Top Tweets for #FundNotFail
Special evening with supporters of @Tog4ShortLives to share highlights of our #impact report. Privileged to have @Mrs_M_B who fronted our successful #fundnotfail campaign there to share her moving story of her life with Ella and the amazing support from @AcornsHospice #thankyou
Our CEO @itsandyfletch & chair @Hilary_Cass are proud to launch our #impact report at a special event for families, supporters & friends, showing how we are making a lifetime of difference to seriously ill children & families.
👀 Watch this space to hear more tomorrow
@Mrs_M_B @Tog4ShortLives @AcornsHospice Kirsty you were amazing thank you. So powerful to hear your story, the importance of @AcornsHospice to your family and your vital role in our #fundnotfail campaign.
Amazingly powerful talk by @Mrs_M_B about the difference that childrens hospices made to them as a family #fundnotfail. #pedpc
We provided with Lennon with hourly medical care day in, day out. In the 10 years of his life not at one point did I ever feel we got the level of support we needed to care for Lennon safely and make life or death decisions #GiveItBack #FundnotFail #SEND
Lots of spending commitments coming out of #CPC2019 . How about this one. Only 4% of parents of disabled children receive the support they need to safely care for their child. It would take just 0.05% of current public expenditure to fill the funding gap #GiveItBack
3 things that don’t seem that difficult on the surface but never seem to be achieved! #fundnotfail #giveitback
How the government can fix services for disabled children -
1. Make them a priority
2. Clarify and review the law
3. Fund them properly.
#GiveItBack
https://t.co/a8fJhcpCbV
This is why we began @carmel_charity 👇🏼 our first project is to fundraise and rebuild Dominic’s house after his family have been living in a building site for 6 years #ProjectHouse #FundnotFail #giveitback
Every day, disabled children are missing out on £1.2million worth of support. Tell the Chancellor to #GiveItBack – please back the @DCPcampaign and sign parent carer Vickey's open letter: https://t.co/T9NQ0uFRn5
And gave a special mention to our #Hertfordshire campaign #NascotLawn #parentpower #fundnotfail #togetherat40awards
Mike Penning MP welcomes all our families to the event
I must admit to being a tad over excited this morning! Too major successes for the children’s hospice sector in one week. £25m/5yrs NHS funding confirmed and Funded Children’s funerals. #FundNotFail #ChildrensFuneralFund What next????💪 @Tog4ShortLives
The news 📣 its official in hansards ”I am delighted to announce, and my hon. Friend and other members of the all-party parliamentary group will be very pleased to hear, that NHS England has committed to increase the funding to £25 million by 2023-24” @cj_dinenage #fundnotfail
3. Simon Stevens has committed to reviewing needs of children who need palliative care in England to understand whether additional resources are necessary across the system to ensure children get the support they need. This has been a central part of @Tog4ShortLives #fundnotfail
En route to Westminster for @Tog4ShortLives #ChildrensHospiceWeek parliamentary drop in event. Briefing MPs and peers on why funding commitments need to be met now to avoid a sustainability crisis. Which threatens lifeline services for children and families. #fundnotfail
@Jeremy_Hunt So should children and younger people with properly funded and joined up services. Our globally renowned #hospices are now shutting services 4 our most vulnerable & they were promised £10 million at Christmas. Where is it? #fundnotfail @Tog4ShortLives
@TraceyBleakley @BBCSurrey @stephnimmo @hospiceuk Do you think it's because basically it's hidden? Families r struggling behind closed doors at home/hospital/hospice & in an age of #denial even about normal death #EOL, facing up to children/YPs' life-shortening disease is impossible @drkathrynmannix #fundnotfail #followthechild
Forward planning with a good evidence base seems so essential to stop vulnerable children and young people hitting crisis points in their life. We have the knowledge now that gives us the figures to show the growth of demand on services so please #fundnotfail @DCPcampaign
@hayleysmallman @CraigHatch @ClaireHouse @hospiceuk @Tog4ShortLives @WellChildFams @STRONGBONESCCT @DanielHewittITV Excellent interview Hayley. So frustrating that you are all still having to fight for essential funding just so C&YP like Holly get access to this vital care. #samemessagestillnofunding #childrenshospicesmatter
"When you have a life limited child you should not be fighting for help. You should be spending quality time with your children making memories - you never know how long you will have them for." #PalliativeCare #FundnotFail
https://t.co/SHMFX5YOmZ
"When you have a life limited child you should not be fighting for help. You should be spending quality time with your children making memories - you never know how long you will have them for." #PalliativeCare #FundnotFail
https://t.co/SHMFX5YOmZ
Looking forward to welcoming Andy @itsandyfletch CEO of @Tog4ShortLives to @KeechHospice on Tuesday.
Lots to discuss both locally and nationally. Particularly letter from @andrealeadsom MP on support for disabled children & ethical marketing. #leadership #FundNotFail
Great to see @ehospicenews covering our successful #fundnotfail campaign - thanks guys! https://t.co/RvR7eTd8a8
UK Charity @Tog4ShortLives ran a hugely successful #FundNotFail campaign in 2018 resulting in a substantial boost in funding from NHS England to support and sustain children's hospices. https://t.co/oKzmYB63JT
What a great result for the #fundnotfail social media campaign!
This campaign was launched by the palliative care charity Together for Short Lives last summer... https://t.co/p1neWn1uB8
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