Top Tweets for #Expandedaccess
Already created the clinical chart for it…
Validates the potential curative gene mutation agnostic treatment capabilities.
Question is, how many other gene mutations have been treated under #FDAEAP #ExpandedAccess
#OCU400 #USH2A #RetinitisPigmentosa #GeneAgnostic
Really……..kinda wish it was……..
The only takeaway is that this patient suffers from #USH2A gene mutation 🧬
Under #FDA #ExpandedAccessProgram this is/will validate the scientific clinical gene-agnostic hypothesis for treating #RetinitisPigmentosa
#OCU400 $OCGN
The continued support from NINDS and the ACT for ALS initiative has been instrumental in enabling broader access to MN‑166 while capturing valuable clinical and biomarker insights.
#MediciNova #ALSResearch #MN166 #ClinicalTrials #ExpandedAccess #ACTforALS
@RepGusBilirakis Children with rare diseases like FSHD deserve access to potentially life-saving treatments NOW. Every day my daughters lose more and more abilities. Please help demand access:
[https://t.co/nLqgCpu3aI] #FSHD #PediatricTrials #ExpandedAccess
🧠 May is Brain Tumour Awareness Month. MPs, medics & pharma leaders must see this. Young people are running out of time & options. Please RT, tag those in power & help push for urgent change.
#GlowGold #DrugAccess #ExpandedAccess #ChildhoodCancer #eleanorsvoice
Where you live shouldn’t limit your access to treatments and clinical trials.
That’s why we are proud to lead the FIRST virtual clinical study with @CleneNano's #ExpandedAccess Program.
Learn more about our participation: https://t.co/kBM1N3nuO4
#ALSResearch #EndALS
#ExpandedAccess may be an option for patients with life-threatening diseases or conditions to try investigational medical products when there are no other options available.
Learn more: https://t.co/yThC8QnDbS
#physicians #healthcare
Synapticure was at #alsmndsymp last week to discuss our work to provide #ExpandedAccess to cutting-edge treatments and trials– including launching the first 100% virtual ALS study in partnership with Clene.
#ThrowbackThursday: One of OCE's first projects was #ProjectFacilitate, formed in 2019 to assist oncology providers w/ #ExpandedAccess requests for investigational drug products for patients w/ #cancer who have exhausted available therapies. Learn more: https://t.co/E0R4f0zisR
What does #ExpandedAccess mean? At @mndresearch our Director of Clinical Trial Operations Abigail O’Connell is sharing how @Synapticure, in partnership with Clene and Anovo, works to provide a Phase III eligible drug to patients who otherwise wouldn’t have access.
#alsmndsymp
An Overview of FDA’s Project Facilitate Oncology Expanded Access Program —free CE credits! https://t.co/Y0eb1dEnSI
#ExpandedAccess #ProjectFacilitate #pharmacy
Our team will attend the 3rd Operationalise: Early Access Programmes Summit Europe in a few days! 🚀
➡️ We will host a fireside chat “Supporting Pediatric Patient Populations: The Case for Expanded Access” on 8th October at 3:30pm-4:00pm.
#EAPs #ExpandedAccess #MedicalAccess
#ThrowbackThursday: One of OCE's first projects was #ProjectFacilitate, formed in 2019 to assist oncology providers w/ #ExpandedAccess requests for investigational drug products for patients w/ #cancer who have exhausted available therapies. Learn more: https://t.co/E0R4f0zisR
What is #ExpandedAccess and how does it help us develop #FDA-approved #RareDisease treatments more quickly? This infographic explains the process!
Learn more in our education course on rare disease #DrugDevelopment and access: https://t.co/2AVIWKim9k
#ExpandedAccess may be an option for patients with life-threatening diseases or conditions to try investigational medical products when there are no other options available.
Learn more: https://t.co/VSMKQrf1Fe
#physicians #healthcare
Lee Ann Browning-McNee of @reaganudall explains how #ExpandedAccess, AKA "compassionate use," can speed up #FDA approvals for life-threatening diseases.
Enroll in our series, "#RareDisease #DrugDevelopment: What Patients & Advocates Need to Know," today: https://t.co/o4xaucLfTt
The next phase of NORD's education series for patient advocates on #RareDisease #DrugDevelopment is now live in English and Spanish!
Learn all about the #FDA review process, labeling, #ExpandedAccess, #DrugRepurposing, and more: https://t.co/2AVIWKim9k
The HEALEY ALS Platform Trial Summer Webinar Series is back this week with a special #ExpandedAccess discussion featuring our EAP Patient Advisory Committee! Register: https://t.co/O1tLYlnUoK
The Healey & AMG Center is thrilled to share the latest publication from the Expanded Access (EA) Team! The report details the design and operations of a multicenter, multidrug EA program for ALS across nine US centers. #ALSResearch #ExpandedAccess
https://t.co/cV2iv2r32I
An Overview of FDA’s Project Facilitate Oncology Expanded Access Program —free CE credits! https://t.co/Y0eb1dEnSI
#ExpandedAccess #ProjectFacilitate #pharmacy
#ExpandedAccess may be an option for patients with life-threatening diseases or conditions to try investigational medical products when there are no other options available.
Learn more: https://t.co/VSMKQretPG
#physicians #healthcare
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