Top Tweets for #ERNReConnet
๐ฌ The ERN ReCONNET July 2026 Newsletter is here!
๐ Read it here: https://t.co/iaFg8f9Cdh
#ERNReCONNET #RareDiseases #Research #EuropeanReferenceNetworks #Healthcare #rCTDs @EU_Commission @EU_HaDEA
๐ World Lupus Day ๐
At #ERNReCONNET, we are profoundly committed to supporting the lupus community @LupusEurope
Together, letโs #MakeLupusVisible by raising awareness and sharing knowledge
๐ข Last call! The ERN ReCONNET Transition Survey deadline is 31 May.
If youโre a patient with rCTDs or a carer, your experience can help improve care across Europe. It only takes 15 minutes.
๐ https://t.co/7BqezwuRfo
Please shareโevery voice matters!
#ERNReCONNET #RareDiseases
๐ฌ ERN ReCONNET Newsletter n.31 is out!
A network in full motion โ read the April 2026 edition here ๐ https://t.co/dBvBdBFghJ
Not subscribed yet? โhttps://t.co/xyBlKMzVnR
#ERNReCONNET #RareDiseases #EuropeanReferenceNetworks
Great day in Brussels!๐ช๐บ
Priority: strengthening cross-border healthcare (Dir 2011/24/EU) for #RareDiseases. ๐ค
#ERNs are key to improving patient care across Europe and facilitating cross-border access.๐
#ERNReCONNET contributed with the Red Flags method for better diagnosis.
Today, 28 Feb, the Leaning Tower of Pisa shines for Rare Disease Day, illuminated by ERN ReCONNET ๐
A symbol of resilience, unity & shared strength. Rare, but not alone ๐ค๐
#RareDiseaseDay #ERNReCONNET #StrongerTogether @EU_Commission @EU_HaDEA
๐
The ERN ReCONNET 2026 Webinar Calendar is out!
๐ฅ Launch video by Prof. Maurizio Cutolo: https://t.co/AUGTVGgrRr
๐ Explore the calendar and register now: https://t.co/DGVzGMPJCv
#ERNReCONNET #RareDiseases #Webinars #PatientPartnership
Final day of the High-Level Meeting on Rare Diseases at the European Parliament! The ERN ReCONNET Team is in Brussels to support stronger research, innovation and collaboration for rare diseases.
More info: https://t.co/MZmoOJ30LA
#ERNReCONNET #hlmrare #ERNs #EU4Health
#ERNReCONNET invites the rare disease community to their โSharing Good Clinical Practiceโ event on 1 Dec 2025 (15:00โ17:00 CET). Register now to explore best practices in care & #research for rare connective tissue disorders.
๐ https://t.co/wOQp0YWAPY
๐ณ๏ธ ERN ReCONNET is pleased to announce the newly elected Disease Coordinators for the 2025โ2028 mandate!
A warm thank you to all outgoing and newly elected Coordinators for their dedication. Together, we continue improving care for rare CTDs across Europe. ๐
#ERNReCONNET
๐ The ERN ReCONNET Transition Training Workshop is happening today in Ljubljana!
Experts, clinicians & patients from across Europe are shaping the ERN ReCONNET curriculum on transition of care in rCTDs.
๐ธ Highlights below ๐
#ERNReCONNET #Rheumatology #RareDiseases #EUHealth
The ERN ReCONNET Coordination Team was honoured to host DG SANTEโs representatives Donata Meroni & Stefano Vettorazzi in Pisa. A fantastic opportunity to review our achievements and discuss the future of #ERNReCONNET and its impact on rare diseases. @EU_Commission
๐ข ERN ReCONNET Newsletter #29 โ July Edition is out!
CPMS 2.0 launch, new patient representatives, call for new Disease Coordinators, webinars, online accredited course & more on rare CTDs ๐
๐ Read: https://t.co/Rc8M8R2myt
๐ฅ Subscribe: https://t.co/xyBlKMzVnR
#ERNReCONNET
๐งก Today ERN ReCONNET joins the World Systemic Sclerosis Day ๐ป
We support patients & HCPs with dedicated SSc resources, led by top experts & ePAGs.
๐ https://t.co/sGsJFAsniT
๐ฅ SSc Webinars: https://t.co/yVLWlwqLi2
๐ https://t.co/jD2FsfkkPs
#WorldSclerodermaDay #ERNReCONNET
Thank you to everyone who stopped by the ERN ReCONNET booth at #EULAR2025 Congress in Barcelona! It was great to meet our members and connect with new people interested in our Network๐ #ERNReCONNET #RareDiseases #Networking #ShareCareCure
ERN ReCONNET is at #EULAR2025 in Barcelona! ๐ช๐ธ
Lots of people are stopping by our stand and weโre loving the energy! ๐ฌ๐
Come meet the team in the NGO Area โ we look forward to connecting and talking about rare and complex connective tissue diseases. #ERNReCONNET
๐ An inspiring 3-day journey in Prague! The 2nd ERN ReCONNET Scientific Congress (Apr 9โ11) gathered experts, researchers & patients to share knowledge, boost collaboration & advance care in rare connective tissue diseases.
Thank you all! ๐ #ERNReCONNET #Prague2025
๐๐ During this Awareness month, 2 of our board members have represented the Sjรถgren patients during the @ern_reconnet scientific congress to highlight numerous unmet needs in Prague ๐จ๐ฟ
#Sjรถgren #Unmetneeds #ERNReconnet #Raredisease #Reumatology #Patients
๐จRegister now for our @ern_reconnet webinar TODAY at 4 pm ๐๐ป
#qualityoflife #relapsingpolychondritis #ernreconnet @Lupusreference @MartaMartamosca
๐ Register now for our @ERNReCONNET webinar TODAY at 4 pm on:
โExploring the Impact of Relapsing Polychondritis on Quality of Life" with Prof Laurent Arnaud, moderated by Prof Marta Mosca
๐ฏ Audience: patients, caregivers, and HCPs
โ๏ธ Register here: https://t.co/czHgTLI9cu
๐ the๐@ern_reconnet webinar season 2024-2025 is coming๐
โ๏ธRegistrations are open!
โน๏ธ of ALL #ErnReCONNET webinars n Registration links https://t.co/sOjcwWna5k
๐ฅ๏ธ #DYK that ALL our webinars are freely available?
โถ๏ธ #YouTubeChannel Webinar Playlist https://t.co/pvSphYWuwu
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