Top Tweets for #EBWeek
October 25–31 is EB Awareness Week, a time to increase awareness of EB, promote the need for a cure, and to spur advocacy on behalf of the thousands of individuals and families living with EB in the United States.#EBWeek @debraOfAmerica
This #EBAwarenessWeek, #INmuneBio honors those living with RDEB, a rare condition causing fragile skin and chronic wounds.
We thank @debraOfAmerica & @EBResearch for their advocacy and support. Together, we’re advancing better treatments and brighter futures.
#EBweek #WeFightEB
Throughout the year and especially during #EBAwarenessWeek, Krystal Biotech recognizes and supports all those impacted by #EB.
#EBWeek #EpidermolysisBullosa
"36"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
36は表皮水疱症の指定難病の番号。
難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
"36"
10月25日〜31日の一週間は国際的な #表皮水疱症 啓発週間です🦋
拡散のご協力よろしくお願いします🦋
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
"36"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
36は表皮水疱症の指定難病の番号。
難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
Throughout the year and especially during #EBAwarenessWeek, #KrystalBio and our leadership team recognizes and supports all those impacted by #DEB.
Read more about this #RareDisease: https://t.co/FggdqMwDnl
#LivingWithDEB. #EBWeek #EBAwarenessWeek #DEB
"36"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
36は表皮水疱症の指定難病の番号。
難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
"36"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
36は表皮水疱症の指定難病の番号。
難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
10月25日〜31日の一週間は国際的な #表皮水疱症 啓発週間です🦋
今日からこむぎさんの写真を投稿していきます📸
表皮水疱症について広く知っていただきたいので、拡散のご協力よろしくお願いします🦋
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
"その先へ"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
本日は啓発週間最終日です🦋
まだ道の途中。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
🅰️: At any age. EB can be diagnosed prenatally with genetic testing. Many infants are diagnosed shortly after birth & have been many who were diagnosed much later in life.
This #EBweek, debra is tackling Google's TOP SEARCHED EB questions➡️ https://t.co/GjcjAzuYdW
@KrystalBiotech is honored to celebrate the strength and determination of the #DEB community during #EBAwarenessWeek.
Learn more about #LivingWithDEB and the incredible patients and their families to whom we are dedicated: https://t.co/FggdqMwDnl.
#LivingWithDEB #EBWeek
#EpidermolysisBullosa Awareness Week is just around the corner on October 25-31! 🦋
#EBweek is a special time to raise public awareness, promote the need for a cure, and spur advocacy on behalf of the thousands living with EB.
➡️ Get involved at https://t.co/CFNjs6w1eN
It’s #EBAwarenessWeek! join me in spreading awareness of #EpidermolysisBullosa, a rare connective tissue disorder that causes extremely fragile skin that blisters and tears with any friction. Learn more about EB and take action at https://t.co/Fw7m6Yp0Ha #EBweek #WeFightEB
While #EBAwarenessWeek may be over for 2022, each patient's story is a year-long journey. Learn more and see patient stories here: https://t.co/0G8kGA3ZZR. #DEB #raredisease #EBWeek
We're rounding out #EBAwarenessWeek with an Abeona Sponsored Webinar, Gene Therapy for Large Chronic Wounds in Recessive Dystrophic Epidermolysis Bullosa, presented by Jean Tang, MD, PhD.
Listen now ➡️ https://t.co/p5L84pp0NV
#PeDRA #pedraresearch #EBWeek #EpidermolysisBullosa
Today marks the start of #EBawarenessweek2022
We'll be posting throughout the week so that you can learn more about EB and join us in raising awareness about this disease!
#EBweek #EBawareness
For #EBweek (10/25-31), students at Stemley Road Elementary School in AL learned all about #EpidermolysisBullosa, crafted colorful posters, and came together to walk in honor of their fellow student, Adriana, who lives with EB. We LOVE to see these amazing awareness efforts! 🦋✊
On 10/24, we kicked off #EBweek @ the #debraBenefit in Atlanta! We celebrated the incredible progress in EB & honored some of the Community’s most notable including RHEACELL, Dr. David Woodley, Henry DeAngelis & Bowen Kim. Thank you to our guests, volunteers, honorees & sponsors!
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