Top Tweets for #DMDHub
Prof Giovanni Baranello and Dr Mariacristina Scoto presenting information from the DMD Hub Clinical Trial
Finder at the Action Duchenne conference.
Please check the DMD Hub CTF for updates:
https://t.co/VGaWW3LhAI
#DMDHub #adconf23 #ActionDuchenne
We're proud to have supported this exciting research, which is testing the use of motion capture technology to monitor disease progresssion, by supporting the study recruitment through the #DMDHub!
#DMDResearch #Duchenne
https://t.co/u8QSXmCDib
4-year-old Charlie has became the first boy to take part in Sarepta's gene therapy trial in the UK, thanks to the #DMDHub Central Recruitment Project
https://t.co/pZD1n1Hjik
#endduchenne #GeneTherapy
First Boy in UK Dosed on Sarepta's Gene Therapy Trial at The John Walton Muscular Dystrophy Research Centre, thanks to the #DMDHub Central Recruitment Pilot Project
https://t.co/AgTeXt1zmm
4-year-old Charlie became the first boy to take part in Sarepta's gene therapy trial in the UK, thanks to the #DMDHub Central Recruitment Pilot Project
https://t.co/6S87J6mHaf #GeneTherapy #DMD #Duchenne
DMD clinical trials are actively recruiting in the UK!
The #DMDHub Central Recruitment list is now being used to help with recruiting patients to trials. Register your/your child's details and you could be approached by a site if eligible to take part: https://t.co/EPU4xGGwVt
By funding staff posts at the Royal Hospital for Children, Glasgow, the DMD Hub has enabled more clinical trials to take place and more boys in Scotland to take part in research: https://t.co/hUrTFk4Xsr
#DMDHub #Duchenne #DMDresearch
The #DMDHub is launching a new project to improve access to research for DMD patients and families. The project will evaluate whether a central patient contact list is an effective study recruitment tool. Catch up on a webinar about the project here: https://t.co/w3nkbQykCb
The #DMDHub has continued to expand access to clinical research and helped to bring more trials to the UK in 2021, including preparing the UK for #GeneTherapy. Find out more in the DMD Hub Impact Report https://t.co/jISEUOhzgG
Are you a DMD patient or caregiver? Join the #DMDHub webinar for more information on the Central Recruitment Pilot Project - a project to establish a central database of patients interested in taking part in clinical studies #clinicaltrials #duchenne
The DMD Hub are hosting a webinar to discuss the launch of the DMD Hub Central Recruitment Pilot Project. This will take place on Thursday 31st March - 7-8pm and Michela Guglieri and Anne-Marie Childs will be presenting 🎉
For further info: https://t.co/ozQzrFAEta
The #DMDHub has recently welcomed new team members across three sites in Oxford, Leeds and Oswestry. Each team member will play an important role in running effective trials for potential DMD treatments: https://t.co/R2xzKP2hjG
What happens when clinical trials for #DMD come to an end? Catch up on our webinar here: https://t.co/eTOKQzXHoU #clinicaltrials #DMDHub #Duchenne
We're committed to the ongoing success of the #DMDHub and have announced a further four years of funding for the DMD Hub Manager role:
https://t.co/FSTPkKmZCe
#clinicaltrials #DMD #Duchenne
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