Top Tweets for #FunWithMECFS
Turns out I ran out of brain about 3 minutes before I realised I had, and that gap caused me to shout at darling husband for the first time in at least 2 years. Husband is being lovely and forgiving, and I'm trying to not drown in guilt and get some rest. #FunWithMECFS! 😒
Opened the laptop thinking I could do some little drafting of emails and cover letters. I wrote 3 lines, then body said 'oh you wanna do stuff? Lol, no, lie back down and rest your silly self like a good spoonie' #FunWithMECFS
I think the best thing I can say about that GP appointment is that systems can be traumatic even if everyone you encounter within that system is trying their absolute best #NEISvoid #FunWithMECFS
I keep on getting out of bed like, this is it! I am UP now, and I shall do useful and necessary things! Then between 5 and 15 min later, having to go back to bed. I have done this at least 7 times today. I think this time I'll just stay in bed. #FunWithMECFS
If you are a chronically ill person who sometimes needs midday naps, get yourself blackout blinds on a motor with a remote / wifi controller. It's the little things. #NEISVoid #FunWithMECFS #ActuallyUsefulAdaptations
Reading fanfic to try to feel less guilty about all the packing that needs doing that I can't help with 😔 #FunWithMECFS
Ah soft, what light from yonder window breaks?
It is the sun, and it is BEATING UP YOUR RETINAS
#FunWithMECFS #NEISVoid
You know when you read up on something and you're like, yeah, probably worth checking out if I can persuade the doc. Then a single sentence smacks you in the face?
https://t.co/UOS71wGC7Q #NEISVoid #FunWithMECFS #MECFS
You know those days when your autonomic functions just don't? My head feels like a bowling ball, and my eyes don't want to stay either still or both pointing at the same thing. I half want to sleep more, but I'm trying to regularise my sleep cycle at the moment. #FunWithMECFS!
Yes body, of course. Five am on a bank holiday is a completely reasonable time to demand that you be washed. No way that it'd disturb my housemates. Or wake the dog. #FunWithMECFS
Apparently this week is severe and very severe MECFS week. I'm between 80 & 90% on the MEA disability rating scale, and it sucks https://t.co/qHENSqcw4X #FunWithMECFS #SevereME #SevereMECFS #VerySevereME #VerySevereMECFS
#TMITweets #FunWithMECFS
Earlier, it looked like I might just have a bit more wind today. Now, it is very clear that the IBS is strong today, and I'm in a rapid inflation / expulsion cycle.
So I'm going to spend this evening alone with my overly musical bowels!
Dysautonomia is kicking my ass today. I can either focus my eyes and know vaguely which way gravity works, or my head can be more than 4 inches higher than my heart. Not both. #FunWithMECFS
I put on a face mask straight out of the shower, now my legs are wobbly and it's cracking. #funwithMECFS #oops
I spend my LIFE being goodly-badly. I almost NEVER look as ill as I actually am #funwithMECFS https://t.co/gDTAW2KY7N
Dear @BBCNews, I was too tired to chew my dinner this evening. Please, tell me, what would you count as 'exercise' in my case? #funwithmecfs https://t.co/1phgM6ry8t
Had a lovely boy shake me up a slim fast and also help me to sit up to drink it. No longer too hungry to sleep. #funwithMECFS
Some days, you just have to accept that there are battles you won't win. #duvetday #funwithMECFS #standingupisamyth #sleepforever
Dear Brain, why will you let me tweet, and read, but decide IM convos are just too hard? #funwithMECFS
Wanted to put on make up, but also super tired. So this peachy look used 5 products. #funwithMECFS includes beauty on an energy budget!
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