Top Tweets for #CLOVESAwarenessDay
As it’s #CLOVESAwarenessDay I can’t think of a better way to bring that awareness than to listen to Dr Canaud explaining a little more about CLOVES & PIK3CA & PROS 👇🏻
Guillaume Canaud, MD, PhD, of Necker-Enfants Malades Hospital – AP-HP, the Paris Descartes University, explains why a biopsy is needed to diagnose PIK3CA-related overgrowth syndrome #PROS @hopital_necker @PROS_PIK3CA @GoPI3Ks @CLOVESSyndrome
https://t.co/Cq1OGrNWlo
The best way to celebrate #CLOVESAwarenessDay is to reach out to our friends at @CLOVESSyndrome @GoPI3Ks for advice and support
You are never alone #StrongerTogether
Today is #CLOVESAwarenessDay. CLOVES belongs to a category of diseases known as PIK3CA-related overgrowth spectrum or PROS. We asked our PROS Ambassadors impacted by CLOVES what they wish people knew about the condition.🧵
Today is Aug 3:
#WatermelonDay
#GrabSomeNutsDay
#ProfessionalEngineersDay
#GeorgiaDay
#EstherDay
#COVIDSurvivorDay
#YazidiGenocideAnniversary
#WatermelonSugarDay
#CLOVESAwarenessDay
#PlayDay
#CornishPastyDay
more…
https://t.co/znm1MqJI3j
Today is #CLOVESAwarenessDay. CLOVES belongs to a category of diseases known as PIK3CA-related overgrowth spectrum or PROS. We asked our PROS Ambassadors impacted by CLOVES what they wish people knew about the condition.🧵
Thank you to the #CLOVESsyndrome community for your continued efforts in advocacy and awareness. Please take the time to listen to & share the stories/posts of people with CLOVES Syndrome in support of #CLOVESAwarenessDay!
Today is CLOVES Syndrome Awareness Day! Here is a message from Angela Jocson, the Program Manager for AllStripes’ PROS research program. @CLOVESSyndrome
We've fetched out our finest #green threads today for #CLOVESAwarenessDay!
@CLOVESSyndrome is an overgrowth syndrome with complex vascular anomalies. CLOVES syndrome is rare and very variable; ranging from mild to severe. Find out more below! 👇
https://t.co/AsKxMT68KB
Did you know that CLOVES is a #RareDisease affecting multiple body systems with limited treatment options and no cure? Our families & loved ones need access to support, education, information and research into this disease. They deserve hope for the future
#CLOVESAwarenessDay
Do you know what #CLOVES syndrome stands for?
#August3rd of every year is marked as ‘#ClovesAwarenessDay’ to support and uplift the people suffering from this rare condition. The syndrome stands for skeletal/spinal anomalies that may lead to atypical growth.
Today is #CLOVESAwarenessDay!
CLOVES is caused by a somatic #GeneticMutation in the #PIK3CA gene. CLOVES belongs to a category of diseases known as PIK3CA-related overgrowth spectrum or #PROS
Head to @CLOVESSyndrome to learn more about this #RareDisease
https://t.co/NLXl4WMPd2
Show us your clovers!
https://t.co/XjVx6QjQsh
#CLOVESAwarenessDay
What is CLOVES Syndrome?
CLOVES is #rare and #progressive with limited #treatment options for our loved ones.
#CLOVESAwarenessDay #RareAsOne
10 Days of CLOVES Awareness🍀🍀
There is no cure for CLOVES. Surgery & other medical interventions are the primary treatment for CLOVES . There are a few targeted treatments that work well for some, but not everyone.
#CLOVESAwarenessDay #ILoveSomeoneWithCLOVES #CLOVESsyndrome
Friday night mood 🔮
#CLOVESAwarenessDay #RareAsOne #StrongerTogether #Persistent #MedicalMama
https://t.co/ipOrrZ455L
CLOVES Awareness day is every year on August 3rd. Join us in raising awareness, support & funds for CLOVES Syndrome!!
We also post images on IG, Facebook and here for you to share with friends and family.
https://t.co/XjVx6QjQsh
#CLOVESAwarenessDay #RareAsOne #StrongerTogether
Thanks to all of you who celebrated #CLOVESAwarenessDay
Because of you and our community, our CLOVES Awareness Day posts on FB reached 23,988 people and were shared 206 times! Our 7 days of CLOVES campaign on IG reached just over 3000 people.
#CLOVESSyndrome #MakeAnImpact
It's CLOVES Awareness Day...let me tell you why I have big HOPE around a disease that has no cure and only affects a few hundred people around the world
#CLOVESAwarenessDay #ILoveSomeoneWithCLOVES #RareAsOne #PIK3CA
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