Top Tweets for #EBWEEK

over 1 year ago

Throughout the year and especially during #EBAwarenessWeek, Krystal Biotech recognizes and supports all those impacted by #EB. #EBWeek #EpidermolysisBullosa

KrystalBiotech's tweet photo. Throughout the year and especially during #EBAwarenessWeek, Krystal Biotech recognizes and supports all those impacted by #EB.
#EBWeek #EpidermolysisBullosa https://t.co/z9BmKiShH9

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over 2 years ago

Throughout the year and especially during #EBAwarenessWeek, #KrystalBio and our leadership team recognizes and supports all those impacted by #DEB. Read more about this #RareDisease: https://t.co/FggdqMwDnl #LivingWithDEB. #EBWeek #EBAwarenessWeek #DEB

KrystalBiotech's tweet photo. Throughout the year and especially during #EBAwarenessWeek, #KrystalBio and our leadership team recognizes and supports all those impacted by #DEB.

Read more about this #RareDisease: https://t.co/FggdqMwDnl

#LivingWithDEB. #EBWeek #EBAwarenessWeek #DEB https://t.co/e0sxnCudWI

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over 2 years ago

🅰️: At any age. EB can be diagnosed prenatally with genetic testing. Many infants are diagnosed shortly after birth & have been many who were diagnosed much later in life. This #EBweek, debra is tackling Google's TOP SEARCHED EB questions➡️ https://t.co/GjcjAzuYdW

debraOfAmerica's tweet photo. 🅰️: At any age. EB can be diagnosed prenatally with genetic testing. Many infants are diagnosed shortly after birth & have been many who were diagnosed much later in life.

This #EBweek, debra is tackling Google's TOP SEARCHED EB questions➡️ https://t.co/GjcjAzuYdW https://t.co/IWjyeHQJUU

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over 2 years ago

"その先へ" 10月25日〜31日は国際的な #表皮水疱症啓発週間です🦋 本日は啓発週間最終日です🦋 まだ道の途中。 model : @igumoc #EBAwarenessWeek #EBAwarenessDay #EBWeek #WeFightEB #EpidermolysisBullosa

SignLab_2010's tweet photo. "その先へ"

10月25日〜31日は国際的な #表皮水疱症啓発週間です🦋
本日は啓発週間最終日です🦋

まだ道の途中。

model : @igumoc

#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa https://t.co/pU4fnBsQz1

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PeDRAResearch @PeDRAResearch

over 2 years ago

"36" 10月25日〜31日は国際的な #表皮水疱症啓発週間です🦋 36は表皮水疱症の指定難病の番号。難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。 model : @igumoc #EBAwarenessWeek #EBAwarenessDay #EBWeek #WeFightEB #EpidermolysisBullosa

SignLab_2010's tweet photo. "36"

10月25日〜31日は国際的な #表皮水疱症啓発週間です🦋
36は表皮水疱症の指定難病の番号。
難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。

model : @igumoc

#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa https://t.co/SDrVikF3CM

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over 2 years ago

We're rounding out #EBAwarenessWeek with an Abeona Sponsored Webinar, Gene Therapy for Large Chronic Wounds in Recessive Dystrophic Epidermolysis Bullosa, presented by Jean Tang, MD, PhD. Listen now ➡️ https://t.co/p5L84pp0NV #PeDRA #pedraresearch #EBWeek #EpidermolysisBullosa

PeDRAResearch's tweet photo. We're rounding out #EBAwarenessWeek with an Abeona Sponsored Webinar, Gene Therapy for Large Chronic Wounds in Recessive Dystrophic Epidermolysis Bullosa, presented by Jean Tang, MD, PhD.

Listen now ➡️ https://t.co/p5L84pp0NV

#PeDRA #pedraresearch #EBWeek #EpidermolysisBullosa https://t.co/q6nCKmSS2Z

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over 2 years ago

"36" 10月25日〜31日は国際的な #表皮水疱症啓発週間です🦋 36は表皮水疱症の指定難病の番号。難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。 model : @igumoc #EBAwarenessWeek #EBAwarenessDay #EBWeek #WeFightEB #EpidermolysisBullosa

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over 2 years ago

@KrystalBiotech is honored to celebrate the strength and determination of the #DEB community during #EBAwarenessWeek. Learn more about #LivingWithDEB and the incredible patients and their families to whom we are dedicated: https://t.co/FggdqMwDnl. #LivingWithDEB #EBWeek

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over 2 years ago

"36" 10月25日〜31日は国際的な #表皮水疱症啓発週間です🦋 36は表皮水疱症の指定難病の番号。難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。 model : @igumoc #EBAwarenessWeek #EBAwarenessDay #EBWeek #WeFightEB #EpidermolysisBullosa

