Top Tweets for #FightDMDTogether
We were honored to join the @JeffFoundation Saturday in Columbia, MO for its family workshop! These events empower patients and families to be their own best advocates, spread awareness about #Duchenne in the medical field, and help accelerate R&D. #FightDMDTogether
We are proud to sponsor the Jett Foundation Webinar Series. The Webinar Series is an opportunity to equip Duchenne patients and families with knowledge, resources, and tools to better navigate their journey with Duchenne muscular dystrophy. #DMD #FightDMDTogether
Sarepta Therapeutics reports sustained functional improvement two years after treatment with SRP-9001, its investigational micro-dystrophin gene therapy for Duchenne muscular dystrophy. Read their press release here: https://t.co/7QU1buSUi6. #IndustryNews #FightDMDTogether
We wore red for Duchenne – and it was a Solid showing! Our team joined @JettFoundation to recognize World Duchenne Awareness Day and sported red during a recent all employee meeting. #TogetherWeAreSolid #StrongerThanDuchenne #WDAD2020 #FightDMDTogether
Sarepta has shared today that the FDA has accepted their New Drug Application (NDA) seeking accelerated approval for #casimersen (SRP-4045). For more about this hopeful news, please visit our website at https://t.co/XDIta5vVKM. #IndustryNews #Duchenne #FightDMDTogether
Two years ago, The Duchenne Program at @UMassMedical opened its doors to patients and families. Today, the clinic is providing year-round, 360-degree care for more than 300 patients and building a robust clinical trials program. Happy Anniversary! #Duchenne #FightDMDTogether
Today is #GivingTuesdayNow ! We need your support now more than ever. Check out some ways that you can help our programs: https://t.co/VZTiWZ6K4L. #Duchenne #FightDMDTogether
We had so many photos submitted over the weekend honoring our Duchenne heroes on Rare Disease Day! We are many and we are strong. Thanks for sharing your rare! #RareDiseaseDay #FightDMDTogether
There are over 6,000 identified rare diseases that are chronic, progressive, degenerative, disabling, and frequently life threatening. #RareDiseaseDay #FightDMDTogether
Every person can play a part in ensuring equity for people living with a rare disease by advocating for a loved one, or even a stranger, at school, at work, in our communities, and to lawmakers. How will you take a stand? #RareDiseaseDay #FightDMDTogether
Many thanks to @JettFoundation for having hosted a great family workshop last weekend in Portland. Good to meet so many families in the Pacific Northwest! #Duchenne #DMD #fightdmdtogether #patientcentricity #patientengagement #Santhera
Portland... we're coming for you! Join us this weekend in Portland, Oregon for our Portland Family Workshop. It will be a full day of Duchenne resources, education, and–most importantly–support for your family. Register today: https://t.co/yyAUVV7bGY. #Duchenne #FightDMDTogether
We are just about $900 away from meeting our #GivingTuesday goal! Help us cross the finish line at https://t.co/WG8R5YJdAg. Thank you for your support and for helping us #FightDMDTogether! #Duchenne #MuscularDystrophy
So glad to be a part of the @FightDMD Golf Tournament at greystonegolftn Special thanks to @TriStarBank
#fightdmd #fightdmdtogether #charitygolf #charitygolftournament #magnolianashville #magnoliagroup… https://t.co/JodbIdsbZr
Go! Gals! Another triathlon in the books for these incredible athletes. Read more on our blog about their success this past Sunday:
https://t.co/M0ITgB12go #StrongerThanDuchenne #Duchenne #FightDMDTogether
Together we are #StrongerThanDuchenne. Make a difference this #WDAD19 with a gift toward our $3,500 WDAD goal on Facebook: https://t.co/UAuLCipY54 #Duchenne #FightDMDTogether
Read my profile of @JettFoundation's Danielle Edwards, whose life changed forever when her little brother, Tanner, was diagnosed with #Duchenne muscular dystrophy. #FightDMDTogether @ParentProjectMD @CureDuchenne @HopeforGus @tali_steps @LHF_EndDuchenne https://t.co/pyApl5qm3p
Welcome Caitlin Hughes, one of our newest teammates, on #TeamJettTuesday! Caitlin joins us as our Development Coordinator, and works tirelessly for our Jett families. Be sure to read our latest blog to learn more about Caitlin! #FightDMDTogether
https://t.co/iDqCv4xWqS
And they're off! Be sure to follow #JettRide2019 for the next couple of weeks at https://t.co/mX7bA70arw . We will frequently post updates and photos of their ride and adventures. Day 1 recap is now posted! #FightDMDTogether #Duchenne
JettRide 2019 is right around the corner! Read about this year's routes and riders in our newest blog post. We are so excited to see our 9 racers in action and bring awareness to Duchenne! #FightDMDTogether
https://t.co/3vr96Mpm3n
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