#FDMAS - Twitter Hashtag

ΑνΤρη @ProAndrie

4 months ago

#fdmas #fibrou #dysplasia

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NIDCR at NIH @NIDCR_NIH

over 1 year ago

Though there is no cure for fibrous dysplasia, there are treatments. It's important to let all of your health care providers know about any medications that are part of your treatment plan. #FDMASawarenessWeek #FDMAS

NIDCR_NIH's tweet photo. Though there is no cure for fibrous dysplasia, there are treatments. It's important to let all of your health care providers know about any medications that are part of your treatment plan. #FDMASawarenessWeek #FDMAS https://t.co/6CdaRtL9nU

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Global Genes @GlobalGenes

over 2 years ago

FD/MAS Global Awareness Week is an international campaign to raise awareness of fibrous dysplasia & McCune-Albright syndrome (FD/MAS) and build support for public health & research. In honor of it, we want to share Camryn Berry's story: https://t.co/KENENcYih0 @FDysplasia #FDMAS

GlobalGenes's tweet photo. FD/MAS Global Awareness Week is an international campaign to raise awareness of fibrous dysplasia & McCune-Albright syndrome (FD/MAS) and build support for public health & research. In honor of it, we want to share Camryn Berry's story: https://t.co/KENENcYih0
@FDysplasia #FDMAS https://t.co/YlTMLRSnJX

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NIDCR at NIH @NIDCR_NIH

over 2 years ago

This #FDMAS awareness week, meet the scientists who have been working to untangle the biology of this rare disorder and test new therapies, turning uncertainty into hope. https://t.co/lMB3QBEJ6G

NIDCR_NIH's tweet photo. This #FDMAS awareness week, meet the scientists who have been working to untangle the biology of this rare disorder and test new therapies, turning uncertainty into hope. https://t.co/lMB3QBEJ6G https://t.co/YtJcRV1kpn

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RARE Revolution Magazine®

@RareRevolutionM

over 2 years ago

#FDMAS may be rare, but so many of our challenges -the path to diagnosis, disability rights, medical gaslighting, etc. are SHARED. We hope to make an impact not only on those living with #FDMAS, but on everyone! Thanks for following along and connecting! @fdysplasiaorg

RareRevolutionM's tweet photo. #FDMAS may be rare, but so many of our challenges -the path to diagnosis, disability rights, medical gaslighting, etc. are SHARED. We hope to make an impact not only on those living with #FDMAS, but on everyone! Thanks for following along and connecting!
@fdysplasiaorg https://t.co/3oncDbZufU

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RARE Revolution Magazine®

@RareRevolutionM

over 2 years ago

Our website has a wealth of resources, including educational webinars, places where the community can participate in research, and access to FD/MAS related scientific papers. #FDMAS #raredisease #tuesdaytakeover https://t.co/6WF4Qkzguu @fdysplasiaorg

RareRevolutionM's tweet photo. Our website has a wealth of resources, including educational webinars, places where the community can participate in research, and access to FD/MAS related scientific papers. #FDMAS #raredisease #tuesdaytakeover https://t.co/6WF4Qkzguu
@fdysplasiaorg https://t.co/6uy7y9sD91

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RARE Revolution Magazine®

@RareRevolutionM

over 2 years ago

Hi! We're the FD/MAS Alliance, a rare disease advocacy nonprofit focused on supporting those living with #fibrousdysplasia #McCuneAlbrightSyndrome or #FDMAS. We're excited to participate in RARE Revolution's #tuesdaytakeover! https://t.co/6WF4Qkzguu @fdysplasiaorg

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NIDCR at NIH @NIDCR_NIH

over 2 years ago

To all our wonderful patients here at #NIDCR: We're so thankful for you, and we wish you and your families all the best this holiday season. . . #thanksgiving #NIH #FDMAS

NIDCR_NIH's tweet photo. To all our wonderful patients here at #NIDCR: We're so thankful for you, and we wish you and your families all the best this holiday season.
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#thanksgiving #NIH #FDMAS https://t.co/NVRgHCw7R8

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NIDCR at NIH @NIDCR_NIH

over 2 years ago

Patients & scientists recently joined #NIDCR to celebrate the 25-year legacy of research on #FDMAS, a rare disease of the bones, skin, & endocrine system. They shared how research is transforming patient care and turning uncertainty into hope. https://t.co/ExNWOBw6H3

NIDCR_NIH's tweet photo. Patients & scientists recently joined #NIDCR to celebrate the 25-year legacy of research on #FDMAS, a rare disease of the bones, skin, & endocrine system. They shared how research is transforming patient care and turning uncertainty into hope. https://t.co/ExNWOBw6H3 https://t.co/ySEIIeAppY

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

#ThrowbackThursday to our fibrous dysplasia/McCune-Albright syndrome symposium Sept. 11th. Director Rena D'Souza reflected on the progress of the last 25 years at NIDCR in her closing remarks: "#FDMAS is no longer an insurmountable challenge but a field ripe with possibilities."

