Top Tweets for #DataDIY
You can rewatch all of the #DataDIY workshops today to brush up on your data sharing skills or learn how to optimize your organization's data. Learn more: https://t.co/WXGdDdxUYc
Learn how to gather and optimize #raredisease data to further your research efforts by watching session recordings from https://t.co/WXGdDdxUYc #DataDIY #rarediseaseadvocacy
Refresh your data gathering skills by checking out recodings from #DataDIY #rarediseaseadvocacy #CareAboutRare https://t.co/WXGdDdxUYc
Just saw a purple cow!You know what they is if you’re a fan of #SethGodin It was a field of zebras on the way to Austin from Houston. Zebras not horses! Fitting as this is #RareDisease month & I just finished @GlobalGenes #DataDIY. @ThisIsSethsBlog
We've enjoyed connecting and educating this week during #DataDIY. Thanks to all in-person and livestream attendees! #CareAboutRare #raredisease https://t.co/PoNYvd1X82
Broadening our Scope, #WatchThisSpace ⭐ https://t.co/stflnT21oK ⭐#AvGeek #Radiotalk #Tesla #techtwitter #reviewsonline #videoproduction #VideoEditing #DataScience #innovation #DataAnalytics #DataDIY #LookAtThis #Streaming #Tech #NewTechnology
Thank you to everyone who has followed along with the #DataDIY series. You can find resources for all of the workshops here: https://t.co/WXGdDdgjzC
.@KhrystalKDavis is a vocal advocate for #newbornscreening & whole genome sequencing as needed. #DataDIY
"We cannot treat what we do not diagnose." - Khrystal K. Davis, JD, Founder, Texas Rare Alliance #DataDIY #RareDisease
Regarding including minorities at much higher rates in #clinicaltrials for #rarediseases, @ichristianr_ of @globalgenes says “Good science requires it. Good treatments require it.” #DataDIY 👏👏👏
Community health workers are a really important bridge to underserved populations. They can be your eyes and ears so that you know a community’s real concerns and needs. #DataDIY #RareDisease
“We have to figure out how to establish the collaborations we need to provide health equity” -Khristal K. Davis, JD, Founder, Texas Rare Alliance #DataDIY #RareDisease
"We cannot treat what we do not diagnose." - Khrystal K. Davis, JD, Founder, Texas Rare Alliance #DataDIY #RareDisease
Quick Poll: What are some barriers that keep you from reaching more patients? Answer here: https://t.co/JodlFnuUH5 #DataDIY #RareDisease
Remember to define your research goals when embarking on a natural history study. #DataDIY #RareDisease
Establishing a primary database with a positive effect of having all protocols listed on https://t.co/iWgZnSfFQF, allowing researchers and patient families to get in contact with appropriate resources. #DataDIY #RareDisease
@IRSFpaige breaking down how data collection efforts can be used to empower patient communities at #DataDIY.
Our next panel on clinical guidelines for data features Paige Nues of @rettsyndrome and Dr. Suter and Dr. Glaze of @bcmhouston. #DataDIY #RareDisease
Such a great two days of learning at @GlobalGenes #DataDIY event in Houston. Great learnings from great leaders. We are excited to put out learnings into action for Young People! Thanks you #GlobalGenes #HDYO #GreaterThanHD @DonnaKSpencer @ChandlerHDYO
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