Top Tweets for #Fraxa
We're raising money for #FRAXA starting next week for an early #worldfragilexday celebration!!
We've got a lot of collabs with a lot of wonderful people, + a whole #pokemon tournament planned!
Please 🔁 and 💙 so we can spread the word!!!
We're raising money for #FRAXA starting next week for an early #worldfragilexday celebration!!
We've got a lot of collabs with a lot of wonderful people, + a whole #pokemon tournament planned!
Please 🔁 and 💙 so we can spread the word!!!
Vorrei comunicare ai Geometri, Ragionieri, Commercialisti che dopo #ImaneKhelif pontificano su Genetica, DSD, Iperandrogenismo, Aneuploidie o Sindromi varie, che se per caso leggono “X fragile” … non è che il loro twitter si sta rompendo.
Tanto vi dovevo
#ImaneKhelif #FRAXA
🔴P4R-AD 1-SE IS OPEN FOR BUSINESS!🔴
Last day of raising money for #fraxa for #WorldFragileXDay , only $15 away from our last stretch goal!
We're running a minecraft hunger games and 1v1 tourney, come drop by and show your support for our players!
https://t.co/3ZkwhSOaht
Join #FRAXA's co-founders, Katie Clapp & Dr. Michael Tranfaglia, for a Facebook #AMA tomorrow, June 29 at 1pm ET. They'll answer your Qs on our latest breakthrough and potential of #ASO in #FragileX syndrome treatment. See you there! #FXResearch
https://t.co/u2rdRWqEbr
#FragileX affects males & females differently. Recent studies found learning differences in both mice and humans. A team at UC Irvine funded by #FRAXA is exploring these differences to design optimal treatments for all. #FXResearch
https://t.co/YDNAYrmZr6
Trying not to get my hopes up too high. I’ve been waiting for a treatment for #FragileX since my boy was diagnosed aged 2 - not because I don’t adore him as he is but because better cognition should make his life better. #Fraxa’s work gives us hope! #ResearchHeroes
Today @TetraDiscovery (Therapeutics) is launching large scale clinical trials of their phosphodiesterase (PDE) inhibitor for males ages 12-45 with #FragileX syndrome.
https://t.co/5joU2HbSYp
"The Use of “#Retardation” in #FRAXA, #FMRP, #FMR1 and Other #Designations" from Herring et al.
#cellsmdpi #cellbiology #opinion @DrKirstenJ @jojohjhj
Full text: https://t.co/JeW3UhB4cs
They aim to end #genticdisorders like Huntington’s and were gracious enough to include my cousin Isaac, a #FRAXA carrier, in on the action.
We are grateful for your support during this still challenging time, and we hope you know that your kindness and generosity has not gone unnoticed.
You make a difference for those living with Fragile X syndrome. Thanks for giving.
#FragileX #FX #FXResearch #Gratitude #FRAXA
Sometimes Mondays need a pick me up - and a laugh! The staff at FRAXA are here for you 🙂 One of the great things about our Fragile X families is how relatable our lives are. Check out Katie Clapp's video today!
#FragileX #FRAXA #FXResearch #TellMeWithoutTellingMe
Sometimes Mondays need a pick me up - and a laugh! We are here for you 🙂 One of the great things about our Fragile X families is how relatable our lives our.
Check out this vide by Advancement Director Jen Frobis!
#FragileX #FRAXA #FXResearch #TellMeWithoutTellingMe
A World Fragile X Day message from the president and co-founder of FRAXA Research Foundation, Katie Clapp!
#WorldFragileXDay #WFXD #FXAwareness #FragileX #FRAXA
A World Fragile X Day message from FRAXA's president and co-founder, Katie Clapp!
#WorldFragileXDay #WFXD #FXAwareness #FragileX #FRAXA #FXResearch
Hey St Louis friends! Turn into @kmoxnews ASAP to hear about Fragile X! Thank you for sharing information on Fragile X and Fragile X Awareness today for World Fragile X Day! #FragileX #FRAXA #WFXD #FXAwareness
How much easier would your life be if you knew what medications would help your child instead of trial and error with multiple drugs? Watch for our video tomorrow on the FRAXA funded grant for personalized medicine!
#FRAXA #FXResearch #FragileXResearch
When Biotech companies gather, good things happen! Support my @Ginkgo team (Hail Hydra) in the fight to regain the Safety Bear from @Synlogic in the @biotechgames. #biotechgames #FRAXA
Meet Elijah & Nikki! #FragileX #PieInTheSkyChallenge #Fraxa Join us for a 🥧🤦🏻♀️ in July for @FRAXAresearch !!
https://t.co/7YGflZIAkn
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