Top Tweets for #FunctionalNeurologicalDisorders

Diagnosed in November 2021, my life has been significantly altered by #functionalneurologicaldisorders
Grateful for my treatment team, family & friends, followers for support.
Please learn more about FND, which is a rare disease & often not acknowledged for those afflicted. 🧡

It was 3 years ago today that a migraine wrecked my nervous system, ultimately leading to #FunctionalNeurologicalDisorders diagnosis.
It’s a chronic condition that likely affects more than who are diagnosed.
Please learn more about it.
🧡
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#FunctionalNeurologicalDisorders
#TraineeFocus
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@WileyHealth @acemonline

The @rcpsych Faculty of Neuropsychiatry Annual Conference takes place on 12th -13th September 2024 in London. The conference will also be live streamed.
https://t.co/59VsMWTsHj
#FunctionalNeurologicalDisorders #Neuropsychiatry #PsychoticSyndromes #PaediatricNeuropsychiatry

One thing I’m leaning about #FunctionalNeurologicalDisorders 2.5 years after being diagnosed is the influence environmental changes has on symptoms. Barometric pressure changes spike mine. So does bad air quality.
Living in Pittsburgh doesn’t make this easy.
It’s easy to say an illness doesn’t define you. But it does shape you.
You get to decide HOW.
Every second. Every minute. Every day.
#FunctionalNeurologicalDisorders 🧡
The worst part of #FunctionalNeurologicalDisorders isn’t the stutter, shaking, or sensory issues. Nor is it not being able to take ADHD stimulants.
It’s not being able to go places or read books or watch tv because … don’t even know why. Just that I can’t anymore.
Sucks.
Don’t care about your politics.
As someone who developed a speech issue because of #FunctionalNeurologicalDisorders this type of support is heartening. Hope more public figures show kindness to those who are stigmatized.
Empathy is what connects us all.
🧡💜
Harry, I’ve struggled with a stutter all of my life. Thank you for telling me about yours, and don’t let anyone tell you it will stop you from achieving your dreams.
I’m proud of you.
Special glasses from @ShadysideEye 👓
These are FL-41 bifocal lenses,w/60% opacity. They are designed to block light in a way that helps with #Migraine 💜 and eye fatigue/sensory issues stemming from #FunctionalNeurologicalDisorders 🧡
Hopeful.
Grateful.

Big migraine after colonoscopy — likely from sedation — sparked #functionalneurologicaldisorders symptoms: stutter/arm tremor.
Med team on it, already doing treatment.
Said I’d share good and bad of it all.
Not as bad as before. Focusing on positives.
🧡
Episode 2 of Detangle: Listen to a candid conversation with eminent #neurologist, Prof Dr Jon Stone as he talks to us abt #FunctionalNeurologicalDisorders or #FNDs.
@jonstoneneuro
https://t.co/qqZYQcyRZD
Our full #Patientvoice chapter available now as PDF
"The patient voice: #antidepressant #withdrawal, #medicallyunexplainedsymptoms and #functionalneurologicaldisorders"
Chapter 23 by Marion Brown @recover2renew and Stevie Lewis @Institute_PDW
PDF 👇👇
https://t.co/gsOjU95ndZ
Contents pages - of new print book edited by Peter Lehmann and Craig Newnes
Book available here:
https://t.co/JHlyZL5a6M

Ready for product #2? 🌟 Check out this amazing information toolkit published by Monica Taing and Mishika Khurana, focused on taking a #steppedcare approach for #functionalneurologicaldisorders !

A small uptick in #migraine lately — probably in part due to air conditions. With those, one #FunctionalNeurologicalDisorders symptoms (stuttering) has re-emerged, then increased.
Knew it could happen.
Grateful to know what to expect this time around. Grinding through. 🧡
EMDR therapy session Friday.
Been doing regularly since #FunctionalNeurologicalDisorders diagnosis (November 2021) — and treatment really helped with symptoms.
Learn more about it.
#MentalHealthAwarenessMonth 💚 https://t.co/QkVWoE4Edr
Dear #FND peeps. I'm having between 15 - 20 seizures a day. Is this to be expected? #functionalneurologicaldisorders
Packed house for a wonderful presentation at our #NCHD Journal Club this morning from Dr Garret McDermott talking us through #FunctionalNeurologicalDisorders - particularly relevant for ICU teams who can see prolonged functional seizures
#FND @mcdermgl @DONPSI @COAIrl @wearetuhf

Give this a read by my friend @scottcwheeler
I had to overcome a stutter as part of my #functionalneurologicaldisorders — and it does become part of you.
Thanks for raising awareness, Leo Carlsson 💪🏼
Leo Carlsson stutters.
Sometimes people pull him aside to quietly ask him about it. Sometimes he’ll tell them before they have a chance.
But it’s also just one part of him. And that part, like the rest of him, is ready for the NHL’s lights and lenses.
https://t.co/EfHftmRcVU

Give this a read by my friend @scottcwheeler
I had to overcome a stutter as part of my #functionalneurologicaldisorders — and it does become part of you.
Thanks for raising awareness, Leo Carlsson 💪🏼
Leo Carlsson stutters.
Sometimes people pull him aside to quietly ask him about it. Sometimes he’ll tell them before they have a chance.
But it’s also just one part of him. And that part, like the rest of him, is ready for the NHL’s lights and lenses.
https://t.co/EfHftmRcVU

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