Top Tweets for #ENDPkd
๐งก๐ BOSTON โ 30 DAYS TO GO! ๐โฐ
In just 30 days, weโll come together for the 2026 Boston Walk for PKD!
๐
Sept. 19, 2026
๐ Artesani Park, Brighton
Every step brings us closer to better treatmentsโand a cure. ๐
Who are YOU walking for? ๐
#EndPKD #BostonWeekend #WalkForACure
๐ It's official! Our Boston Walk for #PKD 2026 page is LIVE!
๐๏ธ Sat, Sep 19, 2026
๐ Artesani Park, Brighton MA
Walk, start a team, or donate. Every step moves us closer to a cure.
Register ๐ https://t.co/zv0PtVKfIO
#BostonWeekend #EndPKD #BostonWalkforPKD #KidneyDisease
Iโm meeting with Rep. Jay Obernolte today as part of the PKD Foundationโs Virtual Advocacy Day to share why PKD research and support for living organ donation matter to patients and families. Thank you @JayObernolte for taking time to meet with our community. #EndPKD #PKDFVAD2026
Proud to be re-designated as a @PKDFoundation COE. Thank you to the Foundation, our team and leaders @uw_medicine @uw_nephrology #EndPKD #PKD
๐ฃ Mark Your Calendars, PKD Community! ๐ #GoPatriots #PatientAdvocacy #EndPKD
The 2026 PKD Foundation Virtual Advocacy Day is happening Thursday, March 5, 2026, from 9:00 am โ 5:00 pm ET โ and we want YOU to be part of it! ๐๏ธโจ
This virtual, nationwide day of advocacy is your chance to speak up and make a real impact by connecting with the offices of your congressional representatives. Together, we can push for laws and policies that support patients, advance research funding, and improve care for the PKD community. ๐ช๐ฝ๐ฌ
๐ Learn more and register: https://t.co/KCCECu7UA3
Whether youโre a patient, caregiver, friend, or supporter โ your voice matters. Letโs show what New England can do! ๐
And yesโฆ stay warm and go PATRIOTS! ๐โ๏ธ
#PKDAdvocacyDay #PKDFoundation #PKDAwareness #March5 #MakeADifference #NewEnglandPKD #AdvocacyInAction #GoPatriots ๐
New article by Ivanov et al uses transcriptomic analysis, custom pannexin blocker, RNAScope, and 3D cultures to characterize role of purinergic signalling in ADPKD #endPKD
https://t.co/yvArh3GFAR
You're invited to the PKD RRC's first Scientific Roundtable of the New Year! Jan 5, 2026 โข 4 PM EST. Join us to discuss new resource development and how you can help. Featuring Dr. Vishal D. Patel, Yin Quan-Yuen Distinguished Professor, UTSW. #endPKD #PolycysticKidneyDisease
Reproductive care is a vital aspect of care for women living with ADPKD. By openly discussing options and potential risks, we can better support women throughout their journey. โค๏ธ
@silvishah ๐๐ป
@ZohrehGh7 ๐โญ๏ธ
@rahaai
#WomenEmpowerment #ADPKD #EndPKD
Exploring the Role of Plant-Based Nutrition in Polycystic Kidney Disease
Plant-based diets may confer therapeutic benefits in patients with PKD by modulating mTOR and AMPK signaling, reducing oxidative stress and inflammation, while improving CV profile.
#EndPKD #Diet #Nephrology
https://t.co/283kmgDjGK
โญ๏ธTalking about diet is almost always part of our first conversations with patients who have PKD.
As plant-based diet continues to gain more popularity, we took a closer look at what the evidence says about the effects on PKD.๐
#EndPKD #Diet #CKD #GeneticKidneyDisease #PKD
https://t.co/Sguwp27mov
@fouadchebib @pranavgarimella @rahaai @n0r0zha
Chilly day in California! โ๏ธ Grabbed my coffee and learning from the amazing Dr. @pranavgarimella at the @GlomCon PKDMD Program. Always learning, always inspired! ๐ฅฐ
#PKD #Nephrology #GlomCon #MedicalEducation #EndPKD
@PKDFoundation ๐๐ป
@fouadchebib @n0r0zha
@BeckyForbis @worldbefree888 Thank you for your words and prayers. All the best to your family member, this disease is horrible. ๐๐ผ๐ค๐ซ #ENDPKD
With the amazing PKD-MDP @GlomCon leadership โญ๏ธ๐ฅฐ #EndPKD #PKDfellowship @PKDFoundation @fouadchebib @pranavgarimella
๐ What an inspiring day at the @PKDFoundation PKD Walk! ๐
As Director of the @UCSDHealth PKD CoE, I had the immense pleasure of connecting with patients, families, and friends who came together to support PKD research. #endpkd
๐โจ Weโre grateful to our #BostonWalkforPKD sponsors for fueling the fight to #EndPKD! Your generosity makes every step more powerful and every hope brighter. ๐๐
๐ National Sponsors
#Otsuka #Vertex
๐ฅ Local Sponsors
#BethIsraelLaheyHealth #BethIsraelDeaconessMedicalCenter #CND (#CommonwealthNephrologyAssociation) #MassGeneralBrigham #Natera #NationalGrid
๐ Local In-Kind Donors
#Wegmans #Costco #StopAndShop #MarketBasket #WholeFoods #HannafordSupermarkets #OceanStateJobLot #TraderJoe
From food and prizes to critical support, each of you helped bring our community together to walk with purpose and passion. THANK YOU for standing with us to end PKD! ๐
#PKDCommunity #PKDFoundation #FundraisingForACure #BostonEvents #WalkForACure
๐๐ The #BostonWalkForPKD 2025 may be behind usโฆ but the #PKD spirit lives on every day!
Stay connected, keep the momentum going, and be the first to hear about:
โจUpcoming events
โจCommunity highlights
โจFundraising updates
โจWays YOU can help #EndPKD
๐ฑ Just scan a QR code and follow us on Instagram, Facebook, or Xโ join our growing #PKDCommunity today!
Together, every like, share, and comment makes a difference ๐
#BostonEvents #WalkForACure #BostonStrong #KidneyHealth #PKDFoundation #PKDCommunity #StayConnected #FundraisingForACure
๐ Big strides in 2025!
Today at the COE Conference 2025, Dr. Garimella shared that the PKD Foundationโs Network now includes 83 Care Centers nationwide.
@PKDFoundation
#EndPKD
Weโre grateful to our #BostonWalkForPKD sponsors for fueling the fight to #EndPKD! Your investment helps countless families impacted by this disease. Register for the Boston Walk for PKD at https://t.co/ujaispTJfG.
#Otsuka #BethIsraelDeaconessMedicalCenter #CommonwealthNephrologyAssociates #massgeneralbrigham
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