Top Tweets for #BloomWithScleroderma
🌍 En el Día Mundial de la Esclerodermia,
nos unimos para arrojar luz sobre esta enfermedad 💪🏻
Recordamos la valentía de pacientes, familias y profesionales de salud en su lucha diaria. ¡Su fortaleza nos inspira!
#DME2024 #WSD2024 #SclerodermaAwareness #Bloomwithscleroderma
¿Te perdiste las videoconferencias de la III Jornada Internacional de #Esclerodermia con motivo del #DME2023?
En el siguiente enlace encontrarás la segunda: Esclerodermia Localizada a cargo del Dr. Enrique Loayza, Dermatólogo.
📷 https://t.co/UVDFkIEyDf
#BloomWithScleroderma
El pasado 29 de Junio celebramos la III Jornada Internacional de Esclerodermia.
Compartimos la primera videoconferencia: Guía para Paciente Recién Diagnosticado, a cargo del Dr. Andrés Zúñiga, Reumatólogo.
https://t.co/BzXCMNt7mN
#Esclerodermia #DME2023 #BloomWithScleroderma
🌸✨Experience the captivating story of #scleroderma patients through dance. Emotions unfold, challenges are overcome, and strength shines through in every movement.
Immerse yourself in their journey. Join us as we #BloomWithScleroderma:
It's a moment of clarity when we see the beauty in our struggles and realize that our experiences have made us stronger. So let's keep fighting, let's keep thriving to help those living with scleroderma.
On this #WorldSclerodermaDay let's bloom together, #BloomWithScleroderma 🌻
🙏 A big thank you to @DeirdreCluneMEP (@EPPGroup, IE) for advocating for scleroderma patients and supporting our campaign! Read her thoughts on how we can improve the quality of life for people with scleroderma:
#BloomWithScleroderma
Life may throw unexpected challenges your way, but together we face each new wave. With the right support, we'll find a way to thrive and #BloomWithScleroderma, day by day.
The road may seem lonely at times, but this #WorldSclerodermaDay we stand together to create a brighter future for those living with the disabling disease.
Today, we #BloomWithScleroderma - join us on this journey 👇
This performance is a testament to the strength and resilience of people living with scleroderma, and a celebration of the power of the human spirit.
🌻 This #WorldSclerodermaDay join us in making a difference. Today we bloom, we #BloomWithScleroderma.
Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España
#DMEsclero2023 #BloomWithScleroderma
Y por fin llegó el 29 de junio #DME2023
Queremos dar visibilidad a las personas con #esclerodermia y les mandamos muchos ánimos
#BloomwithScleroderma
@Fscleroderma @AEEsclerodermia
A big thank you to all the team who made today’s patient information day a success. We’re hearing great feedback that it was useful & inspiring, with lots of positive stories, top tips & some fantastic research in place for the future #BloomWithScleroderma @SclerodermaM
Mouthcare is important but can be tricky with scleroderma - there were lots of samples and expert advice on hand here @SalfordCO_NHS today. The stall looks a lot emptier now! #BloomWithScleroderma @SclerodermaM
Great to hear about patient involvement (using their lived expertise and experience) shaping #scleroderma research, including in putting systems in place for earlier diagnosis through nailfold capillaroscopy
@SalfordCO_NHS
#BloomWithScleroderma
Psychologists from @NCAlliance_NHS now advising on managing negative thoughts - we can’t control these thoughts popping up but we do have a choice about how we react
#BloomWithScleroderma
🌻 This #WorldSclerodermaDay join us on a journey of resilience and self-discovery. The journey of those who face the challenges of this disease day by day.
But today, we're blooming together. We #BloomWithScleroderma!
👉 Watch the full video: https://t.co/mnVdVyHFNi
Daily stretching exercises help to maintain hand mobility, says @PhysioWillGreg - watch some helpful videos on @wearesruk website
#BloomWithScleroderma
@SclerodermaM
Lots of practical tips today at @SalfordCO_NHS scleroderma patient day. Many thanks to Sue and Lisa from Me Time Salon iwho are offering advice on looking after your hair and skin if your movement is limited by scleroderma
#BloomWithScleroderma
@SclerodermaM
Barry’s top tip for living well with scleroderma - keep active. He swims and walks as well as keeping busy with his GB Taekwondo work and leading walks around the statues of Manchester!
#BloomWithScleroderma
@SclerodermaM @WeAreSRUK @VersusArthritis
Please share to help increase awareness & understanding of Scleroderma, a rare & complex autoimmune condition. Help ensure everyone can find the light to bloom #BloomwithScleroderma
🌻 This #WorldSclerodermaDay join us on a journey of resilience and self-discovery. The journey of those who face the challenges of this disease day by day.
But today, we're blooming together. We #BloomWithScleroderma!
👉 Watch the full video: https://t.co/mnVdVyHFNi
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