Top Tweets for #CFSleaks

Karl Tusing @RIS_PACSman

over 2 years ago

@KerenLeah There are many ways to improve medical care of #CSFleak patients. But it starts in medical school where increased awareness needs to be developed. Excited to see how #PCCT technology can help locate #CFSleaks #CVF using modified CT Myelogram protocols. @MayoClinic @DukeRadiology

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EDS Canada Foundation @EDSCanadaFnd

about 3 years ago

Program Schedule coming soon ! #EDS #HSD #HCTD #RareDiseases #spoonie #chronicpain #MCAS #POTS #CCI #Chiari #CFSLeaks #MEFM #TCS #GERD #TarlovCysts #SpinaBifida #CP #Arachnoiditis #GlimmersOfHopeCodeOfSilence #TheILCFoundation #PrioritizePain #helpothers #nonprofit #joinnow

EDSCanadaFnd's tweet photo. Program Schedule coming soon !
#EDS #HSD #HCTD #RareDiseases #spoonie #chronicpain #MCAS #POTS #CCI #Chiari #CFSLeaks #MEFM #TCS #GERD #TarlovCysts #SpinaBifida #CP #Arachnoiditis #GlimmersOfHopeCodeOfSilence #TheILCFoundation #PrioritizePain #helpothers #nonprofit #joinnow https://t.co/5hoOIoMDb3

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EDS Canada Foundation @EDSCanadaFnd

over 3 years ago

MAY is EDS Awareness Month 📷 - #EDS #HSD #HCTD #RareDiseases #spoonie #chronicpain #MCAS #POTS #CCI #Chiari #CFSLeaks #MEFM #TCS #GERD #TarlovCysts #SpinaBifida #CP #Arachnoiditis #GlimmersOfHopeCodeOfSilence #TheILCFoundation #TheAngelProject #PrioritizePain #helpothers

EDSCanadaFnd's tweet photo. MAY is EDS Awareness Month 📷
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#EDS #HSD #HCTD #RareDiseases #spoonie #chronicpain #MCAS #POTS #CCI #Chiari #CFSLeaks #MEFM #TCS #GERD #TarlovCysts #SpinaBifida #CP #Arachnoiditis #GlimmersOfHopeCodeOfSilence #TheILCFoundation #TheAngelProject #PrioritizePain #helpothers https://t.co/9kQVazeycI

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EDS Canada Foundation @EDSCanadaFnd

over 3 years ago

The Canadian Ehlers Danlos Syndromes 2023 virtual Conference Series - Speaker/presentation details COMING SOON! - #EDS #HSD #HCTD #RareDiseases #spoonie #chronicpain #MCAS #POTS #CCI #Chiari #CFSLeaks #MEFM #TCS #GERD #TarlovCysts #SpinaBifida #Arachnoiditis #TheILCFoundation

EDSCanadaFnd's tweet photo. The Canadian Ehlers Danlos Syndromes 2023 virtual Conference Series - Speaker/presentation details COMING SOON!
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#EDS #HSD #HCTD #RareDiseases #spoonie #chronicpain #MCAS #POTS #CCI #Chiari #CFSLeaks #MEFM #TCS #GERD #TarlovCysts #SpinaBifida #Arachnoiditis #TheILCFoundation https://t.co/ClFVoqm4pW

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Judith @judyintheskynet

almost 4 years ago

@rjf_berger @Pandaphfi Experten zu #CFSleaks gibt es viele, empfehlen kann ich Doktor Ulrich in der Schweiz sowie die Uniklinik Freiburg.

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EDS Canada Foundation @EDSCanadaFnd

over 5 years ago

A thank you to the Kitchener Waterloo Community Foundation Barb and Bill Hall Charitable Fund. #EDS #HSD #HCTD #RareDiseases #chronicpain #MCAS #POTS #Chiari #CFSLeaks #MEFM #TCS #GERD #TarlovCysts #SpinaBifida #CP #Arachnoiditis #GlimmersOfHopeCodeOfSilence #TheILCFoundation

EDSCanadaFnd's tweet photo. A thank you to the Kitchener Waterloo Community Foundation Barb and Bill Hall Charitable Fund.

#EDS #HSD #HCTD #RareDiseases #chronicpain #MCAS #POTS #Chiari #CFSLeaks #MEFM #TCS #GERD #TarlovCysts #SpinaBifida #CP #Arachnoiditis #GlimmersOfHopeCodeOfSilence #TheILCFoundation https://t.co/dEzayYKxu6

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Spoonie_Lioness88 @spoonie_lioness

about 8 years ago

It's so damn painful😥 Cerebrospinal fluid leaks😥📚 #cerebrospinalfluid #seriouse #neurologicalcondition #cfsleaks #perementlydamages #nervoussystem #fightingagainstmyownbodyandpains #invisiblebattles #invisiblepains #spoonielife #dayinanddayout... https://t.co/KG7kHUW87x

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