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over 2 years ago

"36" 10月25日〜31日は国際的な #表皮水疱症啓発週間です🦋 36は表皮水疱症の指定難病の番号。難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。 model : @igumoc #EBAwarenessWeek #EBAwarenessDay #EBWeek #WeFightEB #EpidermolysisBullosa

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over 2 years ago · Kameoka-shi

"36" 10月25日〜31日の一週間は国際的な #表皮水疱症啓発週間です🦋 拡散のご協力よろしくお願いします🦋 model : @igumoc #EBAwarenessWeek #EBAwarenessDay #EBWeek #WeFightEB #EpidermolysisBullosa

SignLab_2010's tweet photo. "36"

10月25日〜31日の一週間は国際的な #表皮水疱症啓発週間です🦋
拡散のご協力よろしくお願いします🦋

model : @igumoc

#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa https://t.co/wbB8ERb08O

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Gina VanDevender @GSV0920

over 2 years ago

10月25日〜31日の一週間は国際的な #表皮水疱症啓発週間です🦋 今日からこむぎさんの写真を投稿していきます📸 表皮水疱症について広く知っていただきたいので、拡散のご協力よろしくお願いします🦋 #EBAwarenessWeek #EBAwarenessDay #EBWeek #WeFightEB #EpidermolysisBullosa

SignLab_2010's tweet photo. 10月25日〜31日の一週間は国際的な #表皮水疱症啓発週間です🦋
今日からこむぎさんの写真を投稿していきます📸

表皮水疱症について広く知っていただきたいので、拡散のご協力よろしくお願いします🦋

#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa https://t.co/nwdSliGUvH

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over 2 years ago

It’s #EBAwarenessWeek! join me in spreading awareness of #EpidermolysisBullosa, a rare connective tissue disorder that causes extremely fragile skin that blisters and tears with any friction. Learn more about EB and take action at https://t.co/Fw7m6Yp0Ha #EBweek #WeFightEB

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over 2 years ago

#EpidermolysisBullosa Awareness Week is just around the corner on October 25-31! 🦋 #EBweek is a special time to raise public awareness, promote the need for a cure, and spur advocacy on behalf of the thousands living with EB. ➡️ Get involved at https://t.co/CFNjs6w1eN

debraOfAmerica's tweet photo. #EpidermolysisBullosa Awareness Week is just around the corner on October 25-31! 🦋

#EBweek is a special time to raise public awareness, promote the need for a cure, and spur advocacy on behalf of the thousands living with EB.

➡️ Get involved at https://t.co/CFNjs6w1eN https://t.co/N7QWY4eFAM

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over 3 years ago

For #EBweek (10/25-31), students at Stemley Road Elementary School in AL learned all about #EpidermolysisBullosa, crafted colorful posters, and came together to walk in honor of their fellow student, Adriana, who lives with EB. We LOVE to see these amazing awareness efforts! 🦋✊

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over 3 years ago

While #EBAwarenessWeek may be over for 2022, each patient's story is a year-long journey. Learn more and see patient stories here: https://t.co/0G8kGA3ZZR. #DEB #raredisease #EBWeek

KrystalBiotech's tweet photo. While #EBAwarenessWeek may be over for 2022, each patient's story is a year-long journey. Learn more and see patient stories here: https://t.co/0G8kGA3ZZR. #DEB #raredisease #EBWeek https://t.co/uyUSLzIg0m

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over 3 years ago

EB is a painful, #rare condition that profoundly impacts patients, families, & caregivers. As #EBWeek ends, we’d like to express our support for all those living w/ #EB & stress the importance of raising awareness of this #raredisease. #LivingWithDEB #EBWeek #dystrophicEB

KrystalBiotech's tweet photo. EB is a painful, #rare condition that profoundly impacts patients, families, & caregivers. As #EBWeek ends, we’d like to express our support for all those living w/ #EB & stress the importance of raising awareness of this #raredisease. #LivingWithDEB #EBWeek #dystrophicEB https://t.co/PVaIjD0KXH

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over 3 years ago

In honor of #EBweek, supporters across the country worked hard to raise awareness —like Savanah from Washington State and Brooks and his mom, Annie, from North Carolina! Savanah obtained an #EBweek proclamation & Brooks’ daycare hosted a silent auction fundraiser. Thank you! 🦋✊

debraOfAmerica's tweet photo. In honor of #EBweek, supporters across the country worked hard to raise awareness —like Savanah from Washington State and Brooks and his mom, Annie, from North Carolina! Savanah obtained an #EBweek proclamation & Brooks’ daycare hosted a silent auction fundraiser. Thank you! 🦋✊ https://t.co/Kx57zp38EE

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