organisations shared what has worked in their countries:
๐นAdam Lynch from @BeatBCAus (BEAT Bladder Cancer Australia) on patient pathways and Voice of the Patient, built on 30 patient stories
๐นAngela Pelletier from Bladder Cancer Canada spoke on the Healthy Living Guidebook
๐นDavid Garrigues Ronda from @CANVES_ES on letting patients design the programme
๐นBryan David Mkandawire from One Community on awareness in barber shops and community gatherings
๐ Thank you to our members for sharing these initiatives and the hard work behind them. #BladderCancerForum26 #BladderCancer #PatientAdvocacy
๐ฃ๏ธ Join at the #BladderCancerForum26, Sept. 21-22, 2026, in Hong Kong! Our VP Alessandro Boni is honoured to speak alongside experts and advocates working to improve bladder cancer care. Let's learn, share and shape the future together.
๐ Save your seat: https://t.co/vJuHzgDa2b
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