Top Tweets for #FCRN
#FcRn antagonists are changing the game in #gMG treatment. Explore innovative therapies, early diagnosis techniques, and personalized care plans through this interactive learning experience by Tuan H. Vu, MD: https://t.co/0QwDSYOede #Neurology #MedEd
📢 “This is a very novel mechanism of action,” Dr. Richard Furie @NorthwellHealth said of #FcRn in #lupus at #EULAR2026.
#nipocalimab
Read the full story here👇
https://t.co/4ejzIha7uO
Take your #gMG knowledge to the next level with this interactive Q&A curated by Tuan H. Vu, MD! Explore expert techniques for diagnosing & managing generalized myasthenia gravis with insights into #FcRN antagonists: https://t.co/0QwDSYOM2M #MedEd #neurology
🧠#FcRn inhibition is redrawing the #neuromuscular treatment map
Dr. Truyen (@luct_1 @argenxglobal) digs into new ADAPT OCULUS & ADAPT SERON data showing how #VYVGART is pushing into ocular MG, seronegative MG, & even treatment‑naïve #CIDP➡️https://t.co/IADt4ZOsB7
#MedTwitter
📢 “This approach could be effective in all diseases in which #autoantibodies are relevant for pathogenesis,” said Dr. Thomas Huizinga @UniLeidenNews.
#FcRn
Read the full feature @HealioRheum 👇
https://t.co/IpY0nRLnHD
@tashabloombaby It’s definitely very challenging for people with MCAS, but many are able to find med cocktails that work.
And the proof of concept of IVIG working opens the door to using #FcRN inhibitors which should have less intense side effects.
@NeuroSjogrens patients who are severely ill and often seronegative desperately need access - it is so hard to get IVIG and so many of us tolerate it very poorly, with unbearable side effects like frequent aseptic meningitis despite how it can help disease symptoms. The Sjogren’s #Vyvgart trials are going well so far, but seronegative patients are shut out as always. There are so many of us seriously suffering and dying preventable deaths. @argenxglobal Please help us. 🙏
Video from a Norway ME patient who resumes normal life after success with #Daratumumab. It’s a drug also being trialled for #Sjogrens because it depletes nefarious antibodies in plasma. Similar idea to the #FcRN inhibitors like #Vyvgart which are more focused on IgG depletion (IgG is a component of plasma). Or to #IVIG which instead floods you with donor IgG from plasma.
These are all effective because they are targetting the disease causing antibodies - yet more proof that like Sjogren’s and autoimmune neuropathy or dysautonomia, ME in at least some people is driven by an autoimmune process. #Care4Complex
One of the Norwegian Daratumumab trial participants- who is in full remission - has shared some insights on Instagram
⬇️⬇️⬇️
@tessfalor Immune suppression and modulation eg. #IVIG/SCIG but better yet more modern drugs that we may tolerate better like #FcRN inhibitors #Vyvgart + #Nipocalimab, #Daratumumab, other MAbs used for rheum disease, even Plex.
The local docs think it’s only for MG or haven’t even heard of it. Now what? How can I only be offered #MAID when there are treatments that could help me? It’s so ridiculous I don’t even have a serious specialist to take this to.
#CdnHealth #BCHealth #BCPoli #Care4ComplexBC
I’ve now got a 2nd official recommendation from a US expert in my disease for #FcRN inhibitor treatment like #Vyvgart or #Nipocalimab. The option has been dismissed repeatedly in BC, not even under compassionate use - not that anyone has tried to apply.
Excited to be part of the AMPLIFI trial, advancing care for #CIDP through #FCRN inhibition. Grateful for the opportunity to support our patients and contribute to the future of neuromuscular medicine @AANmember @AANEMorg @gbscidp @MedStarWHC @Georgetown #Nashville @MedStarGUH
If anyone knows how to pay out of pocket for unfunded infusion treatments, let me know? I am relapsing so badly and don’t have enough time left to keep fighting this unwinnable fight. I need to at least try an #FcRN receptor like #Vyvgart or #Nipocalimab if they won’t let me have Plasma Exchange or another immune suppressant to stop this relapse progressing. I’m almost bedbound now and going rapidly downhill. Neuro and Rheum have long abandoned me after mismanaging my care. I need help and don’t know what to do. If there’s a way to pay out of pocket, we could pay for some and fundraise maybe to tide me over if I can tolerate one of these infusion treatments, but it’s extremely expensive and we can’t self pay forever. #SaveAriane #Care4ComplexBC
New: BC Health Minister Josie Osborne just confirmed that it IS possible for private funding to purchase infusions of Brineura for Charleigh Pollock and that she understands the family is in talks with Island Health right now about this issue. #bcpoli
Well, now I’ve had a 5th (I think? I’ve lost count…) world class expert from the US re-re-re-re-re-re-confirm my diagnosis (#NeuroSjogrens #POTS #Dysautonomia #MCAS #SFN) and make another permutation of the same recommendations that lead with #Vyvgart (or other #FcRN receptor inhibitor) being the obvious best treatment option for my disease.
The challenge is always how? When I’m stuck in this abyss of medical neglect in a public system with no serious modern specialists in these conditions, and that has no place for rare or complex disease patients, especially ones who’ve suffered severe medical injuries and malpractice.
I never cease to be amazed by how night and day an experience it is speaking to these American/global experts who are at the leading edge of complex and post viral neuroimmune disease research and treatment. We can talk at such a high level, that I can’t even begin to with the local doctors. We understand everything each other says. They NEVER look at me like I’m crazy like the local doctors who simply don’t understand what I’m even talking about. They understand how sick I am and how much I need real medical care.
Grateful for the help and hope, but deeply exhausted by my disease and medical injuries, and on top of it, the never ending fight for care. It should not be this hard.
#Care4Complex #Care4ComplexCanada
#Care4ComplexBC
#FcRN inhibitors (like Vyvgart and Nipocalimab) are exactly what some of the US specialists recommended for me, as #IVIG worked well but had such severe side effects I couldn’t continue it. It mimics the immune modulating mechanism of IVIG but isn’t a blood product, so it doesn’t cause the severe immune reaction #Dysautonomia and #NeuroSjogrens patients are prone to. Basically if IVIG works for an autoimmune disease, then these can too.
But in Canada? 🇨🇦 My diagnosis is questioned and denied, I’m mocked for asking about treatment options like this, and have been left relapsing off all treatment for a year and a half now, after my doctors nearly malpracticed me to death then abandoned me, destroying my reputation and leaving me unable to access even more basic medical care.
This is NOT acceptable. I am being medically neglected and discriminated against, due to their mistakes and egos.
#Care4Complex #Care4ComplexCanada #Care4ComplexBC
#Sjogrens #disease #SjD
What’s new - not a ‘dry’ topic!
#FcRn
👇
How it works - cycle & re-sort
Prolongs IgG circulation
-Alters cytokines & tissue factors
IL6, IL12, IL23,TNF
-immune complex presentat’n
IgG complex
G Wright explains
@AWIRGROUP #FSR2025 @FloridaRheums
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