Top Tweets for #DOMEProjectAdvisoryGroup
For #CarersWeek I got inspired by a thread asking about #CarersInResearch and decided to compile all the handy tips given to me by the #DOMEProjectAdvisoryGroup in one thread to help include British South Asian carers in dementia research
#DOMEProject #demchat
And that's a wrap on Stage 1 of #DOMEProjectAdvisoryGroup!
Thank you so much to the collaborators for their insight, candour & for helping make a #DOMEProject interview study truly culturally accessible.
#phdlife #phdchat #demchat #PPIE #dementia #patientandpublicinvolvement
Let's do another #DOMEProjectAdvisoryGroup tips:
🎥Create accessible audio visuals of written materials eg. PIS, flyer
🕤AV only 1 min
🎤Use an older woman's voice for AV
💬Avoid terms like "principal investigator"-stick to supervisor/researchers
#phdlife #phdchat #DOMEProject
Some more #DOMEProjectAdvisoryGroup tips from today:
💸Say incentive is "giftcard", not "voucher". Changes whole perception & can maintain dignity
📱Send flyers out via WhatsApp groups
👩🏾💼Image of researcher on flyer for relatability
#DOMEProject #phdlife #phdchat #PPIE
Some more #DOMEProjectAdvisoryGroup tips from today:
💸Say incentive is "giftcard", not "voucher". Changes whole perception & can maintain dignity
📱Send flyers out via WhatsApp groups
👩🏾💼Image of researcher on flyer for relatability
#DOMEProject #phdlife #phdchat #PPIE
The #DOMEProjectAdvisoryGroup was wealth of feedback today on interviewing #SouthAsian carers:
🧻Fresh tissues handy for emotional topics
☕Have chai ready
❤️Ask if self care planned after #interview
📄Provide reliable local signposting & resources
#DOMEProject #phdlife #phdchat
The #DOMEProjectAdvisoryGroup was wealth of feedback today on interviewing #SouthAsian carers:
🧻Fresh tissues handy for emotional topics
☕Have chai ready
❤️Ask if self care planned after #interview
📄Provide reliable local signposting & resources
#DOMEProject #phdlife #phdchat
I love that @FBMH_UoM has a guide on #publicinvolvement & it inspired me to create one suited for #DOMEProject
I work w/ older people, some w/ #dementia, so I aimed for big font, less text,lay speak & green print option for easy reading
#DOMEProjectAdvisoryGroup #demchat #PPI
🧠Still looking for people with #dementia, their carers, or working in a #memoryclinic, dementia organisation or on dementia research
🗨️Must speak English & Urdu
💻💵5 online meetings, paid & you'd make a #dementiastudy accessible for British South Asians
Please consider!
Why are they called #memoryclinics when #dementia is so much more and not always about memory?
One of today's musings with @MAQ02368772 over a productive Zoom chatting about how so much #dementiainfo is inaccessible and full of misconceptions
#demchat #DOMEProjectAdvisoryGroup
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