Top Tweets for #Complexmedicalneeds
You don't have to navigate #benefits and funding alone. The #WellChild Family Welfare Service helps families caring for children with #complexmedicalneeds access:
💜 Benefits advice
💜 DLA and PIP support
💜 Grants
Families can refer themselves here https://t.co/6elcFeYS2q
Please sign and share this petition to insure our most vulnerable get the services they need in adulthood.
#complexmedicalneeds #complexneeds #complexcare #Healthcare #socialcare #disabilityawareness #disabilityrights
https://t.co/LaRlLimr4X
I support Rare DISEASE DAY
Please Offer your Support
🧬 🦠 🦼 💉 💊
Ryoo’s rare diseases is considered to be a #ultrararedisease
#Lipodystrophy #musculardystrophy #Disabled #laminopathy #500WorldWide #genetics🧬 #lifelimiting
#ComplexMedicalNeeds
#BeProud #BeStrong
Proud doesn’t come close Ryoo had her first dialysis session.
All went well can’t thank the staff enough for understanding @Autism & phobias❤️
Keeping fighting on Ryoo ⭐️
#CKD #HeartTransplant #Autism #BloodTransfusion #ComplexMedicalNeeds
@Kidney_Research @nkf @InvisiYouth
Every #child with #complexmedicalneeds deserves a #nursespecialist to support families in care co-ordination, but we need a #DirectorofFundraising & Communications @RoaldDahlFund to make this happen, could it be you?!
https://t.co/OcGsMfjFit
https://t.co/saLMper023
HOPE -
Hold onto HOPE ❤️
Sometimes thats all we have x
Keep making happy 😃 memories
#ComplexMedicalNeeds #RareDiseases #LifeLimiting #ConstantChronicPain #ConstantNausea #VisuallyImpaired
#ChronicKidneyDisease
#Autistic #PallativeCare @rarediseaseuk @kidneycareuk
Please remember-
Sometimes,
You just have to REST
The world 🌍 can wait …..
#HospitalLife #PallativeCare #ComplexMedicalNeeds #MentalHealth
@Fearnecotton @mentalhealth @LesDennis @NewcastleHosps @GabyRoslin @InvisiYouth @rarediseaseuk ☺️❤️☺️
Great to see @WellChild raising the issues & concerns of children with #complexmedicalneeds & their families on @BBCBreakfast. More support certainly needed in all areas especially #transitions
Day 18 Hospital 🏥
A few up & down days.
Luckily the Freeman Team & loki take great care of Ryoo💝
Fingers crossed🤞the procedure goes a head next week #lifeLimiting #ComplexMedicalNeeds #Autistic ❤️@LesDennis @GabyRoslin @5SOS @PixieLott @LEGO_Group @Michael5SOS @Luke5SOS ❤️
There are moments that mark your life, moments when you realise nothing will ever be the same & time is divided into two parts…….
Before and after this❤️
#cardiacarrest #PEGJ #ComplexMedicalNeeds #PalliativeCare #LifeLimiting
Keep fighting ❤️
@GabyRoslin @LesDennis
A trip to A&E for Ryoo & Loki the service dog 🐕🦺 Ryoos having some lumps in her knee & stomach checked out 👨🏼⚕️ 👩⚕️ Thank you @NorthumbriaNHS for looking after Ryoo xxx #ComplexMedicalNeeds #RareDiseases #ServiceDog @5SOS @Tha5SOSFamily xx
#LifeOfCarer
#ComplexMedicalNeeds
1/2
Cannula just failed at 4am - pump alarming saying blocked line.
Son does new cannula, I prime pump .
Heads to bathroom, comes out I see blood pouring out of cannula site
Total blood bath , looks like murder scene
Blood everywhere
RT - Happy 19th Birthday Ryoo We are blessed to get to 🥳celebrate another birthday with you🎈 #OrganDonation
❤️The last year has been challenging but you’ve made it to 19 🎉#LifeLimiting #PalliativeCare #ComplexMedicalNeeds @GabyRoslin @LesDennis @TheVampsband @NHSOrganDonor
Could we ALL send Ryoo the BIGGEST good luck 🤞 🍀
She’s due to have a Portacath fitted & her Vascath removed.
This will be done under GA by the Radiology & Cardiology Team due to her unique medical condition
#PalliativeCare
#ComplexMedicalNeeds @GabyRoslin @LesDennis @5SOS
The double act are back together #RyooAndLoki
Ryoo is the happiest when Loki visits her in hospital 🏥 xxx #ComplexMedicalNeeds #PalliativeCare @guidedogs @LokiOfficial Thank you @NewcastleHosps for taking care of her❤️@NHSOrganDonor @GabyRoslin @LesDennis @5SOS @TheVampsband
Someone special came to visit Ryoo in hospital 🏥 She couldn’t be without loki 🐶 Thank you @NewcastleHosps A&E and The Freeman for looking after us all #ServiceDog #ComplexMedicalNeeds @guidedogs @GabyRoslin @LesDennis @rarediseaseuk @NHSBT @LokiOfficial @5SOS
@TheVampsband 🐶
From tomorrow our Saturday Social sessions will be OPEN TO ALL AGES (0-19) 9.30am-12.30pm Ensor Mill Queensway OL11 2NU #JollyJosh #rochdale #middleton #heywood #pmld #complexmedicalneeds
For families with children with disabilities, false accusations of abuse resulting in investigations are a frighteningly common occurrence, and can have devastating impacts for the whole family.
#specialneedsparenting #specialneedsministry #complexmedicalneeds
For families with children with disabilities, false accusations of abuse resulting in investigations are a frighteningly common occurrence, and can have devastating impacts for the whole family.
#specialneedsparenting #specialneedsministry #complexmedicalneeds
Looking forward to seeing you 💙
#hydrotherapy #charity #Rochdale #complexmedicalneeds #anniversary
#InspireInclusion #SEND #PMLD #ChangingPlace #incloosion
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