#EBToMe - Twitter Hashtag

DEBRA UK @CharityDEBRA

over 5 years ago

Read our #EBtome stories: https://t.co/q9isWtmPCk See what support is available to you: https://t.co/dFmrvKFJBv

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DEBRA UK @CharityDEBRA

over 5 years ago

Just one small act can make a big difference, head to our website to read and share the #EBtome stories from the EB community: https://t.co/q9isWtmPCk

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DEBRA UK @CharityDEBRA

over 5 years ago

Just one small act can make a big difference, please share this post and head to our website to read the #EBtome stories from our brave EB community: https://t.co/q9isWtmPCk

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DEBRA UK @CharityDEBRA

over 5 years ago

Do you have an #EBtome story? Whatever your connection to EB or DEBRA we'd love to hear from you in the comments below. Find out more about EB and what DEBRA UK does: https://t.co/SxrM7YLI5T #EBAwarenessWeek

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DEBRA UK @CharityDEBRA

over 5 years ago

Thank you to Professor Gareth Inman from the @CRUK_BI and @UofGlasgow for sharing your #EBtome story to help raise awareness of the painful genetic skin condition, #EpidermolysisBullosa (EB).

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DEBRA UK @CharityDEBRA

over 5 years ago

“I have had the great privilege to meet some inspiring and brave individuals suffering from this painful condition and I’m amazed by their immense courage, tolerance and positivity.” - Professor Gareth Inman #EBtome #EBAwarenessWeek

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DEBRA UK @CharityDEBRA

over 5 years ago

Thank you #HemelToday for featuring #EBtome heroes Simon & Karen and helping to raise awareness of EB for #EBAwarenessWeek2020 #EBAW2020 #EBawareness https://t.co/6ZhEi1H5ET

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DEBRA UK @CharityDEBRA

over 5 years ago

Do you have an #EBtome story? Whatever your connection to EB or DEBRA we'd love to hear from you in the replies below.

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DEBRA UK @CharityDEBRA

over 5 years ago

Growing up with EB in the 1960s was difficult for Les. We have come a long way since, but in a recent poll, just 9% of people had heard of EB. Greater awareness of EB could be life-changing for people like Les: https://t.co/p2uh5Qlts6. Please RT. #EBtome

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DEBRA UK @CharityDEBRA

over 5 years ago

In a recent poll, only 9% of people had heard of EB. Together we can change that. Please share Simon's story so that more people know about EB to give us a greater chance of finding a cure. Sharing can make a difference. https://t.co/fycLheh9vy #EBAW2020 #EBtome #EBawareness

CharityDEBRA's tweet photo. In a recent poll, only 9% of people had heard of EB. Together we can change that. Please share Simon's story so that more people know about EB to give us a greater chance of finding a cure. Sharing can make a difference. https://t.co/fycLheh9vy

#EBAW2020 #EBtome #EBawareness https://t.co/QBTPQTC29R

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DEBRA UK @CharityDEBRA

over 5 years ago

"EB to me is a son I couldn't hug, screams I can't forget & a daughter growing up without an older brother" Yesterday we shared Karen's #EBtome - losing her son, Dylan at 3 months old. Today, Dylan's dad, Simon shares his. https://t.co/fycLheh9vy #EBAwarenessWeek2020 Please RT🦋

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DEBRA UK @CharityDEBRA

over 5 years ago

We'd love to hear your #EBtome stories, whether you have EB, have a family of friend with EB, are a healthcare professional, we'd love to hear from you. Either post as a landscape clip from your phone, or as a comment below. Find out more about EB: https://t.co/SxrM7YLI5T

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DEBRA UK @CharityDEBRA

over 5 years ago

Post your #EBtome clips or comments on any #EBAwarenessWeek2020 post this week to help us raise awareness of the painful genetic skin condition, Epidermolysis Bullosa (EB). In a recent poll, only 9% of people had heard of EB. Together we can change this. https://t.co/SxrM7YLI5T

CharityDEBRA's tweet photo. Post your #EBtome clips or comments on any #EBAwarenessWeek2020 post this week to help us raise awareness of the painful genetic skin condition, Epidermolysis Bullosa (EB). In a recent poll, only 9% of people had heard of EB. Together we can change this. https://t.co/SxrM7YLI5T https://t.co/O5FsmTxyyE

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DEBRA UK @CharityDEBRA

over 5 years ago

"When I think of EB, I think of the painful, debilitating, often devastating condition we see in clinic" Thanks @ajoyb_ from @uhbtrust & @unibirm_MDS for your #EBtome. We agree - people with EB are inspirational, have amazing fortitude & resilience. Please share for #EBAW2020

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DEBRA UK @CharityDEBRA

over 5 years ago

Please share Fazeel's story to help us raise awareness during #EBAwarenessWeek2020. You can also share your own #EBtome story, as a landscape clip, or as a comment below. #EBAW2020 #EBawareness #EpidermolysisBullosa #share #FightEB #raisingawareness #skincondition #DEBRAUK

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DEBRA UK @CharityDEBRA

over 5 years ago

Please share your own #EBtome stories, either as a landscape clip, or as a comment below. Together we can #FightEB. Read more about Fazeel and how EB impacts him here: https://t.co/5W3IicOkPq Find out more about EB and the different types: https://t.co/SxrM7YLI5T

CharityDEBRA's tweet photo. Please share your own #EBtome stories, either as a landscape clip, or as a comment below. Together we can #FightEB.

Read more about Fazeel and how EB impacts him here: https://t.co/5W3IicOkPq

Find out more about EB and the different types: https://t.co/SxrM7YLI5T https://t.co/TZjmU2eZeL

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DEBRA UK @CharityDEBRA

over 5 years ago

If you would like to contribute, we would love you to share what EB is to you, either as a short landscape clip or as a comment in any social media post this week. #EBAW2020 #EBawareness #EpidermolysisBullosa #EBtome #share #raisingawareness #skincondition #DEBRAUK

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