Top Tweets for #ERNReCONNET
π Attending #EULAR2026 in London?
We'd like to meet you at Booth O13 β NPO Area! π
Come visit us and learn more about ERN ReCONNET. π
π
3β6 June 2026 | π London, UK
See you there!
#EULAR2026 #ERNReCONNET #RareDiseases #Rheumatology #London2026 #CPMS #TogethERN
π World Lupus Day π
At #ERNReCONNET, we are profoundly committed to supporting the lupus community @LupusEurope
Together, letβs #MakeLupusVisible by raising awareness and sharing knowledge
π’ Last call! The ERN ReCONNET Transition Survey deadline is 31 May.
If youβre a patient with rCTDs or a carer, your experience can help improve care across Europe. It only takes 15 minutes.
π https://t.co/7BqezwuRfo
Please shareβevery voice matters!
#ERNReCONNET #RareDiseases
π¬ ERN ReCONNET Newsletter n.31 is out!
A network in full motion β read the April 2026 edition here π https://t.co/dBvBdBFghJ
Not subscribed yet? βhttps://t.co/xyBlKMzVnR
#ERNReCONNET #RareDiseases #EuropeanReferenceNetworks
πThe 2026 Call for ERN Affiliated Partners is open! Healthcare Providers from Bulgaria, Cyprus, Ireland, Norway and Slovakia are particularly encouraged to apply to become Affiliated Partners of ERN ReCONNET. π·https://t.co/RdCccWBWf3 #ERNReCONNET #ERN
π 9 years of ERNs. The ERN flagship manuscript has just been published in the Orphanet Journal of Rare Diseases. π·Read the full paper: https://t.co/F73gEH8XOH #RareDiseases #ERNReCONNET #EuropeanReferenceNetworks #JARDIN #RareConnectiveTissue #euhealth
Great day in Brussels!πͺπΊ
Priority: strengthening cross-border healthcare (Dir 2011/24/EU) for #RareDiseases. π€
#ERNs are key to improving patient care across Europe and facilitating cross-border access.π
#ERNReCONNET contributed with the Red Flags method for better diagnosis.
Advancing access to cross-border healthcare in the EU.
π
26 March
High-Level Conference on Patientsβ Rights & ERNs
Key topics: cross-border rights, border regions, rare diseases.
πhttps://t.co/FdX9fHTYzw
#CrossBorderHealthcare #EUHealth #PatientRights #RareDiseases #ERNReCONNET
Today, 28 Feb, the Leaning Tower of Pisa shines for Rare Disease Day, illuminated by ERN ReCONNET π
A symbol of resilience, unity & shared strength. Rare, but not alone π€π
#RareDiseaseDay #ERNReCONNET #StrongerTogether @EU_Commission @EU_HaDEA
π
The ERN ReCONNET 2026 Webinar Calendar is out!
π₯ Launch video by Prof. Maurizio Cutolo: https://t.co/AUGTVGgrRr
π Explore the calendar and register now: https://t.co/DGVzGMPJCv
#ERNReCONNET #RareDiseases #Webinars #PatientPartnership
ERN ReCONNET has endorsed new key events that in 2026 will bring together the European rare disease community to share expertise and advance patient care.
Read more about these events on our website: https://t.co/kNFtXtCFod
#ERNReCONNET #ERNs #europeanreferecenetworks
Final day of the High-Level Meeting on Rare Diseases at the European Parliament! The ERN ReCONNET Team is in Brussels to support stronger research, innovation and collaboration for rare diseases.
More info: https://t.co/MZmoOJ30LA
#ERNReCONNET #hlmrare #ERNs #EU4Health
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