Top Tweets for #CDGCommunity
🌍✨ Voices of CDG Families and Advocates✨🌟
📣 You can read all about the stories, insights, and experiences of the worldwide CDG community and get inspired #6thWorldConferenceCDG Report a https://t.co/lxhwcIEWH4
#CDGCommunity #CDGAdvocacy
🙌 Shout out 2 our donors & supporters! Thank you for making the #6thWorldConferenceonCDG possible, contributing to our shared mission to educate, empower, and create change for the #CDGcommunity
@GlycomineBio @GlobalGenes @GLYCOTwinning @UCIBIO_Research @theFoGsj
#RAREMeetUp
❤ #CDGCommunity let’s join to the #RareDiseaseMonth.
How many rare diseases are there in the world?
~1000
~3000
~5000
~7000
🙌 Let’s keep raising awareness and education. Check our content in lay language about Rare Diseases made for you at: https://t.co/cj6PJNSSmT
❤ #CDGCommunity joins the #RareDiseaseDay.
Rare Disease Day is held every year on February 28 (or February 29 in leap years), which is the rarest day of the year.
✊ Join us, read and share our content, and learn more about rare diseases like CDG at https://t.co/fsvl757BWs
❤ It’s #InternationalDayofEducation! Let’s empower our #CDGCommunity!
💪 At https://t.co/dotsL8qRq6 you have many resources to get better informed about CDG. Spread the word and start conversations with your family/medical professionals/ researchers!
📣 #CDGCommunity we need you! Missed your change? The deadline has been extended write us until November 18.
✨ CDG & Allies and the World CDG Organization, want to ensure that ALL CDG types are represented in everything we do.
👉 Write us https://t.co/wKXIH1X8BT
📣#HealthLiteracyMonth is here!
We ❤️ #HealthLiteracyMonth! Do you want to learn more about the signs and symptoms of PIGG-CDG?
🙌 Go to our website section about infographics it‘s all in lay language, done with and for our #CDGCommunity! https://t.co/XsHgC5uivv
📣 #HealthLiteracyMonth is here!
We ❤️ #HealthLiteracyMonth, and we can’t wait to share with our #CDGCommunity our new infographic, PGM1-CDG!
🧠 Let‘s educate and empower people! All infographics are available in several languages
➡ Check: https://t.co/XsHgC5uQl3
#CDGCommunity
Do you know someone living with CDG who feels alone?🤔
You must tell them there are CDG groups in different countries who can help!
More information about CDG Community here:
👉https://t.co/9TLZuPASqY
#CDGCommunity
Do you know someone that lives with CDG or has someone in the family that lives with CDG in Spain?🤔
They must know the Spanish Association for CDG, leaded by a group of parents and family members affected by CDG.
More information:
👉https://t.co/9TLZuPASqY
#CDGCommunity
Do you know someone living with CDG in Italy?🤔
You must tell them about CDG Italy, a non-profit that aims to promote awareness, information and research as well as to facilitate communication and networking among CDG families.💚
👉https://t.co/9TLZuPStPy
#CDGCommunity
Amour Fund is a nonprofit organization. Their aim is for children with CDG to be able to live to their fullest potential, and ultimately is to find a cure by supporting CDG research.
👉https://t.co/9TLZuPASqY
👉https://t.co/B9QMcIgf48
#CDGCommunity
Today's highlight goes to Glycokids, the German CDG Syndrome Association.
Their aim is to connect families affected by CDG and to boost information exchange. ❤️
More information here:
👉https://t.co/9TLZuPASqY
👉https://t.co/5JIhlPBkzA
#CDGCommunity
Want to join the Swedish CDG family?❤️
Swedish CDG aim is to promote research in the field and to disseminate information about CDG.
For more information see:
👉CDG: https://t.co/9TLZuPASqY
👉Swedish CDG: https://t.co/AlzcasCXS2
#CDGCommunity
🧒 Do you have a child with CDG? Do you think he is alone on this journey?
CDG UK has created a section where you can find stories of children with CDG.
👉CDG: https://t.co/9TLZuPASqY
👉CDG UK: https://t.co/iFQJ2hBvTM
#CDGCommunity
🔜 Rare Disease Day Symposium & CDG/NGLY1 Family Conference
CDG CARE will co-host the Rare Disease Day Symposium & CDG/NGLY1 Family Conference, between the 25th and 27th of February 2022.
Follow this pages:
👉https://t.co/hN6Z7OklcU
👉https://t.co/9TLZuPASqY
#CDGCommunity
Today's highlight goes to Les Ptits CDG, a non-profit association working for and with families affected by the syndrome CDG. 💜
More information about CDG Community:
👉https://t.co/9TLZuPASqY
#CDGCommunity
Get to know CDG Italia! 💜
Their goal is to help boost CDG awareness and advocate for expeditious research for cure.
You can learn more about CDG Italy here:
👉Facebook:https://t.co/MjTC1wu3gO
👉Website: https://t.co/HK83k6jzvB
#Xmas means family. So remember that the best present is to be present! 🎄🎁
Far away, but always together, the World CDG Organization wishes a happy and blessed X-mas to all the #CDGCommunity! ✨
#CDGCommunity
Did you know that CDG CARE will co-host the Rare Disease Day Symposium & CDG/NGLY1 Family Conference, between the 25th and 27th of February 2022?
Follow these pages to stay updated with all the news!
👉https://t.co/hN6Z7O2Klm
👉https://t.co/9TLZuPStPy
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