Top Tweets for #CFwarrior
Columnist Lara Govendo has just returned from this year's Transplant Games of America, and found herself humbled to be at such a large event. https://t.co/sGNFLkPtZZ #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
People with cystic fibrosis continued to receive less recommended care through 2023 than they did at pre-pandemic levels, a U.S. study found. https://t.co/9lR4kzZANn #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
KIT2014, an experimental inhalation therapy for CF and other lung conditions, was safe and well tolerated in healthy volunteers, data show. https://t.co/LALypMlobJ #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Behind this little face, there are so many emotions… and so much strength 🥺♥️.
#Annualtests
#CysticFibrosis
#CFWarrior
A U.S. study links a family history of diabetes, especially type 2, to a higher risk of cystic fibrosis-related diabetes in adults with CF. https://t.co/xR4kvY73fB #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
CF children with two Trikafta-responsive mutations showed stronger reductions in sweat chloride levels than those with just one, per a study. https://t.co/2bQPnqRKwn #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Since CF can't be cured or reversed, columnist Jennifer Cogliano questions why those who qualify for disability benefits need ongoing reviews. https://t.co/QUKmfQNaKG #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
A proof-of-concept trial testing Sionna Therapeutics' SION-719 as a Trikafta add-on therapy for cystic fibrosis is now fully underway. https://t.co/DpcNixSOOT #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
People talk about how time heals, but for columnist Ed Jordan, whose daughter passed away seven years ago, the pain is as sharp as ever. https://t.co/ORznsVJx72 #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Respiratory symptoms drive the start of Kaftrio treatment in adults with cystic fibrosis who have stable breathing ability, a study found. https://t.co/mPFC86wvyp #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
A nanobody is able to correct the functionality of the defective CFTR protein in people with CF caused by the F508del mutation. https://t.co/oKeUcxkOl3 #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Trikafta is linked to fewer hospital stays and reduced healthcare use for cystic fibrosis complications beyond the lungs, a study finds. https://t.co/bg69KCX0HO #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
So, I’ve been battling a nasty lung infection the past week, doing everything I can to stay out of the hospital. These 45 year old Cystic Fibrosis lungs are challenging me……but the fuckers still don’t think I’m strong enough, they’re dead wrong! #CureCF #CFwarrior
Bioversys and Hackensack Meridian Health partner to advance NTM treatment using new antibiotics for hard-to-treat lung infections in CF. https://t.co/U3q2HFT41S #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Children with CF who receive a liver-only transplant tend to live longer than those who undergo a liver-lung transplant, a study finds. https://t.co/BG8mMg6cQy #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Low-dose CT scans may help monitor response to CFTR therapies in cystic fibrosis, using less radiation, a new study suggests. https://t.co/IP0NqRgR8o #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Among CF patients who develop kidney failure, getting a kidney transplant may extend survival by nearly two decades, a study suggest. https://t.co/pkfyFeu3mY #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Children with CF have abnormal blood levels of bile acids, the main components of the digestive fluid bile, compared with healthy kids. https://t.co/H8imeAzJkY #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
The lungs of infants and children with CF show an early, overactive immune response driven by neutrophils, according to a study https://t.co/f7lrSSgLj6 #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
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