NIDCR_NIH's tweet photo. #ThrowbackThursday to our fibrous dysplasia/McCune-Albright syndrome symposium Sept. 11th. Director Rena D'Souza reflected on the progress of the last 25 years at NIDCR in her closing remarks: "#FDMAS is no longer an insurmountable challenge but a field ripe with possibilities." https://t.co/iFt9tePnDo

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

Many thanks to all who joined us in person & virtually for our FD/MAS Symposium. You made it a success! #NIDCR75 #FDMAS #FibrousDysplasia

NIDCR_NIH's tweet photo. Many thanks to all who joined us in person & virtually for our FD/MAS Symposium. You made it a success!

#NIDCR75 #FDMAS #FibrousDysplasia https://t.co/i9Oh6HjNxV

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

Dr. Brian Kobilka, Nobel Laureate in Chemistry & @Stanford University professor, explains how his research in G protein coupled receptors relates to FD/MAS research. #NIDCR75 #FDMAS

NIDCR_NIH's tweet photo. Dr. Brian Kobilka, Nobel Laureate in Chemistry & @Stanford University professor, explains how his research in G protein coupled receptors relates to FD/MAS research.
#NIDCR75 #FDMAS https://t.co/I44qrpg8ed

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

FD/MAS parent Voncia Monchais says having her daughter meet fellow patients and parents at NIH was helpful in evolving how they talked about the condition to others in their lives. #FDMAS #NIDCR75

NIDCR_NIH's tweet photo. FD/MAS parent Voncia Monchais says having her daughter meet fellow patients and parents at NIH was helpful in evolving how they talked about the condition to others in their lives.
#FDMAS #NIDCR75 https://t.co/Uwn3zvnqNl

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

The FD/MAS patient/researcher panel discussion including patients Lucy and Gianna, along with Dr. Alison Boyce and Dr. Michael Collins #NIDCR75 #FDMAS #fibrousdysplasia

NIDCR_NIH's tweet photo. The FD/MAS patient/researcher panel discussion including patients Lucy and Gianna, along with Dr. Alison Boyce and Dr. Michael Collins
#NIDCR75 #FDMAS #fibrousdysplasia https://t.co/KmRMhI2Lwz

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

‘Denosumab is an exciting new treatment option for some patients with fibrous dysplasia, but more research is needed.’ - Dr. Alison Boyce, NIDCR #FDMAS #fibrousdysplasia #NIDCR75

NIDCR_NIH's tweet photo. ‘Denosumab is an exciting new treatment option for some patients with fibrous dysplasia, but more research is needed.’ - Dr. Alison Boyce, NIDCR
#FDMAS #fibrousdysplasia #NIDCR75 https://t.co/DloEBlks2t

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

Dr. Pamela Robey has been at NIDCR since 1983 and studying FD/MAS since late 1993. #NIDCR75 #FDMAS #NIHHistory

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

The origin of FD/MAS clinical studies at NIDCR, according to Dr. Michael Collins #NIDCR75 #FDMAS

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

Dr. Mara Riminucci of Sapienza University, Italy, outlines new technologies and questions in fibrous dysplasia biology #FDMAS #NIDCR75

NIDCR_NIH's tweet photo. Dr. Mara Riminucci of Sapienza University, Italy, outlines new technologies and questions in fibrous dysplasia biology #FDMAS #NIDCR75 https://t.co/tkxqqiFvKu

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

Good morning! We’re all set and ready to start the #FDMAS symposium at 9:00a.m. in Lipsett Amphitheater. #NIDCR75

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NIDCR at NIH @NIDCR_NIH

almost 3 years ago

Join us 9/11/23 for a symposium to celebrate 25 years of NIDCR research on fibrous dysplasia/McCune-Albright syndrome #FDMAS. Among the speakers will be Dr. Brian Kobilka, who won the Nobel Prize for work on G-protein-coupled receptors. https://t.co/j8Tq94eLf4 #NIDCR75

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