Top Tweets for #CreakyChat
Heading to Denver for @RheumResearch Investigators Meeting. Will probably be posting a lot about rheumatology and the science behind it this week just to warn you. #Rheum #PatientChat #CreakyChat #Medx
Does anyone else have fibromyalgia what helps when you have a flare up ?
Please participate and then share with your respective community! #ChronicPain #Rheum #T2D #PatientChat #CreakyChat
Calling all patients over 18!
We invite you to participate in a 10-15 minute online survey focused on your use of online technologies and your thoughts on issues like privacy and policy.
Please share with your communities. ๐
#BeLikeLight
https://t.co/UHRpNOdeyd
@CreakyJoints @Lupus_Chat @DawnMGibson @realcc @Tinu @bibicosplays @catinamorrison_ @beth_morton Iโll definitely join in on #CreakyChat this evening! (UK time) Looking forward to it ๐
Looking forward to chatting later today! Hope you'll be around to join us during (or even after, you're never late on #CreakyChat) #spooniechat #NEISVoid #lupuschat #migrainechat @Lupus_Chat @DawnMGibson @realcc @Tinu @bibicosplays @PainWarriorCode @catinamorrison_ @beth_morton
Well lime growing nutty about tomatoโs #CreakyChats with @migrainesallday Beet you there at 2 pm ET Friday 3/29.
But your trauma will come up with all kinds of ways itโs about you and how youโre not worth it
Or God made you broken or you became that way through some mistake
Until you find Community. #DisCo #SpoonieChat #CreakyChat #ChronicLoaf #LupusChat #DisabledBlackTalk
@CreakyJoints A1. My family wants all the traditions to stay the same but I cannot do it all. Makes for internal conflicts for me. #creakychat
A2) In the early stages of chronic #migraine, I couldn't walk unassisted. I needed full-time help. My mom didn't think twice about moving n 2 care for the kids & taking me to dr appts. I've never felt more grateful to have her take on a vital role w/o once complaining #CreakyChat
Q2) Support from friends and family can be invaluable. How has your support system played a role in your journey with chronic illness, and how does it contribute to your gratitude? #CreakyChats
A3 I love Tea.
Discover the tips that work for youโฆ as an individual. Not everyone is the same. #CreakyChat
Q3) What strategies have you found helpful in managing your health needs and maintaining routines during this transitional time of year? #CreakyChats
.This is both an important question & it's sad we continuously have to ask it. We need to start electing leaders (local, state wide, and national) that truly understand the #CreakyLife. We need #Rheum patients in all levels of government. #CreakyChat #PatientChat #ChronicPain
Q2) Let's tackle the issue of stigma: How can we challenge misconceptions and promote a more inclusive, understanding society? #CreakyChats
So I *finally* got my cytokine panel results!!
Iโd appreciate any easy-to-digest info recs about MCP-1 and IL-18, as well as any research on IL-6 elevations despite being on an IL-6 inhibitor.
#NEISvoid #SpoonieChat #CreakyChat #MedEd #MedTwitter
Join us, @bonehealthBHOF, @PCFA,@MSKAust, @CreakyJointsAus and @CreakyJoints for a #CreakyChat about #osteoporosis, bone health and other comorbid conditions on Twitter on Monday, May 15th at 7pm ET!
Forgot to tag #CreakyChat and #DisabilityTwitter. Can you boost this question to other patient & physician Twitter communities I missed?
Thanks!
Hey #RareDisease #NEISvoid #SpoonieChat #MedEd #MedTwitter:
Can you share any examples of physician-directed white papers, handouts, or resource sheets that you like (or donโt) for any rare or poorly understood diseases/conditions?
Looking for models of what works (vs. not)!
@CreakyJoints A1) when I had my appointment with a disability doctor, she told me I was too young to have RA and my associated ailments! #Creakychat
Aussies are also welcome to join this #CreakyChat session. It starts at 11 am on Tuesday 31 January Australian Eastern Daylight Time.
#Arthritis #Autoimmune #Migraine #Lupus #Spoonies #Australia
๐ฃ๏ธ Join us on Monday the 30th at 7:00 pm EST for our January #CreakyChats! We'll be joined by our friends and co-hosts from #MigraineChat, #LupusChat, AND #SpoonieChat! You won't want to miss this all-star lineup as we hold a "Symptom Symposium." โฐ Set your reminders today!
@Ebony_Dog @CreakyJoints This feels amazing. I participated in a Zoom Gift Exchange with warriors from South America. We shared our hobbies a while ago. Each person received a digital gift or mail. #CreakyChat
@sskelcher @CreakyJoints Hello Shannon! Glad you could join us on this evening's #CreakyChat I always love meeting other #RA warriors and hearing all about how they are able to navigate through their day-to-day lives
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