Top Tweets for #CommunityCongress
Ended up in #WashingtonDC this past week for the EveryLife Foundation for Rare Diseases #CommunityCongress briefing and annual meeting. While I did state that I was taking a little break, the legislative aspect for #RareDisease is one of those things that…https://t.co/6bP0RQvyB2
Jaime Sullivan outlines the 2022 #CommunityCongress Legislative Policy Priorities and the impact of the working groups in both State and Federal Policy. @EveryLifeOrg
#CommunityCongress by #StartUpSecure KASTEL am 20.6. im TRIANGEL Open Space in #Karlsruhe: Regionale #CyberSecurity Community tauscht sich zu aktuellen Themen rund um #ITSicherheit aus. Mehr Infos und Link zur Anmeldung bis 6.6.:
https://t.co/fXlhtwWTzg
Important distinction: "Patient reported versus patient important," says Paul Howard. @EveryLifeOrg #Rare #Patients #Data #CommunityCongress
We need more funding for underdiagnosed / rare diseases like #SCAD. Period. @ncats_nih_gov Dr. Joni Rutter discussing impact of #rare disease, closely matching @EveryLifeOrg burden of care/rare study. #SCADheart #CommunityCongress
"About 95% of these diseases have no therapy, we want to start to turn this curve, and that is one of the things we do at (NCATS)" - Joni L Rutter Acting Director at @ncats_nih_gov #CommunityCongress
"The Community Congress helps us develop the policy priorities. Through Community Congress, we identify tools and resources for the community which we provide through RDLA" - Annie Kennedy, The Everylife's Chief of Policy, Advocacy, and Patient Engagement #CommunityCongress
Today, the EveryLIfe Foundation is hosting the 2021 #communitycongress Annual Meeting.
Community Congress is a membership-based program dedicated to bringing patient organizations, industry leaders, and other rare disease stakeholders together. https://t.co/3eBo8rAJca
Couldn’t make the #CommunityCongress on #EnglishBirdNames, but want to access the video? The link to the recording of the event is now available on our English Bird Names blog: https://t.co/i1M1pPkd6p
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Thank you to all the attendees to the #CommunityCongress for their careful listening and thoughtful questions. Let’s keep talking. It takes an #ornithologycommunity. #birding #ornithology 3/3
AOS Diversity & Inclusion Comm thanks everyone who participated in #CommunityCongress on #EnglishBirdNames. Thank you to the panelists for generously sharing their perspectives.
#ornithology #birding (🧵) https://t.co/nvW8ZBxrl3 1/3
Thank you to everyone who was involved in today’s #CommunityCongress on Common Bird Names. Such great commentary and perspectives. Questions from the audience and wonderfully thoughtful and informative answers from our panelists.
Thank you!
It was great hearing from stakeholders from different paths today during the @AmOrnith #CommunityCongress. What stuck with me most is something @jeffgyr started out with... (🧵1 of 2)
Unable to join the #CommunityCongress, but would like an opportunity to view? We’ll post a recording of the webinar on the English Bird Names blog https://t.co/teqZsPDYlx 3/3
Today’s the day! Please join the AOS Div & Incl Comm and Panelists during #CommunityCongress at 2pm ET/11am PT, if you’re able, to discuss eponymous #EnglishBirdNames! Not registered? There’s still time! Register here: https://t.co/meC84ugPIE 1/3
Our #CommunityCongress on eponymous #EnglishBirdNames is ONE DAY away! All are welcome! Register here https://t.co/meC84ugPIE to join our panelists in this discussion. For more event information: https://t.co/NkAmMFHerC
See you there! #birding #ornithology
It's here, it's here, the FAQ for the #CommunityCongress on #EnglishBirdNames is here!!
https://t.co/M6dKOgmdMT
Let me know if you have any questions. I will do my best to help.
We are excited for this group of panelists to help us with this #CommunityCongress.
Our task now is to listen, learn, and consider the issues at hand so we can ultimately make progress together.
Why are birds named after people? Should they be? AOS Div & Incl Comm welcomes all to a #CommunityCongress on #EnglishBirdNames this Friday at 2pm ET/11am PT! Join panelists to discuss challenges, complexities, and opportunities in the naming of North American birds (🧵).
Really excited to join this amazing group of panelists, after talking to some of them, on our #CommunityCongress this Friday! #ornithology #birding
Why are birds named after people? Should they be? AOS Div & Incl Comm welcomes all to a #CommunityCongress on #EnglishBirdNames this Friday at 2pm ET/11am PT! Join panelists to discuss challenges, complexities, and opportunities in the naming of North American birds (🧵).
Why are birds named after people? Should they be? AOS Div & Incl Comm welcomes all to a #CommunityCongress on #EnglishBirdNames this Friday at 2pm ET/11am PT! Join panelists to discuss challenges, complexities, and opportunities in the naming of North American birds (🧵).
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