#FSHDConnect - Twitter Hashtag

7 months ago

Registration is now open for #FSHDConnect2026, our bi-annual patient conference connecting you with clinicians & researchers. Join us June 26–28 in Rosemont, Illinois. Register to attend: https://t.co/iutYgPjuZ9 #FSHMuscularDystrophy #FSHD #FSHDConnect #FSHDResearch

FSHDSociety's tweet photo. Registration is now open for #FSHDConnect2026, our bi-annual patient conference connecting you with clinicians & researchers.

Join us June 26–28 in Rosemont, Illinois.
Register to attend: https://t.co/iutYgPjuZ9

#FSHMuscularDystrophy #FSHD #FSHDConnect #FSHDResearch https://t.co/54tPcjPiYj

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FSHD Society @FSHDSociety

about 2 years ago

It's #WorldFSHDDay: An international celebration of the FSHD community and an opportunity to raise awareness across the globe! Share your own orange slice selfie and enjoy these from our #FSHDConnect photo booth 🧡😍🍊 #CureFSHD #FacesOfFSHD

FSHDSociety's tweet photo. It's #WorldFSHDDay: An international celebration of the FSHD community and an opportunity to raise awareness across the globe!

Share your own orange slice selfie and enjoy these from our #FSHDConnect photo booth 🧡😍🍊

#CureFSHD #FacesOfFSHD https://t.co/MC9RmtJw6d

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JWMDRC @jwmdrc

about 3 years ago

Megan McNiff presenting results from the #FSHD European Patient Survey @FSHDSociety IRC in Milan. This helps us understand patient preferences in clinical trial participation. Full lay report here: https://t.co/3mFz4fHLsR @FSHDEurope #FSHDConnect #CureFSHD

jwmdrc's tweet photo. Megan McNiff presenting results from the #FSHD European Patient Survey @FSHDSociety IRC in Milan.

This helps us understand patient preferences in clinical trial participation. Full lay report here: https://t.co/3mFz4fHLsR

@FSHDEurope #FSHDConnect #CureFSHD https://t.co/jIkjozxC12

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Lexi Pappas @LexiPappas_

about 4 years ago

I will continue to share my journey with FSHD, especially if it helps lead us to a cure. #CureFSHD #FSHDconnect

FSHD Society @FSHDSociety

about 4 years ago

Lexi Pappas delivered today’s 1st keynote, bringing the patient perspective to the International Research Congress. Alexandra Belayew, MSc PhD, thanked Lexi for her remarks, noting, “your words mean so much. Because for us, those working in #FSHD, progress is always too slow…”

FSHDSociety's tweet photo. Lexi Pappas delivered today’s 1st keynote, bringing the patient perspective to the International Research Congress. Alexandra Belayew, MSc PhD, thanked Lexi for her remarks, noting, “your words mean so much. Because for us, those working in #FSHD, progress is always too slow…” https://t.co/k08OR20wBn

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FulcrumTx @FulcrumTx

about 4 years ago

Today kicked off @FSHDSociety’s CONNECT conference. The #FULCrew enjoyed meeting the FSHD community at our Mini Reception this afternoon. #FSHDConnect #ISupport

FulcrumTx's tweet photo. Today kicked off @FSHDSociety’s CONNECT conference. The #FULCrew enjoyed meeting the FSHD community at our Mini Reception this afternoon.

#FSHDConnect
#ISupport https://t.co/tiGPqKGQ0a

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